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Psoriasis
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Mountainsandh wrote: »I've had a poor blood test result
My GP got on to say that ESR was 40 and creatinine and other kidney stuff not great, plus another starred result that I can't remember.
Within the last 8 weeks I had an advanced body check and I've had to go back 3 times for bloods as my creatinine levels and one of my kidney functions (I think excreting toxins) were quite low, however I never linked it to psoriasis etc. Had an ultrasound and i'm in with a specialist in the Mater next week. Said that since i'm 27 they have to keep it monitored.0 -
Mountainsandh wrote: »I've had a poor blood test result
My GP got on to say that ESR was 40 and creatinine and other kidney stuff not great, plus another starred result that I can't remember.
I have been a bit stiff alright, feet and knees, and I had a little friction wound on my foot that stayed weeping for longer than normal (longer than if I wasn't on MTX). But nothing awful ! The worst was the ferry back from France, the dog was in a kennel down 4 flights of very steep metal steps, and as I went to visit him lots of times, my knees were sore after the crossing. I didn't think it was like a big flare though, just wear and tear sort of thing.
Now I'm worried that MTX might not be working as well ?
I'm only taking it since... I think January, so I'd be very disappointed if I got accustomed to it that fast.
I'm still getting great benefit from it from my point of view as I'm able to do some gardening, and my hands are miiiiiles better than before, and the back too (provided I don't overdo it!). I haven't had too many weird random flares too, like a shoulder for 2/3 weeks, then a wrist another... Did have a few flares in my feet, but as they haven't responded as well that didn't surprise me.
Where are you hoping to go after this if MTX is causing issues? there's surely other options?
Having kidney issues like that isn't going to be something you can just deal with.:(0 -
Mountainsandh wrote: »I've had a poor blood test result
My GP got on to say that ESR was 40 and creatinine and other kidney stuff not great, plus another starred result that I can't remember.
I have been a bit stiff alright, feet and knees, and I had a little friction wound on my foot that stayed weeping for longer than normal (longer than if I wasn't on MTX). But nothing awful ! The worst was the ferry back from France, the dog was in a kennel down 4 flights of very steep metal steps, and as I went to visit him lots of times, my knees were sore after the crossing. I didn't think it was like a big flare though, just wear and tear sort of thing.
Now I'm worried that MTX might not be working as well ?
I'm only taking it since... I think January, so I'd be very disappointed if I got accustomed to it that fast.
I'm still getting great benefit from it from my point of view as I'm able to do some gardening, and my hands are miiiiiles better than before, and the back too (provided I don't overdo it!). I haven't had too many weird random flares too, like a shoulder for 2/3 weeks, then a wrist another... Did have a few flares in my feet, but as they haven't responded as well that didn't surprise me.
Are you taking MTX by itself? Have you been on biological drugs?0 -
Within the last 8 weeks I had an advanced body check and I've had to go back 3 times for bloods as my creatinine levels and one of my kidney functions (I think excreting toxins) were quite low, however I never linked it to psoriasis etc. Had an ultrasound and i'm in with a specialist in the Mater next week. Said that since i'm 27 they have to keep it monitored.
I don't really know if it's linked to psoriasis ! Apparently several blood tests from years ago showed a bit of kidney impairment, but my GP simply never ever told me. It was only when I blood tested before attending the first rheumy appointment that a nurse mentioned it.
The rheumy reckoned it wasn't bad enough to cause hassle, but it was good to be aware of it.
There is a link between kidney impairment and Pso Arthritis insofar as constant inflammation can affect kidneys over time, but I was never told anything about it since GPs never put 2 and 2 together to suggest psA was the cause of all my joint/ligament problems and back pain over the years.Where are you hoping to go after this if MTX is causing issues? there's surely other options?
Having kidney issues like that isn't going to be something you can just deal with.:(
I don't know
The rheumy did hint before that there are other treatments, even ones that can be taken as a complement to MTX.
I'm due an appointment soon anyway, so I was going to ring them this week and see if I should visit a bit early for another chat.0 -
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Do you mind me asking how MTX worked for your psoriasis? Time to clear, any side effects?
The clearing was more spectacular at the start than now...
It started clearing the skin psoriasis within... maybe 2 weeks ? By 4 weeks there was a very visible improvement, with everyone commenting on it.
Now after several months, I feel the skin pso is creeping back.
I shouldn't complain really, my legs are still completely clear, and lots of little spots I had on lower back, or bits on torso, are gone.
My problem area has always been hands and arms, and although the hands had nearly completely cleared after the 2nd month, and for a good while, now I feel it's subtly increasing.
My elbows had practically cleared, but it's back there now, less than before.
My forearms down to the wrist never fully cleared, and they're still a problem, but lesser than before. (it's under the forearm I get plaques)
Ears... had cleared, that was brilliant, but now back.
I even have a tad in eyebrows at the moment, I put a bit of dovobet and it's only a tiny bit, but I normally don't get much on my face so it's disappointing to get it now, with treatment !
So completely cleared, no, not at this stage anyway. There was a time earlier when I thought that yes, it was going to completely clear, it was so close !
But look again, I think there are adjustements to be made to my weekly dose, because I do feel stiff, have the tiredness and hands, knees, feet pains still.
It's a rollercoaster for sure, still well worth trying for you Eeloe.
As regards side effects, tough day if it's going to come is the day after the dose, for me. Extreme tiredness, and hangover type of headache are the 2 biggest side effects I have experienced. I did have mouthsores at the start.
I thought I was rid of the extreme tiredness and headache, but this really caught up with me unexpectedly this week, for some reason. Next week could be fine !
I'm putting pics up of my hands, always meant to do that, so I can go back and compare if it gets worse, or better.
This is still good, there have been years in the past when they were completely covered, and inflamed. It's not too bad these days, but the sprinkling on the wrist there for example, that had gone initially, and the fingers too. Now it's not inflamed, but it's there.
Nails are good too, toe nails not so good in spite of treatment.0 -
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They do looks reasonably well at the moment, it looks like it’s well on its way to healing.
I’m starting to get a bit anxious about starting, I keep reading about side effects especially for long time use.
Starting to think would I be better off just living with it? 0 -
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They do looks reasonably well at the moment, it looks like it’s well on its way to healing.
I’m starting to get a bit anxious about starting, I keep reading about side effects especially for long time use.
Starting to think would I be better off just living with it?
You know what ? I don't think so now, and that's coming from someone who did nothing about it for 20 + years. I did a U turn in that regard with psoriatic arthritis.
Fair enough if you could be completely sure you're not having any "internal" pso , but I reckon even docs are not paying enough attention to that.
I'm 45 now, it's now that some things are emerging : heart, kidneys, joints... I'll never know how much of that could have been avoided had my body not been inflamed for years at a time.
I got so used to the skin thing, so blasée, but maybe your body is trying to tell you there's abnormal wear going on inside.
I couldn't be bothered with creams and ointments myself, but yeah, trying to curtail internal potential damage, that's important.
edit : my hands : I'm delighted with them ! I can see and feel my "real" skin again, I can see my veins now, and since inflammation is down a lot, most of the time if I make a fist I have normal knuckles ! I remember being pregnant with my second, I had to get a drip in hospital, and the young doctor butchered my hands because it was impossible to find a vein in there, had to go for the arm in the end. Now I could proudly offer my hand : "there you go, veins !"
(I have pretty dark skin as I'm French, but the discoloration is fixing itself gradually on arms etc... just takes a bit longer) 0 -
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Mountainsandh wrote: »You know what ? I don't think so now, and that's coming from someone who did nothing about it for 20 + years. I did a U turn in that regard with psoriatic arthritis.
Fair enough if you could be completely sure you're not having any "internal" pso , but I reckon even docs are not paying enough attention to that.
I'm 45 now, it's now that some things are emerging : heart, kidneys, joints... I'll never know how much of that could have been avoided had my body not been inflamed for years at a time.
I got so used to the skin thing, so blas but maybe your body is trying to tell you there's abnormal wear going on inside.
I couldn't be bothered with creams and ointments myself, but yeah, trying to curtail internal potential damage, that's important.
edit : my hands : I'm delighted with them ! I can see and feel my "real" skin again, I can see my veins now, and since inflammation is down a lot, most of the time if I make a fist I have normal knuckles ! I remember being pregnant with my second, I had to get a drip in hospital, and the young doctor butchered my hands because it was impossible to find a vein in there, had to go for the arm in the end. Now I could proudly offer my hand : "there you go, veins !" (I have pretty dark skin as I'm French, but the discoloration is fixing itself gradually on arms etc... just takes a bit longer)
Yeah I know I have to get it sorted, it’s actually effecting me mentally lately as it’s holding me back from doing certain things.
I’m just worried that the side effects will also stop me from doing things also.
I wish he’d just put me straight on a biologic instead of messing around with MTX.0 -
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