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Psoriasis
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Thanks Amazinfun, maybe I should get on to my GP again... I don't know, maybe I'm just still on a waiting list, my GP is in Clonmel, and I think there are hardly any specialists around really, they just visit for a clinic once a month or something.
I simply can't afford to go private.
In April I had scans on my heart for a heart murmur (since birth) and some possibly heart related symptoms, still no sign of the results, but at least that will establish whether my heart is healthy.
I think very few GPs would consider PSa an urgent matter... In fact, I mentioned the fingers and knees aaaages ago to another GP in the same surgery, who was an older man, and showed me his crooked fingers with a smirk. I said to him : "so am I to wait until I'm old enough to have crooked fingers for something to be done ?" and he more or less replied yes, that there was no actual treatment anyway, except to relieve soreness (injections), and then to fix the damage once it's done (surgical).
Needless to say I never went back to the old fellow, he retired since.
I have a young GP who's pretty good now, but he did advise me to visit him when I'm inflamed, rather than when I'm good, so he'll have a better idea of what's going on.
I should have mentioned maybe that I'm in my 40s, have had skin psoriasis for 22 years or so. The PSa symptoms started maybe 5/6 years ago. The heels probably a year or two before that, but I don't really know if that was PSa.
Knee, joint replacements, crooked fingers, crooked joints ... they're not new, and as far as I know, there is still no way to avoid these happening. Delay the damage a bit maybe. I get myself checked out regularly, so diabetes etc... wouldn't go unnoticed if they happened.
I read the Inspire site once in a while, but tbh, a lot of the posts on there are downright alarmist and people just want you to read their blog/follow their diet/buy a miracle product they used.
I am grateful for your post, I don't mean to be rude either. Maybe I'm older than you and have a different outlook.
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mocha please! wrote: »Has anyone tried Thiamine for psoriasis?
It's one I've never tried myself because I've only occasionally heard it mentioned, and no doctor has ever suggested it for me.
But, I'm currently on a high dose of Thiamine for a different condition. It involved three consecutive days of bum injections, and since then I've been taking three tablets daily (not sure of dosage, but I can find out.)
My hair is growing so much faster. My nails are growing faster (if I put on nail varnish, you can see the "new" nail growing out at the bottom within a day or two.) And, most importantly, my psoriasis is really clearing up. The difference is enormous.
This is all within two weeks. So I think it could really be worth a try for some of you, rather than most of the other methods where it takes months to see any results. And there are no potential side effects that I'm aware of.
Just to say I'm still noticing very positive improvement - despite the fact I'm under a lot of stress, which is usually a huge trigger for me. Definitely think it's worth trying! As I said, it's not just my skin - it's my hair and nails too (not always a good thing - my roots are terrible
and I'm not arsed getting my hair done when I'm stuck in here for the forseeable future!) Even where I have pitting on one of my nails from the psoriasis, you can markedly see when it's grown out and there's clear nail growing underneath! Worth a try.
Although, as with anything else regarding psoriasis, it's always so hard - when it does improve - to attribute it to any one factor. I just can't think of any other big changes in my diet or anything else that would have improved it though.0 -
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Any side effects with it?
None so far anyway. Have to be careful that I don't get sick as its an immunosuppressant and it means that I could catch things easier. For instance, I HAVE to get the flu injection. No if buts or maybes.
There are heaps of other things that could happen but for the moment I'm happy out 0 -
It's unreal. My legs have cleared up completely. There is the odd patch here and there but I'm blown away by it. No more creams and ointments or any of that.
144€ a month though. And that's on the drug payment scheme.
I'm on both Humira and Methotrexate (psoriatic arthritis). Combined, they're great for my psoriasis. I've been on Mtx on its own or with a different medication (Embrel) and it was also good but I think my skin is better now than it has been in years, apart from some small breakouts every now and again.
At the moment the bad psoriasis I had on my arms for about 6 months is pretty much all cleared up, although if you look closely you can still see some redness from where it was (does this disappear??). I still get small patches on my forehead and behind my ears every so often.
The €144 a month is tough, I've been paying it for about 5/6 years now (although when I started the drug payment scheme I think it was only €80/90 a month ) There have been some months where I haven't been able to afford it and I've flared up again badly, both with the arthritis and psoriasis. 0 -
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