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Psoriasis
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there seems to be nowhere near the risk of the UVB, which could give bad sunburn to a new spot in just 60seconds. This one has a built in 30min timer anway, and turns itself off.
I was reading studies, it seemed the acne wavelength of light was effective but the 453nm was more effective. There was talk of the acne one been possibly damaging if treated for too long a time and the 453nm was less damaging. I am not sure of what the damage is.
They tell you what intensity of light should be used too.
I have seen 3W LEDs online of htat wavelength, this is 1/5th the power of the phillips. These can be powered with a old phone charger so I will just but 1 and see if it works for me. The philips has a higher amount of LEDs widely spread out.
The LEDs are cheap, it would be nice to have them all wired separately and be able to strap them onto all your patches and treat all at once. This would require a special power supply etc.
Was there an episode of MacGyver where he treated psoriasis?
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I dintt know there was a clinic in Cork. I have VHI cover but in Vincents theres no divide when it comes to phototherapy and I think I was waiting 8 or 9 weeks between seeing the consultant and starting treatment
Turns out GLO health covers the treatment in full anyway so I am moving onto my wifes corporate policy and cancelling my works corporate one
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Zombienosh wrote: »Are bleach baths recommend for psoriasis? I know they are for eczema and helping keep the bacteria count down. I use them when I have flare ups and I think they really help, especially if there is any broken skin or risk of infection. I use Milton in the bath combined with emulsifying ointment.
Do you still do bleach baths? or anybody else? (bleach being sodium hypochlorite)
I have no bath so was wondering about using a slightly stronger solution for a shorter time just before having a shower. I was reading how it certainly helped eczema and some others found it benefited psoriasis.
Most say half a cup of bleach to a bath of water. These would be US sites and bleach there is typically 5-6%. Some bleach here is less, tesco value thin bleach is only 1.5%, it should state it on the bottle. Milton is also weaker, their website currently says 2%, other sources said 1%, it should be on the bottle.
Most sites are saying the bleach bath should be 0.005%. This would mean 100ml of 5% bleach diluted up to 100L of water.
(100ml up to 1L would be 0.5%, 100ml diluted up to 10L would be 0.05%.)
On wikipedia it saysTreatment of gingivitis
Diluted sodium hypochlorite at a rate of 2000–1 (0.05% concentration) may represent an efficacious, safe and affordable antimicrobial agent in the prevention and treatment of periodontal disease
So this is 10 times stronger than the bleach bath and intended as a mouth rinse which is guess is momentarily so this is possibly the concentration I could use before a shower. Some sites say up to 0.25% as a mouthwash for 45-60seconds. One study was 0.25% for 5mins.
Another study was comparing hand sanitizing solutions and they used 0.05% solutions, this study was concerned about dermatitis from hand santitizers. So I think the 0.05% is the one to try if quickly washing it off after. I would only use thin bleach or milton, not stuff with thickeners etc added.
EDIT:
found sites talking of "Dakin's solution", which is named after a chemist and for disinfecting wounds. It is 0.5% or they have "Dakin's half" which is 0.25%. It also contains sodium bicarbonate (baking soda)
Some commercial ones say to get a wound and apply a dressing and the solution is used to moisten the dressing which stays on all day. I would still start out with a weaker one and see if there is any bad reaction.
http://www.dakins.net/fullstrength.htmlCentury Pharmaceuticals exists to provide solutions
to your acute and chronic wound care problems, by offering Dakin's Full Strength® (0.500%).
Directions: Pour on or apply to affected area. For wound management, use as an irrigant, cleanser, or the wetting agent for a wet-to-moist dressing. Apply once daily for lightly to moderately exudative wounds. Apply twice daily for heavily exudative or highly contaminated wounds. Protect surrounding intact skin with a moisture barrier ointment or skin sealant as needed.0 -
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Does anyone know how much Phototherapy in a private clinic costs? My ****e health insurance doesnt cover it...not sure do any... and before I waste my time going to a consultant dermo who will likely recommend phototherapy I want to know if I can afford it privately or not.My advice is go privately to a consultant in a public hospital. Then you get referred to the public system for treatment. Im not aware of any private hospitals offering phototherapy anyway
Blackrock clinic do phototherapy BUT there use a loophole ... they do it through the physiotherapy clinic there. I'm not sure how they get away with it, but that's how I got it done last time I went there (a couple of years back) ... my VHI covered twelve physiotherapy sessions a year, so it covered the first four weeks, and I think it cost €25 per session after that (I only did three more sessions, so not so bad.) So I just sent the physiotherapy receipts for the twelve sessions to VHI, got the money back no questions asked. Worth looking into!
(Though I'm not sure if they still do it. 0 -
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No Dovobet is only on prescription.
I used it for 11 years, the ointment wasn't messy at all. You just need to wash your hands after.
It does work but the effects are short lived, it will return within days of stopping applying the ointment.
Not if there's Psoriasis on your hands.
I've been using Dovobet/Dovonex for yonks at this stage. The ointment is messy, but I always felt it was more effective than cream. I tried the gel and it didn't feel as effective either.
To be honest, I'm getting pissed off with the meds at this stage. Have an appointment with dermatologist at the end of the month to talk about it all.0 -
Lady is a tramp wrote: »No and a lot of GPs are very reluctant to prescribe it, as it does thin the skin with prolonged use, it should never be used for more than a couple of months. It does work though. It's very expensive!
I used to use Diprosalic Ointment which was by far the most effective thing I've ever used for my psoriasis but it seems like they discontinued it (or at least stopped selling it in Ireland) a few years ago. My doctor told me it was because of the thinning of the skin. I had been advised to only use it every so often but because it was so effective I used it loads
My psoriasis is generally under control these days (due to medication I'm on for psoriatic arthritis) but I do get the occasional flare-up. Unfortunately I'm having one at the moment on my face
It's on my forehead and a few very small patches elsewhere. I'm using Diprobase, which I find decent enough, and I'm gently exfoliating the areas every second day. 0 -
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IBC can I ask how your psoriatic arthritis started? I've suddenly gotten cracking and pain, very regularly, in two fingers on my left hand following an injury to my wrist. I'm really hoping it's not the start of arthritis. They're not visibly injured and I can move them fine. (I'm with my GP in a few days so will mention it then, just wondering how and where yours started?) 0
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Lady is a tramp wrote: »IBC can I ask how your psoriatic arthritis started? I've suddenly gotten cracking and pain, very regularly, in two fingers on my left hand following an injury to my wrist. I'm really hoping it's not the start of arthritis. They're not visibly injured and I can move them fine. (I'm with my GP in a few days so will mention it then, just wondering how and where yours started?)
The first sign of it was my ring finger on my left hand - I broke it when I was about 12 and it was re-set but as I got older it started going out of shape. I thought it was because it hadn't re-set properly but I didn't think a huge amount of it. It would get stiff and sore at times, but I really didn't pay a huge amount of attention to it. As I got into my early 20s, I started getting pains in my knees. These would range from very slight to nearly debilitating. I went to countless doctors, physios, etc over the years until I was eventually referred to a rheumatologist. They did tests and keyhole surgery in my knees and after that I was diagnosed with psoriatic arthritis (mid-20s). They were able to confirm that I had arthritis in my finger as well. Unfortunately it's my wedding finger and I hate that it's bent out of shape and doesn't straighten properly 0 -
Lady is a tramp wrote: »Phototherapy is what gets best results for most people, but it's just too expensive and not practical for most people.
Ordinary sunbeds are the other option. Cheap, convenient, however we all know the risks of skin cancer.
It's a case of weighing up the benefits against the risks. My own GP, who specialises in dermatology, is grand with me using sunbeds a couple of times a week for a couple of months at a go (once a year, and provided I don't also go on a sun holiday that year.)
I've had the same discussion with other GPs and they feel similar - once you're aware of the risks of sunbeds, and keep it to reasonable exposure, it works and is the best solution for a lot of patients where the psoriasis is widespread.
Agreed, I used to go to Hume Street, amazing results, but I lived on Thomas Street at the time, so not too bad. Now I live in Wexford, soo.....
I spent a bit of time in Japan and never used any creams or ointments. My psoriasis was generally very very quiet. I think it was because I ate a crap load of fish, veg and also spent a lot of time outdoors in the sun.
I should head back I think. 0 -
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