[General] Introduce Yourself!

Dj Stiggie

I'm Dj Stiggy (I'm not really a DJ) and I have Cystic Fibrosis. I have been diagnosed for about 14 years now. Keep up the forum it's a great idea

Trinity

Hi everyone

I dont have a LTI but i think the forum is a great idea and i am sure it will be a great support network for people with LTI.

Someone mentioned depression earlier, well i am 32 and have suffered panic/anxiety attacks since the age of 16. I know its not an LTI and i feel like a fraud mentioning it, but it has had a huge impact on my life the last 16yrs.

Sometimes i am fine, sometimes i am not. The last few months have been a nightmare. Going to work is a struggle, i am shaking and exhausted by the time i get there. But i have to go in as my son needs to attend school. I think thats the hardest part, not going, but the pressure of knowing you have to.

I hate myself sometimes and feel like pulling my hair out (actually i do have trichotillomania so i do pull my hair out :eek: ) but i just wish i was 'normal' and find myself looking at other people feeling envious but i guess i dont know what goes on in their lives either.

My mum suffers from anxiety - severe, as does my aunt. I'm the eldest yet my sister doesnt suffer. My aunts eldest daughter suffers too but not her younger sister!! - i often wonder if its hereditary (or contagious)

My GP sent me to a psychiatrist in order to refer me to a Cognitive Behavioural Therapist and also prescribed lexapro. But i have never taken meds and prob never will.

I recently found out i am pregnant which has brought on even more anxiety due to dizzy spells and generally feeling unwell - but hopefully all will go well this time!! And i definately cant take the meds now! Guess i just have to wait til i can get on the waiting list for the therapist.

Anyway sorry for rambling, best of luck with the forum!

Edited cos i saw Terrys post! - I drank every night. I felt it helped. It did to a certain extent and got me through. A couple was just nice but occasionally i would get pissed. Had to give up when i found out i was pregnant. Guess if i had a beer now i wouldnt care that my head is muzzy and my heart is pounding.

Terry

Crap. I deleted my post before seeing your edit.
I diodn't want to take away from your post because I had started a thread.

Don't drink. Deep breaths if your heart is pounding. If it continues, see a docotr.

nesf

Trinity1 wrote:

I know its not an LTI and i feel like a fraud mentioning it, but it has had a huge impact on my life the last 16yrs.

It is, if one takes the common sense definition of a chronic (long term) medical/psychological condition that has a detrimental effect on your life.

Nalced_irl

Hey, I suffer from anxiety and more recently panic attacks also. I have had anxiety proper for about 3 1/2 years but can remember times from my childhood which i can class as anxiety also (of course i did not know what anxiety was at the time). I have recently come back early from a holiday as it was getting way too much and am currently trying to muster up the courage to seek help without freaking out and running from the doctor for space. Just out of interest, has anyone with a mental illness tried hypnosis for it and were there any notible results? Personally, with my mind a bit screwed up, i would not want to risk being hypnotised in case it got messed up further but interested to know if anyone has tried it. Also good to see others with the same condition. It makes me feel a little more normal than i did.

tbh

Hi Guys,

When I was thinking about this forum, the whole Depression / Mental illness thing did cross my mind, and I was wondering if it was an appropriate topic for LTI. That's not down to any snobbishness or anything, it was simply because I was worried that people might get bad advice and we wouldn't be able to cope or help (I know it sounds stupid). However, what it all boils down to is the issue of support - Trinity and Terry, you guys, as far as I'm concerned anyway - are more than welcome here and i hope you get the support you deserve. That goes for anyone who feels affected by these issues - long term illnesses are not merely physical ones. I hope you contribute more to the forum.

welcome!
tbh.

edit:

nalced_irl wrote:

Also good to see others with the same condition. It makes me feel a little more normal than i did.

if no-one else ever reads anything in this forum, it'll all have been worth it for that quote. Welcome Nalced!

Trinity

tbh wrote:

Hi Guys,

When I was thinking about this forum, the whole Depression / Mental illness thing did cross my mind, and I was wondering if it was an appropriate topic for LTI. That's not down to any snobbishness or anything, it was simply because I was worried that people might get bad advice and we wouldn't be able to cope or help (I know it sounds stupid). However, what it all boils down to is the issue of support - Trinity and Terry, you guys, as far as I'm concerned anyway - are more than welcome here and i hope you get the support you deserve. That goes for anyone who feels affected by these issues - long term illnesses are not merely physical ones. I hope you contribute more to the forum.

welcome!
tbh.

edit:

if no-one else ever reads anything in this forum, it'll all have been worth it for that quote. Welcome Nalced!

Thank you very much tbh. I was ashamed posting as i often wonder why i cant just snap out of it and at times i feel its self inflicted but it is a relief to know i'm not the only one.

tbh

Trinity1 wrote:

Thank you very much tbh. I was ashamed posting as i often wonder why i cant just snap out of it and at times i feel its self inflicted but it is a relief to know i'm not the only one.

no need to thank me, thank you for posting and helping me understand your condition better. And good luck with the pregnancy, stock up on sleep while you can

Fast_Mover

Hi all..
Was at the doctor 2weeks ago and asked him to take a blood sample while I was there. He rang a week ago and told me that i'v an underactive thyroid and to come back in 4weeks time for another blood test and how we'll take it from there.
Had to google to find out what the hell an underactive thyroid(also called hypothyroidism:D) even was. I didn't think it was anything major, but read the treatment is having to take one thyroxine tablet everyday for the rest of my life!:(

nesf

Fast_Mover wrote:

I didn't think it was anything major, but read the treatment is having to take one thyroxine tablet everyday for the rest of my life!:(

Believe me after a few months, you barely notice it. It just becomes as much a part of your daily routine as having a bowl of cereal in the morning (or whatever). I haven't taken any less than 4 tablets a day in about four years! Never mind when hayfever season starts...

mike65

True enough, I'm on a pill a day for blood pressure and cholesterol (neither off which are exessively high) and I was a little grumpy at the mere fact of taking them. After nearly 2 months its just another bit of my life.

Mike.

nesf

mike65 wrote:

True enough, I'm on a pill a day for blood pressure and cholesterol (neither off which are exessively high) and I was a little grumpy at the mere fact of taking them. After nearly 2 months its just another bit of my life.

Mike.

There was one point where I had to take 15 pills a day for a few weeks (triple therapy for helicobacter pryoli plus meds). I was like a dog for the entirety of it, taking that many at once isn't a happy experience.

Trinity

nesf wrote:

There was one point where I had to take 15 pills a day for a few weeks (triple therapy for helicobacter pryoli plus meds). I was like a dog for the entirety of it, taking that many at once isn't a happy experience.

****e thats harsh. My mum is on about 12 a day at the mo for anxiety. I dunno how she gets through the day. I am about to google helicobater pryoli!!.

Fast_Mover

Thing is, there's people out there with alot more problems in life health wise who'd jst love to just take a tablet a day for their illness and here I am moaning at the sheer fact that I may have to do it..makes ya think..

Trinity

Fast_Mover wrote:

Thing is, there's people out there with alot more problems in life health wise who'd jst love to just take a tablet a day for their illness and here I am moaning at the sheer fact that I may have to do it..makes ya think..

Oh dont feel bad. Being told you have to do anything 'for the rest of your life' is a big shock for anyone. It makes things seem so much more serious - its not like a flu that will be gone in days.

My nana has an underactive throid gland and she is in her late 70's and runs rings around us all

Fast_Mover

Trinity1 wrote:

My nana has an underactive throid gland and she is in her late 70's and runs rings around us all

Oh god..don't worry, I know I wont be dying any time soon because of it:D

wheresthebeef

hi everyone,
my name is david and i am a second year degree nursing student at trinity college with Adelaide and Meath Hospital Tallaght. I have no chronic illnesses that have yet been diagnosed but have a burning interest in diabetes and would like to become a Diabetes Clinical Nurse Specialist or Advanced Nurse Practitioner in my career. And as a nursing student its great to see so many patients experiences of their long term illnesses on this board both good and bad.

David

SeaSide

Diabetes is the new black

tbh

SeaSide wrote:

Diabetes is the new black

The_Conductor

SeaSide wrote:

Diabetes is the new black

Make that Type 2 diabetes is the new black.

Cathymoran, my better half, gets very agitated when people use the generic term diabetes- as those with juvenile onset, insulin dependent diabetes (type 1) are extremely different from those with Type 2 diabetes (even though an increasing number of children are presenting with Type 2, which is often a reflection of poor diet and couch potato lifestyles).

Shane

tbh

I have to say - that annoys me as well - people always ask me if I ate loads of sweets as a child when I say I'm diabetic. Before I was diagnosed I probably would have thought the same thing, so you have to bite your tongue

mike65

Maybe us Type 1s should have a slogan or something.

"It was'nt our fault bo-hoo!"

Mike.

SeaSide

I have accepted my Diabetes as being God's punishment for being slothful but I know that if I work really hard I too can become insulin dependent just like my type 1 mentors who inspire me

tbh

SeaSide wrote:

I have accepted my Diabetes as being God's punishment for being slothful but I know that if I work really hard I too can become insulin dependent just like my type 1 mentors who inspire me

There's nothing like reaching a goal you've set for yourself

Fajitas!

Don't see anyone else here with it, but was diagnosed with Ulcerative Colitis today... not too happy about it

Going to have to spend a long time in bed...

shazba

Hi folks, I've just been told i've M.S . I have numbness in both hands and feet and awful tiredness as yet im not on any medication as im waiting results of a lumbar puncture. I'm glad to have a diagnoses because i thought i was loosing it. As nobody can see anything you begin to think they think your making it up.
My son was born with little or no thyroid gland he was quickly diagnosed with Hypothyroidism and takes thyroxine . He has been taking it now since he was born and will be 18 soon.Hes fine.....
My Dad also takes thyroxine but because he had cancer of the thyroid which he had removed when i was 2 or3 and im now 40 hes still with us and going strong.....
Thought you might be intrested

mike65

Welcome aboard to both of you (I'll say that as tbh is'nt around!)

Fajitas! I had to that condititon, it sounded nasty from the name. Good luck and keep us posted.

shazba you might want to check this out if your don't aleady know about it
http://www.msireland.com/resources/index.html

Mike.

Fajitas!

Yeah, it's pretty nasty alright.

I'm on plenty of meds, and bed bound for a while, the doc hopes to have it into remission within 6 weeks...

After that I just have to hope it dosn't flare up again!

shazba

thanks, will take a look

tk123

i dont consider it an lti compared to what some of you guys are going thru but since other people mentioned it..My name is tk and i have a thryoid problem Anyhoos I've been on medicine for the last few years but found out last week that i have a cystic nodule on my thyroid so i'll be getting a biopsy(my biggest fear as i have a slight people-touching-my-neck-phobia) on the cyst to see whats inside before they slit my throat take it/some of the thyroid out. I'm a bit freaked out at the moment because its happening so fast - in the space of a few weeks i've gone from going to get my perscription to getting the scan to seeing the consultant last week and being told that i need the op. My new motorbike kitty is now my hospital bill kitty