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osteogenesis imperfecta

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  • 10-12-2008 8:44pm
    #1
    NeVeR
    Registered Users Posts: 5,330 ✭✭✭


    Just wondering if there is a Irish site for osteogenesis imperfecta ?

    I've found oif.org but thats more american,


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    #2
    rachc
    Registered Users Posts: 46 ✭rachc


    NeVeR,

    As far as I'm aware there is no Irish site, however there is an english one www.brittlebone.org. Do you have OI yourself? I do.


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    #3
    NeVeR
    Registered Users Posts: 5,330 ✭✭✭NeVeR


    No i dont my G/F does.. She was just looking for some places in Ireland. Thanks for the link


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    #4
    foolsgold
    Closed Accounts Posts: 20 ✭foolsgold


    Hey, I also have OI. The english org is based in Dundee but they have meet ups in Belfast from time to time.... never gone myself


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    #5
    shreksaurus
    Closed Accounts Posts: 201 ✭✭shreksaurus


    Hi op,

    Theres no Irish site for OI. Theres the english site as mentioned above. Theres also a european OI foundation. If you google it I'm sure you'll find it. I've found the best site for information on OI is the american foundation for OI.

    Hope I've been of some help.


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