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Umbilical Cord Blood Storage

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  • 20-03-2008 11:30pm
    #1
    natsuko
    Registered Users Posts: 129 ✭✭


    Just doing some research into this... im nearing my due date so im not sure if il have enough time to organise it.

    Wanted to know if anyone has done this or knows anyone that has.

    Found only one company in ireland that provide the service (medicare.ie)... they dont actually store it in this country which is the downside but theyre private and they sound promising...

    Would love to hear peoples general opinions on the subject aswel...


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    #2
    silja
    Registered Users Posts: 2,921 ✭✭✭silja


    Not sure about around the country, but if you are giving birth in a hospital in Dublin, they don't do the procedure, other than the private Mount Carmel.


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    #3
    Shelli
    Closed Accounts Posts: 919 ✭✭✭Shelli


    You have to obtain a special license, and to get it you have to have a legitimate medical reason or family history. They are next or near impossible to get afaik.

    I really wanted this done as there is a genetic metabolic disorder in my partners family. But the odds of my son having the disorder were "too high to even bother applying for the license" or so I was told.

    If you do manage to get the license, then you can get medicare to store the blood.

    It's a joke, people should be allowed to do this if they wish, it's no skin of the HSE's nose, it wouldn't even cost them anything!!

    It really makes my blood boil!


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    #4
    natsuko
    Registered Users Posts: 129 ✭✭natsuko


    Just ordered our collection kit for the cord blood... :) so happy!

    Contacted the specialist im under in the maternity and he recommended a company that he had info on. We got a call from a different company who just bought out the one the doctor recommended. Its cheaper as wel which is a plus!

    No mention of any license or anything needed tho??!! :confused:

    Just needs to be collected by the midwife after delivery following the instructions on the kit.

    www.cryo-save.com is the website of the company if any one is looking...


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    #5
    Shelli
    Closed Accounts Posts: 919 ✭✭✭Shelli


    Can I ask what hospital your attending?
    I would be very interested in this for the future.

    I was semi-private in Holles St, and while I found the care and attention amazing and would definately return to them in the future, they would not even entertain the idea of it.


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    #6
    High&Low
    Closed Accounts Posts: 323 ✭✭High&Low


    There was a letter sent out to all expecting mothers attending Holles Street, the Coombe or the Rotunda from the Masters of the three hospitals in the last year stating that they were not providing this service ...


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    #7
    ErnieBert
    Registered Users Posts: 1,155 ✭✭✭ErnieBert


    Check out www.medicare.ie

    We had it done for our first child in 2005 but due to red tape (really long story), the hospital (University Hospital Galway) couldn't do it for our 2nd child last year.


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    #8
    gowger
    Closed Accounts Posts: 30 ✭gowger


    http://www.imn.ie/index.php/current-issue/news/1615-parents-urged-to-sue-hospitals-over-cord-blood


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    #9
    Dades
    Moderators, Society & Culture Moderators Posts: 25,558 Mod ✭✭✭✭Dades


    We saw the option (in Mount Carmel) and didn't go with it.

    That said, I'm pretty sure I saw our consultant collecting what I can only figure to be cord blood via a syringe right after our daughter popped out.

    Never bothered me as the sample might help someone if used in research, but it seems ridiculous that other hospitals will bar this procedure.


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    #10
    gowger
    Closed Accounts Posts: 30 ✭gowger


    I started a new thread here: http://boards.ie/vbulletin/showthread.php?p=61930959&posted=1#post61930959


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    #11
    kizzyr
    Closed Accounts Posts: 1,410 ✭✭✭kizzyr


    Dades wrote: »
    We saw the option (in Mount Carmel) and didn't go with it.

    That said, I'm pretty sure I saw our consultant collecting what I can only figure to be cord blood via a syringe right after our daughter popped out.

    Never bothered me as the sample might help someone if used in research,     but it seems ridiculous that other hospitals will bar this procedure.

    They couldn't take any samples without your consent and if they did any and all research would be invalidated witout proper consent having been taken.


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    #12
    Dades
    Moderators, Society & Culture Moderators Posts: 25,558 Mod ✭✭✭✭Dades


    kizzyr wrote: »
    They couldn't take any samples without your consent and if they did any and all research would be invalidated witout proper consent having been taken.
    Just saying what I saw. Do researchers have to account for every blood cell they use in the course of years of research? Seems kinda difficult to police.

    Like I said, it wouldn't bother me if they use it anyway.


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    #13
    Spootie
    Closed Accounts Posts: 49 ✭Spootie


    Cord blood samples are taken as routine in alot of Maternity hospitals to check Haemoglobin and/or Biliruben to make sure the infant is not developing jaundice.

    This is not the same as Cord Stem Cell harvesting, which comes under the same guidlines as any tissue havesting such as blood donations, tissue donations etc. The process of harvesting is not as straightforeward as taking a sample: it must be tested, processed and stored correctly, this would involve a considerable investment from the hospitals.


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    #14
    kizzyr
    Closed Accounts Posts: 1,410 ✭✭✭kizzyr


    Dades wrote: »
    Just saying what I saw. Do researchers have to account for every blood cell they use in the course of years of research? Seems kinda difficult to police.

    Like I said, it wouldn't bother me if they use it anyway.

    Research monitoring, biobanking, sample taking etc and the ethics of it is what I do for a living. Every singly cell, sample, fluid, etc has to be accounted for and the study it is being used for ethically approved. If it isn't then no reputable journal will publish it so making it worthless for the researcher.
    If you saw it being done then somewhere on some of your forms upon admittance to the hospital will have covered this consent issue.


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    #15
    GJK
    Closed Accounts Posts: 3 ✭GJK


    We had this done in the Rotunda in December. We were told there are 3 consultants there who are willing to do it and have had the necessary training. Ours by chance was one of them. We did it through medicare.ie.


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    #16
    m'lady
    Registered Users Posts: 1,859 ✭✭✭m'lady


    GJK wrote: »
    We had this done in the Rotunda in December. We were told there are 3 consultants there who are willing to do it and have had the necessary training. Ours by chance was one of them. We did it through medicare.ie.


    Hi GJK... can I ask roughly how much did this procedure cost?


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    #17
    GJK
    Closed Accounts Posts: 3 ✭GJK


    From memory it cost around €3,000, including 20 years storage. We were able to claim about €1,000 of that back from Vivas though.


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