[General] Introduce Yourself!

Johnny Meagher

I've made a few posts on the LTI forum already so I said I'd say hi here. I was diagnosed with Type 1 Diabetes when I was 23, 15 years ago. Usually symtoms, my mother noticed the amount of water I was drinking and she was a nurse before she married and so made the call. The tick-tacking about Type 1/2 made me laugh out loud! thanks There's one thing about Type 1 diabetes that I can never forget, whatever about the complications. I quote one way of describing the way of using insulin in Type 1: "Insulin: For survival". I took a chance once, left my insulin in the library, said I'd get it tomorrow, never again! I'm lucky I woke up the following morning at all. For anyone out there who hasn't taken that chance yet, DON'T!!!!! Sorry for any new diabetics here, maybe my scare was extreme, I've never had a bad problem with hypos (low blood sugar) for example.

Ginny

Hi all.
Mine doesn't really have a name as such, and is not a great thing to talk about.
Had pains in my right hand side for years, put down to appendix or illieosacral valve problems for years by GPs, eventually problems got worse and worse and I piled on 4 stone in just over a year.
Finally got to see a specialist last year and was sent in for a round of laps, colons, endscos and biopsies taken.
I have a severe hitius hernia, a seriously irritated stomach, colon and bowel, plus my bowel does not work properly and seems never to have done so, between my stomach and my bowel they just aren't digesting things or moving them along at all.
Daily I'm on 2 different types of meds plus a lovely salty sachet of stuff, there's no cure apart from a bowel transpant and they don't happen, so it's a maintance thing.
Problem is it gets worse with stress, and it's all a vicious cycle.
It's not soemthing I can talk about with my friends, they just don't understand it, plus the weight issue is a huge problem for me, as being sick makes me sluggish anyway and with putting on weight makes me feel even more down.
I've slowly come around to the fact i'll never be normal, I don't have a bad lot really but it can be draining, it affects what I eat, what I drink how I sleep, where and how I work.
Looking at other people on here with more serious illnesses I know i have it good, but it's still a major problem.

LegacyUser

Hi, I am posting this with out registering.

My son age 15 was having problems.I took him and demanded an MRI, I just knew something wasn't right.

To cut a long story short.His MRI came back showing spots, I was told not to worry about them and go away.The nurologist was very hard to deal with and I felt like Ihad munchausen by proxy.Anyway I decided to ask for more information and she decided to do another MRI.I have meet with the Radiologist since and we now have a bigger picture.
He is 15, he had very very poor memory.His gets very bad pains in his neck, and limbs.He cant sleep to well. He had what looked like a seizure although his EEG was clear.His MRI came back with

"There are, as you saw, several - 6 or 7- small white spots in what we call the white matter of the brain. One cannot say for certain what these are caused by. One might consider Multiple sclerosis especially because the spots are in the white matter, are more than 4 in number and less than a centimeter each in diameter. The characteristics of the spots on the various scan images also fit this pattern. However against Multiple Sclerosis is that most of the spots are located away from rather than close to the fluid spaces (ventricles) of the brain, none are in the corpus callosum, the main fibre bundle joining the two halves of the brain and the spots have not got smaller in the interval between the two scans. Most importantly however against the diagnosis of multiple sclerosis is that according to Dr **** referral letter, there is nothing in **** overall assessment to suggest the diagnosis of multiple sclerosis.
Other possible explanations for finding many spots like these include prior very significant head injury (hospital admission, ICU etc) or vasculitis - inflammation of vessel walls that could narrow or block vessels in the brain and cause multiple minor stroke like events. I believe neither of these fit with **** story either. Often, when all the assessments are done, no explanation is found for these sorts of spots. It remains unlikely that would account for his problems overall.

I honesty don't think the neurologist listened t me when I said , they is something wrong.Last Thursday he ....had an accident.A toilet one he had no idea.He would kill me if he knew I was posting this, hence why its no ID.my biggest concern is to do nothing, this will not help him.To push for more test/info, this ? will it help him?He also has ADHD and Asthma and well as so many posts where about Diabetes, I think I will mention it.He is always up during the night getting bottles of water.In the past he was tested but it came back negitive.He has had a hernia, and a STING, a small valve replaced in his Kidneys.He had meningitis when he was 8.Viral.Thank God.
Will I stop now ....sorry.I just think I need someone to say to me to stop worrying.But I know I cant until I get a second opinion,I am waiting an appointment with a MS doctor. BYW hes to young for Beaumont and the mater.I am trying to get him seen by Dr in St Vincents.Bit on his birth, he was 3 weeks early and was born traumatically, as a result of HELLP.one for the Docs.

thanks all.*****

tbh

thanks for sharing guys. Feel free to post whenever ye like, for a rant or whatever. All I can say is, we all have our own "normal", and when you're dealing with the problems you are dealing with, it affects us all the same way. Good luck to both of you, fingers crossed things pick up soon. Mum, if you'd like to open a seperate account to post here, that's fine.

Fajitas!

GinnyJo wrote: »

Problem is it gets worse with stress, and it's all a vicious cycle.
It's not soemthing I can talk about with my friends, they just don't understand it, plus the weight issue is a huge problem for me, as being sick makes me sluggish anyway and with putting on weight makes me feel even more down.

Stress is a balls alright, it's one thing that sets off my UC, and something I have to deal with every day in my work, both college and professional. You just have to learn how to relax, and when to relax.

I've never really told my friends the full story behind UC, one or two looked it up online alright, but noone really cares - that kind of suited me - I don't want everyone to know.

Ginny

Fajitas, looked into UC and I feel your pain, obviously not as bad though..:D
I pushed and pushed for a diganosis and finally got "You have severe IBS-C verging on IBD with a hernia thrown in for good measure"
Stress is a killer, and right no my life is extremely stressful, new home and all that plus noone for support so its though, and I end up getting stressed about being stressed..:D

fozzle

Well having posted a few times I should really introduce myself

Hi all, I'm fozzle *waves* I was diagnosed with sporadic hemiplegic migraine (with photophobia) about ten days before my leaving cert, 7 years ago. I'd been getting periods of severe intense migraines with vomiting for about 2 years, and also periods of vertigo. It got to the stage where I could get an attack of vertigo without the "headache" and loose conciousness completely - I was collapsing almost every day. Was sent to hospital for epilepsy testing and got out a week later with a big pile of painkillers and instructions to try identify my triggers myself, as it can be next to impossible for a doctor to do it aparantly.

Nowadays I can control it, I know a couple of days in advance if I'm in for a bout, so I can usually take measures to avoid it. It used be scary though - after collapsing on the street in Waterford I was no longer allowed be by myself. It's a terrifying thing to be 18 years old and to wake up paralysed on the pavement, and watch the feet of pedestrians pass you by.

I also suffer from un-convincingly diagnosed joint pains and stiffness. Going to hopefully go to a new rheumatologist this year, to try find a way to cure/control it.

Also, starting this Thrsday, I'm venturing in to the murky world of my mental health I was offered medication for depression in school but I refused. Recent events, however, have brought me around to the idea that maybe I'm not controlling it as well as I thought, so I'm hopefully going to get help.

Anyway, hi to all here - I hope everyone is having a good day (by whatever measure of "good" you use.

Haro84

hi folks,

im 23, i've got trichotillomania, Trich for short. Anyone else have this problem, be great to know im not alone ....

ChewChew

Hi guys,

Sorry for bumping this thread. I noticed this forum earlier today and thought I'd add my little bit, if you all dont mind.

Well my name is Tracey and I am 25 yo female and was diagnosed with hypothyroidism when I was 21. Had the usual symptoms, Weight gain, tiredness etc. I gained a few stone even though I was'nt over eating. I was constantly tired. So I went to see my GP. What made me go was the fact that I came home from work one friday, had my dinner, went to bed and did'nt get up out of bed untill I had to go to work on monday morning. That really frightened me. looking back now I think the year I had in 2005 really helped trigger it all off with the stress of losing my Dad and a few other little issues.

I've since been under an endocrinologist and am on 150mg Eltroxin per day and have been told I will be on them for the rest of my life and will need to get my bloods checked every 6 months for the forseeable future and then move me to yearly checks but thats a good bit down the road as I am still being investigated.

I have since had more diagnosis and issue's with this. I was told I also have PCOS. not very nice but I'm dealing with that. I also suffer something terrible with my joints, they are constantly aching and stiff so physio is a must for me and stress really makes it worse. I also suffer with my teeth and am under a myofacial pain specialist and wear a splint at night time and go for facial physio too. I dont have goitre but I do suffer from throat tightening from stomach acid, so I regularly get scoped and go on nexium to kill the acid from my stomach. My throat gets so tight that I cant swallow so need an ogd. I've also had colonoscopies (god damm picolax-lol:D)

all in all, My TFT's seem to be balanced but my energy levels have improved very little and my weight is still the same.

Having read some of your stories, I know I am very lucky to be dealing with these minor issues. Everyone here is very brave and hope you are all keeping stronge.

I am just grateful that I wake up every morning!!

Sorry for ranting. It's so good to get all this out of my system. It's not exactly something you can just talk to friends about, and I'm sure my family are fed up listening to me go on and on. :rolleyes:

taram

Yay for bumps, I'll throw my story in too!

Recently diagnosed with PCOS with bad insulin resistance. Have had lots of problems with bad periods, severe acne and nausea over the last 4 years, finally got it pinned down and am being seen by an endocrinologist. So far so good, so amazed that the first week of glucophage pretty much changed my entire life, had energy, wasn't thirsty/hungry all the time, could remember things. A lot of my family have type 2 diabetes so trying to get my insulin/triglycerides to normal before any serious damage is done.

Also suffer from really bad dry mouth, GP/dentist isn't sure why

bionic.laura

I lurk here but thought I should make my first post. I'm a 29 year old with a pacemaker. I got it 4 fours years ago when I was 25. I have bradycardia (slow heart rate, 35bpm at some points) and heart block. The pacemaker made me feel so much better, it was strange being below par all those years and not knowing it.
All was well until last year when the lead on my pacemaker broke and was replaced. Unfortunately the new pacemaker leads got infected which lead to a few more surgeries, antibiotics and two months in hospital. I also got anaphylactic shock from the antibiotics.
Anyway I'm mostly better now apart from having something like exercise induced asthma which the doctors can't explain. If anyone on here has some heart related disorders I'd be happy to chat.

Bionic Laura

mike65

+1 for your user name Laura!

taram welcome, you know I'm wondering if we shouldn't see if boards could be the (un)official forum for the Diabetes Federation of Ireland thier website doesn't have one and we are the market leader.

Mike.

ChewChew

mike65 wrote: »

taram welcome, you know I'm wondering if we shouldn't see if boards could be the (un)official forum for the Diabetes Federation of Ireland thier website doesn't have one and we are the market leader.

Mike.

Should or should'nt?? :pac:

mike65

Doh! Should

Mike.

ChewChew

mike65 wrote: »

Doh! Should

Mike.

Thought that. anyways I also agree with you. It's something to be looked into.