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Pilonidal sinus
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I'm a little sickened the more I think of what I was told at my last consultants appt and from what I've been reading here. After my initial operation I endured a year of packing which had a detremential effect on my personal life, studies, work etc. Due to the constant failure to heal and some personal clashes I changed consultant to the one I visited last. Having seen my pilonidal he says it is, if one were to scale it from one to ten, a two at best and that had he done the initial operation he would have cut and stitched, no packing necessary.
My advice to anyone awaiting an appointment or needing one in the future is do NOT be afraid to seek a second opinion. That scalpel jockey that sliced me the first time, now that I think of it, didn't give two s**ts about my personal life and the consequences I would suffer and just took the "easy" route. There seems to still be a certain vagueness as to the cause and treatment that leads to conflicting opinions in the surgical world and for this reason I'd strongly suggest looking at all your options.
Sorry to hear about your experience, and I totally agree about investigating all of your options and getting second opinions etc.
However, I had mine operated on four times, by the same surgeon, who is renowned in his field and the best I could have had. He didn't do hit and miss hash jobs by any means and tried everything he could, going from the more benign treatments to the more severe (I was left with an open wound for six months which, when it did finally close, opened up at the other end within 24 hours). The problem is that this condition can be treated in a myriad of ways, and there are so many options open to any given surgeon when approaching this.
I was told that I had way more chance of getting rid of it if I had it left open after surgery. My first two operations, during which it was stitched, left me with a very quick recurrance. The third operation, in which it was left open, took a lot more healing time, painful baths and dressings and incapacitations, and didn't work either.
My final operation consisted of me being stitched up layer by layer inside once it had been excised, and I'm glad to say that worked for me.
I guess what I'm trying to say is that it's a hit and miss thing and getting the first attempt at healing it wrong doesn't necessarily mean it's the surgeon's fault. I knew people who had two or three ops with this - I knew of people who had it cleared after a tiny incision to drain it - this thread shows the multiplicity of ways it can be healed.
I'm often shocked though at the amount of GPs - considering how common it is - who don't seem to know much about advising on the next route or even diagnosing these problems. I had a GP tell me mine was a blister and try to squeeze it once
She caused untold pain and absolutely no good whatsoever. 0 -
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Was at Hospital Last week to find out when i was having my operation, they told me that they weren't doing the operation that if i lost weight that the sinus would reverse it's self, when i got home i was thinking to myself, how can it reverse it's self if it's underneath the skin already because i can feel the lumps underneath the skin on where i had my last operation and if im still having a lot of pain with it as well.
So i went to a doctor in the health clinic because my normal doctor wasn't on duty, I told him what the hospital said and he couldn't understand just as much as i couldn't because he could feel and see where the lumps were underneath the skin and that the skin was very sort and a certain area, so he gave me tablets to try them for a week for pain and to take down the swelling.
I went home that day and took my first set of tablets, By that night i had another Sinus on the outside of my back that had come up through the skin and two days following it burst.
I went to my own local doctor after the week of the tablets and explained what the hospital said and that the other doctor gave me tablets for pain in till i could see him (my doctor)
My Doctor said he wanted to refer me to a different hospital, but i said i didn't want to be referred to a different hospital i just wanted to see the Doctor that operated on me the first time three years ago when i was Fifteen so he said he would write a letter to him so i could see him about my back, My own doctor agreed with me that the lump's in my back weren't going to dis sapper out of my back if i lost weight that they have grown in my back now and that they should be operated on or they will just keep coming up and Bursting.
The last time i had a lump i didn't want an operation and didn't tell family or friends for six months, Doctors told me that i was lucky that i could have gave myself blood poisoning, now when the bloody lumps, sinus what ever you want to call them are back and I'm trying to sort them out the doctors tell me they aren't doing the operation!!! :mad: Maybe i would have just been better saying nothing and sticking the pain out, I failed my college course because of all the time i missed out with my back trying to get it sorted and all the hospital appointments and for what an operation they aren't going to give me now :mad::mad::mad: SICK OF IT!!!!0 -
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Just wondering has any females had this? not at the rear the other side currently have had 2 operations and now i'm sitting in work doubled over with the pain hoping it will go away it's so emabbasing as i'm 26 year old girl feel so embarrassed to talk to anyone about it 0
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I was gonna post here for a long time, but wasn't sure, and was gonna go Unreg to post but meh, I'll just post as who I am anyway!
I hate this poxy Pilonidal Sinus. Had my first OP in Feb 09, and it was just awful. The wound got infected twice, and I couldn't walk properly for like 3 weeks. Missed so much school, and in 6th year aswell :eek:
Anyway, one year on, and its back. Had my appointment with the consultant last week, and he'll be doing a different type of Op on it this time (it's a different consultant aswell). Hack of all of it tbh.
Anyone else find it very difficult doing certain exercises with this disease/illness/whatever-its-called?
Also, after this, if I get laser hair removal, will the hair never come back down there?0 -
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Just wondering has any females had this? not at the rear the other side currently have had 2 operations and now i'm sitting in work doubled over with the pain hoping it will go away it's so emabbasing as i'm 26 year old girl feel so embarrassed to talk to anyone about it
I have heard of it being there yes, from doing research on the internet about it 3 years ago when my daughter first got it, sorry I have no links just now, don't be embarrassed though, it's a common problem to so many, it's better to get help than to keep suffering.antomorro-sei wrote: »I was gonna post here for a long time, but wasn't sure, and was gonna go Unreg to post but meh, I'll just post as who I am anyway!
I hate this poxy Pilonidal Sinus. Had my first OP in Feb 09, and it was just awful. The wound got infected twice, and I couldn't walk properly for like 3 weeks. Missed so much school, and in 6th year aswell :eek:
Anyway, one year on, and its back. Had my appointment with the consultant last week, and he'll be doing a different type of Op on it this time (it's a different consultant aswell). Hack of all of it tbh.
Anyone else find it very difficult doing certain exercises with this disease/illness/whatever-its-called?
Also, after this, if I get laser hair removal, will the hair never come back down there?
Doing research I was told that:
For people that have PCOS we can treat them but it will only be
maintaining the area the treatment will not be permanent. .
There are different types of laser machines used, so do research on them first and see which salons use which.
You will find some on the site below, I don't know if there are more, there could be indeed. I hope this helps.
http://www.laserhairremovalreview.com/hellokitty10 wrote: »Im a 30 yyr old female and just had the op 2 days ago..was in and out in 1 day..nurse coming up to the house everyday to change dressing, she said its the worst she has seen ..booo..its just under 2 inches deep so by reading all your posts i can expect to be getting this thing dressed for a long long time unfortunately..have to say the dressings arent as bad as i expected, nurse said its cause the nerves are gone? and thats why its not as painful but when it starts to close it will get more painful..im bored, depressed feel sick and in pain and cant wait for this bloody thing to go away and praying that its the end of it..:mad:
Keep your spirits up hellokitty, I hope your recovery goes well.0 -
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oh god babypanda how aful for them to say that to you..its obviously a recurring problem u poor thing..well i have to say today i feel more myself, its a week tomorrow since the op and if i feel the same 2moro ill be quiet impressed with the way its going,..
goldenquick has ur daughter not had the operation, ? well if not and if shes scared tell her dont be, NOTHING will be as bad as the flareups, even this past week, doesnt compare to the bad flare ups..i left mine too long and have a 13 month old and thats why ive found the last week so hard but if she has u then thats half the battle..a good carer:Da very good female friend of mine had the op too and has had no probs since, fingers crossed im the same
x x x0 -
Yeah i think it is going to keep recurring until i get the operation. I have to say though by far this lump has been the worst. I was at doctors today and am on more tablets for a week then i have to go see doctor again. It's good that your feeling more yourself now. i know my self after my operation every little progress i made it made me feel a lot better.
I hope you feel better day by day and your recovery go's quick
And about goldenquick hehe i am her daughter lol i was scared at the start about having another operation but i want one now to get rid of this once and for all and yes the flare ups are just the worst! And your right having my mum is the best thing she's look after me from day one since a of this started and she really doesn't understand how much it means to me. I really hope u have a good run and keep getting better day by day. x x x 0 -
ohhh ur mum hehehe
didnt expect u to say that!!
Well ur a pro then at this stage:mad:, i dont understand their reasoning for saying if you loose weight it will reverse, to me that just sounds like nonsence..how can it reverse itself, loosing weight wont make it disapear...would you not consider going to different hospital then?
did u try what reginald P DuM suggested with the shot glass& salt??, im taking note of that advise cause more than likely this will come back to haunt me..(praying it wnt tho)
look after urself, good luck0 -
Hehe yeah she's my mum.
I no i couldn't understand it either and neither could my doctor. but my doctor wrote to the Doctor that done my operation the first time so we are waiting to hear back from him and hopefully get this sorted..
The glass of water and salt helped abit, it helped my lump to burst on the outside and revealed me of a little pain so that was good. They say that when you get the packing operation done that it is most likely you wont get it back again.
I will look after myself and you to 0 -
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Yep I'm her Mum lol & we only found out recently that we were both posting on this forum lol.
It's great to have this forum to post to like minded people and hear their stories. When telling anyone about a pilonidal sinus, they find it hard to grasp what it is and the suffering & life interruption which ensues because of it. If you explain it is an ingrown hair people kind of shrug it off as if saying, 'well it can't be that painful'. If only they knew.
Kitty, it's great to hear you are doing so well and continue to do so, it must be so hard with a toddler as they need so much attention. If we could help you we would, if there is anything you need let us know and anything within our power we will do.
dimejinky9, I hope the laser goes well for you and that this problem does not recur. My cousin had one and it didn't recur either so best of luck with it. My nephew also had one and it didn't come back so hopefully your's will not come back either.
sad, I do hope you have seen someone, don't suffer pain needlessly please.
Reginald did you use the salt treatment each day or a number of times a day, it certainly did the trick in that it burst one cyst the other day, thanks for that tip.
I'm also going to ask about the hoover dressings if panda does have another operation, they sound as if they are very good. If the hospital does not use them, I'll source them myself.0 -
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Reginald did you use the salt treatment each day or a number of times a day, it certainly did the trick in that it burst one cyst the other day, thanks for that tip.
What I do is anytime I feel a twinge I go for the salt. Usually once is enough to treat it, held in position for about a minute. I can actually feel the salt attacking it. Following day I am nearly clear of it again for another few months. Obviously it works better for me than for others but I swear by it. As I have stated here before I now can control it rather than vice versa. I only wish I had discovered it earlier, it'd have saved me the rigmarole of docs, hospitals and pain. Better late than never I guess. Best of luck with it.0
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