Undiagnosed circle of hell.

dlofnep

amdublin wrote: »

Well the bikram removes the toxins via both the sweating and the compression and releasing positions (the compression creates a tourniquet effect and the release floods your body with fresh oxygenated blood thus flushing out toxins).

Plus helps you relax.
Win win!

Sure why wouldn't you try it at least?!

I'm comfortable with the program I'm undertaking. Besides, people might think I'm a bit weird if I start breaking with with yoga positions in the middle of the sauna. I'm sure it's helpful, but I'm fine with what I'm doing. But thanks for the suggestion

amdublin

dlofnep wrote: »

I'm comfortable with the program I'm undertaking. Besides, people might think I'm a bit weird if I start breaking with with yoga positions in the middle of the sauna. I'm sure it's helpful, but I'm fine with what I'm doing. But thanks for the suggestion

lol

Oh god I understand you now!!!

No, bikram isn't actually yoga IN the sauna it is "like" yoga in a sauna. Ie. It is a particular type of yoga done in a very hot room. Google it! Check it out! I think you'll like it.

Oh god I was wondering why you were being so dismissive. I must have sounded like a crazy hippy talking about doing yoga in a sauna. So funny!

cltt97

LOL!!!! Hilarious.... made me laugh a lot. Where do you go for your bikram yoga amdublin? Been thinking of trying it for a while now...

amdublin

cltt97 wrote: »

LOL!!!! Hilarious.... made me laugh a lot. Where do you go for your bikram yoga amdublin? Been thinking of trying it for a while now...

I'm still laughing thinking of people watch me do my yoga moves in the sauna

I go to Init in Ringsend. But there are classes in Dublin 15, Fairview, Harolds Cross.

I'd really recommend it!

opinion guy

Hey dlofnep

Hows things going ?
Noticing any changes yet ?

dlofnep

Finished 4th round today - A month on the Cutler protocol now. No changes, but I don't expect to see any until I've introduced ALA. Just lowering the body burden at the moment. Blog is updated also.

comeon

Ive been researching the whole about mercury fillings for a few months now, ive ordered both andy cutler's and dr hal huggins books.
My question to you dlofnep is where do you get the DMSA, you cant get it in Irl right? unless i presume you get a prescription which for obvious reasons wont happen.
So how did you get it? I know you can get it online but id be reticent getting stuff like DMSA and if i do decide to get them removed ill prob have to use less potent detoxifiers like chorella, algin (which comes highly recommended actually) and vit C.
I prob see McCollam around late October if i do go ahead, does he have a long waiting list?

dlofnep

comeon wrote: »

Ive been researching the whole about mercury fillings for a few months now, ive ordered both andy cutler's and dr hal huggins books.
My question to you dlofnep is where do you get the DMSA, you cant get it in Irl right? unless i presume you get a prescription which for obvious reasons wont happen.
So how did you get it? I know you can get it online but id be reticent getting stuff like DMSA and if i do decide to get them removed ill prob have to use less potent detoxifiers like chorella, algin (which comes highly recommended actually) and vit C.
I prob see McCollam around late October if i do go ahead, does he have a long waiting list?

I wouldn't bother with Chlorella as little is really known about it, and you can't manage doses correctly like you can with DMSA/ALA. Based on everything I have read (and I have read alot), it is my view that the Cutler protocol (DMSA / ALA ) is the most functional way to go. I buy my DMSA online - most people source their DMSA online - I don't see any problem in it. If you want the place that I buy it from, PM me - The company sends free empty capsules if you need to divide doses which is pretty cool of them.

He doesn't have a long waiting list. Make sure to take activate charcoal everyday you have a filling replaced. It will help. Bill is very aware of the issue.

With regards to chelation - Do buy Andy Cutler's book, and read it thoroughly. Vitamin C will not help you remove mercury according to Cutler - you need something that will cross the blood-brain barrier. But you will have to take vitamin and mineral supplements every day to assist your body with the burden of the detox. These are my supplements.

If you do go with Cutler's protocol, do NOT take ALA until after 3 months of the fillings being replaced. You need to lower the amount of mercury in your body first before you can detox effectively.

Read my blog ( http://rejectmercury.blogspot.com/ ), it will answer alot of questions. If you're unsure about anything in particular, send me a message.

dlofnep

I know I haven't been posting here much, as I've been venting mostly on my blog - but I wan't to give a quick update.

I finished begin my 8th round of the Cutler protocol tomorrow. I've been reading 'Getting the Mercury' out, by Áine Ní Cheallaigh. She's an Irish woman living in New York who cured herself from mercury poisoning by using the Cutler protocol, and wrote a book about her affair.

Everything she has wrote so far is a hit with me. The gluten & yeast intolerance, the ongoing saga on marginal improvements, followed by setbacks. The bowel issues, the brain fog.. It's like reading a book about my life.

Only about a third of the way through, but it's a compelling read so far. Still haven't added ALA to my doses, and still on 12.5mg of DMSA. I've been up and down like a rollercoaster as of late. I'm guessing I'm going through the 'dump phase'. Tonight I passed out at 9pm for about 2 hours. This happens sometimes, where an overwhelming tiredness comes on me and I have to nap.. Not very often, but when it happens I know it's my body telling me something.

I'm keen to introduce ALA - but I will wait until I finish my 12th round. I want to do this right. I have been hitting the sauna everyday almost, and it really helps me and gives me a few hours where I have a little more clarity than normal. Oh what I'd give to be able to think straight and have a clear mind again.

Keeping hopeful, pushing on!

dlofnep

Disability request was rejected. Got the letter back today. (Which I had submitted back in April - Some efficiency in Ireland, aye?)

It said I did not satisfy the medical conditions for the scheme - of which are that I would be ill for at least a year, and incapable of working. What do I have to be to qualify for it? Shoot myself in both legs, and both arms? They have some cheek. They didn't even interview me. I shall be appealing this.

Mars Bar

Dear lord, that is ridiculous. I say send them a link to this thread and make them read it!

Best of luck with the appeal!

dlofnep

Thanks Fingers crossed. I have my illness benefit certs to keep me going for another while, but I have to consider what will happen after they run out - because I will have no source of income, and no ability to work. (Christ, if I could I would! I hate scraping by..)

amdublin

dlofnep wrote: »

It said I did not satisfy the medical conditions for the scheme - of which are that I would be ill for at least a year, and incapable of working. What do I have to be to qualify for it? Shoot myself in both legs, and both arms? They have some cheek. They didn't even interview me. I shall be appealing this.

Oh jeez

What are you technically qualified as (which you obviously can't work as)?

dlofnep

amdublin wrote: »

Oh jeez

What are you technically qualified as (which you obviously can't work as)?

I have a degree in application development. I've been offered work in jobs that I've wanted to do all of my life, but had to turn them down because the brain fog would just make it far too difficult to concentrate for anything long than half an hour.. That and my immune system is so shook, I would have a sick day from work almost every week.

It's not as if I am trying to con the system. I have never had a free ride in my life. I've worked since I was 15, all the way up to a few months ago where I had to leave my job because I was out too much with my illness.

Splendour

dlofnep wrote: »

Disability request was rejected. Got the letter back today. (Which I had submitted back in April - Some efficiency in Ireland, aye?)

It said I did not satisfy the medical conditions for the scheme - of which are that I would be ill for at least a year, and incapable of working. What do I have to be to qualify for it? Shoot myself in both legs, and both arms? They have some cheek. They didn't even interview me. I shall be appealing this.

Very frustrating dlofnep; years ago when my GP diagnosed me with 'chronic fatigue' she willingly gave me sick certs for a few months but when I approached her last year for sick certs she refused. I have over the years, envied those who have recognised illnesses as it is so difficult having to convince not just the medical profession but family and friends too of this condition.

I hope your appeal goes well...

padi89

Is there a difference between disability benefit and illness benefit?
Your a genuine case so will your weekly/monthly certs not keep you going until you are over a year out and do qualify?

dlofnep

padi89 wrote: »

Is there a difference between disability benefit and illness benefit?
Your a genuine case so will your weekly/monthly certs not keep you going until you are over a year out and do qualify?

Illness benefit is based on PRSI. If you've paid 260 weeks PRSI or more throughout your life, then you can get it for up to 2 years. If you have between 104 and 259 weeks, then you can only get it for up to one year. I'm not exactly sure where I fall into this. I will have to contact social welfare to find out.

Disability allowance doesn't go on PRSI. It's for anyone who will be ill or disabled to where they cannot work for at least a year. I absolutely fit this criteria, but somehow they have rejected me. I have a feeling that because of Government cutbacks - they are probably trying their arm to reject as many cases as possible.

kangaroo

dlofnep wrote: »

I absolutely fit this criteria, but somehow they have rejected me. I have a feeling that because of Government cutbacks - they are probably trying their arm to reject as many cases as possible.

Not sure if it is a recent thing. I think for a long time they have refused a lot of people on the first round and hope some of them give up.

newmug

Hi Dlopfen. Please forgive my ignorance here, but I read the first 5 pages of this thread and my eyes are square. Did you actually find out exactly whats wrong? Have you a name to put to your illness? I really hope you recover from this.

dlofnep

newmug wrote: »

Hi Dlopfen. Please forgive my ignorance here, but I read the first 5 pages of this thread and my eyes are square. Did you actually find out exactly whats wrong? Have you a name to put to your illness? I really hope you recover from this.

I suspect mercury toxicity from dental amalgams. I explained in this blog post how I came to that conclusion: http://rejectmercury.blogspot.com/2011/08/how-i-came-to-conclusion-of-mercury.html

newmug

dlofnep wrote: »

I suspect mercury toxicity from dental amalgams. I explained in this blog post how I came to that conclusion: http://rejectmercury.blogspot.com/2011/08/how-i-came-to-conclusion-of-mercury.html

Bloody hell! Is there a test you can do to see if you actually are being poisoned by mercury? To think of all the people with mercury in their mouths! I wish you all the best with this, get well soon as they say!

dlofnep

newmug wrote: »

Bloody hell! Is there a test you can do to see if you actually are being poisoned by mercury? To think of all the people with mercury in their mouths! I wish you all the best with this, get well soon as they say!

Yup - There's a number of tests. The one that appears to be the most reliable is a hair mineral test. I have done both a hair mineral test, and a urine challenge test. Both demonstrated very elevated levels of mercury.

dlofnep

dlofnep wrote: »

Illness benefit is based on PRSI. If you've paid 260 weeks PRSI or more throughout your life, then you can get it for up to 2 years. If you have between 104 and 259 weeks, then you can only get it for up to one year. I'm not exactly sure where I fall into this. I will have to contact social welfare to find out.

Disability allowance doesn't go on PRSI. It's for anyone who will be ill or disabled to where they cannot work for at least a year. I absolutely fit this criteria, but somehow they have rejected me. I have a feeling that because of Government cutbacks - they are probably trying their arm to reject as many cases as possible.

I imagine it's because it's almost impossible to prove. You might know you're sick, but to them, you have working limbs and no proven medical condition which would qualify someone for disability benefit (as far as I know).

My brother is severely hearing impaired, suffers from scoliosis and other bone problems and he isn't entitled to disability benefit. I wouldn't imagine it would be easy to convince them that metal toxicity as a disability. I'm not saying you don't deserve it, but think of it from their perspective. They reject plenty of other people with much more obvious disabilities. It's not easy to tell when someone is just looking for a free ride. I'd definitely persevere, but don't be surprised that they're not making it easy. You may need to keep providing them with more information and proof. Best of luck.

LegacyUser

You'll often find with SW and the health system that they are reluctant to be seen to give out disability payments too easily or any payments for that matter in the current fix we're in. It can even depend on the person you get to deal with your case. I'd try to get a face to face meeting if at all possible. I've never applied for DB but I know from being on SW in the past that I learned which officers to avoid in the offices and literally pretended that I'd gotten a phone call in the queue to avoid certain staff!!. I'm pretty sure that I'm metal toxic myself just stockpiling the supplements now and sending away for hair test. I've used up most of my holidays and all of my sick leave. It is a battle getting people to appreciate how hard it can be to hold down a job with chronic illness.

dlofnep

I have a medical exam on the 20th. I got my doctor to write my out a report to appeal their rejection of my claim. I'm still befuddled as to how they managed to make a decision before my actual medical exam. Bearing in mind that this upcoming medical exam isn't even for my disability claim, it's for my illness benefit.

In other news - Finished my 10th round of the Cutler protocol on Thursday. Seem to be managing a bit better recently. While my mind still is hazy, I haven't had any real overwhelming brain fog in 2 or 3 weeks. Going to be introducing ALA soon - Can't wait! also moving up to 25mg's of DMSA on Monday.

padi89

Good luck with your interview on 20th. Im sure you will be fine, your doing everything you can to get right so i don't know what more is expected of you?

Is following the Cutler Protocol expensive ?

dlofnep

padi89 wrote: »

Good luck with your interview on 20th. Im sure you will be fine, your doing everything you can to get right so i don't know what more is expected of you?

Is following the Cutler Protocol expensive ?

It's manageable, but it isn't cheap. I guess it all depends on how much disposable income you have.

At the moment - A bottle of DMSA lasts 5 rounds on my current dose of 25MG's per dose. (120 capsules per bottle). Each bottle is about €44 including shipping. I order from England. ALA works out at about just over €20 per bottle. Each bottle lasts 4 rounds.

So each month, for DMSA/ALA - You're looking at about €60. But bearing in mind, it all depends on what dose you are taking per round. If you double your dose, you're increasing the costs. Then on top of that, you need to supplement your body with lost minerals, and assist your liver with milk thistle.

Vitamin C: €20 a month
Vitamin B Complex: €20 a month
Milk Thistle: €25 a month
Multibionta (Multivitamin): About €10 a month
Zinc supplements: €20 a month
Omega Oils: €5 a month (If you get a good deal online)

It all adds up to about €150 a month for supplements. I also have to pay gym membership, as I use the sauna to help with the detox and swim to try make sure I maintain fitness. That's €450 a year. (€37.50 a month).

I also have to adhere to a gluten free diet, which gets quite expensive.

It's not easy, it's not cheap. But then again, it wasn't cheap missing days from work all the time. It will benefit me in the long run.

padi89

:eek: That's a huge amount of money on supplements if your not working and relying on benefit. I presume none of this is available for you on a medical card?
When it's your health though a price can't be put on it, hopefully it will work out for you and if not at least you have tried that route.

The side effects you experience from taking DMSA, are they only going to be experienced by people that have mercury issues?

dlofnep

padi89 wrote: »

:eek: That's a huge amount of money on supplements if your not working and relying on benefit. I presume none of this is available for you on a medical card?

Nope - Not available on medical card. It doesn't leave me with much disposable income. The only thing I really spend money on is the occasional book from amazon, and a few cups of tea on a Thursday night at a local Irish language group.

padi89 wrote: »

The side effects you experience from taking DMSA, are they only going to be experienced by people that have mercury issues?

Well - the side effects vary.. But essentially what the DMSA is doing is mobilizing the mercury in your body and stripping you of it, piece by piece.. It also strips essential minerals. I uppped my dose this round from 12.5mg to 25mg and I could certainly feel it. It was very heavy. But it appears to be less now as my body has got used to it. Still on DMSA at the moment. Will finish up this round at 1pm tomorrow and then hit the sauna twice tomorrow. Once at 5pm when the DMSA wears off, and then once at about 9pm to remove som redistribution.

Hal Emmerich

Holland and Barrett

One Cent Sale is back (Selected Lines Only though)

dlofnep

Thanks Hal! Time for some stocking up me thinks.

Quick update also: Finished round 12 on Thursday. Adding ALA this monday. Going to be considerably tougher from here on in - as I will have to take my doses every 3 hours now. I created a small dose box to keep track of them.

Blog is also updated: http://rejectmercury.blogspot.com

Mars Bar

Best of luck dlofnep. It seems like yesterday when you started the cutler and were saying how much you were looking forward to starting on the ALA!

dlofnep

mars bar wrote: »

Best of luck dlofnep. It seems like yesterday when you started the cutler and were saying how much you were looking forward to starting on the ALA!

cheers buddy!

I've been chatting to 2 people who have successfully gone through the Cutler protocol, and they have testified to it completely restoring their health. They've been offering me advice, and giving me the inspiration I need to tough it out. It's not easy, and not cheap - but you can't put a price on your health.

Also been chatting to a lady from England who started around the same time as me - we've been encouraging each other, and lending a listening ear to any problems. It's good to have someone to talk to who understands what you're going through.

I'm optimistic in anycase!

Mars Bar

dlofnep wrote: »

cheers buddy!

I've been chatting to 2 people who have successfully gone through the Cutler protocol, and they have testified to it completely restoring their health. They've been offering me advice, and giving me the inspiration I need to tough it out. It's not easy, and not cheap - but you can't put a price on your health.

Also been chatting to a lady from England who started around the same time as me - we've been encouraging each other, and lending a listening ear to any problems. It's good to have someone to talk to who understands what you're going through.

I'm optimistic in anycase!

You know what's odd? I don't go to the sauna often but when I do, I always think of you and wonder if any of the people in that sauna are you. :pac:

I can imagine it helps to have someone understanding how much work it all is. Keep it up!

dlofnep

mars bar wrote: »

You know what's odd? I don't go to the sauna often but when I do, I always think of you and wonder if any of the people in that sauna are you. :pac:

I need to teach you the secret sauna handshake!

dlofnep

Oh - PS: The 'medical exam' was pretty stupid. I felt like I was on a conveyor belt - in, 20 questions thrown at me in 3 minutes and then done. Didn't feel like I got to explain my problem properly.

dlofnep

Started on ALA today. 12.5mg doses.. Some people report a poor tolerance to ALA, and can only manage 5mg per dose - others have a much better tolerance. Luckily, I've had no side effects 25mg DMSA every 3 hours doesn't seem to hurt either. Infact, it's probably easier.

opinion guy

How goes the ALA dlofnep ?

dlofnep

Yeah not bad man - can certainly feel the effects of it alright. I know the mercury is mobilizing. Nothing I can't handle though!

dlofnep

Started my 14th round today. How time flies! I've already upped my dose to 25mgs for ALA. A girl I'm in contact with through e-mail seemed to handle the high ALA doses fine, and so did Áine Ní Cheallaigh when documenting her detox in her book.

I have to say it's going pretty smoothly. A wee bit spaced out, but nothing crazy. I've been a hell of a lot worse! Áine and the other girl went up to 100mgs of ALA in a matter of weeks - so I'll see how it goes. Right now, it's 25mg DMSA/25mg ALA.

Onward I say!

opinion guy

dlofnep a question - if you compare how you feel now to how you felt 14 weeks ago - do you feel you have improved ?

dlofnep

No - no improvement, nor do I expect to see improvements yet. This is only my second round on ALA. According to everyone who has succeeded with the Cutler protocol, it takes at least 50 rounds of DMSA with ALA before you notice good improvements.

So essentially for me - my major milestone will be around this time next year. Or maybe December next year, if I take into account a few off weeks.

Also - ordered supplements and more DMSA today - Almost €140 in total. Broke now for the next week

dlofnep

15th round complete.

In other news - Illness benefit cut me off! Of no fault of my own! I had applied to do an online FÁS course a few months back, but never started the course as the brain-fog was too much for me. FÁS advised me that it didn't even require an exemption, but I contacted Social Welfare just to make sure. They said if I was to start the course, to just fill in the form and send it onto them.

I never started the course, and this week I got a letter from them stating that if I did not contact them they would cut off my payment. I wrote to them on Monday to state that I never started the FÁS course and that I didn't require the exemption.

Today I get a letter in the door stating my payment had been cut!! I have an e-mail confirmation to state that they received my mail the other day. I'm absolutely furious.

They've basically cut off my payment, because I did not get an exemption for a course that I never even started! A course that as far as I'm aware never even required an exemption. But even if it did, I didn't do the course. What sort of eejits do they employ there?

So I've no money for this week at all. Not a penny. What am I supposed to eat? The exemption form?

oldjude

My god. I really feel for you. And you really seem to be doing everything in your power to do something about this(and in my opinion, going about it in exactly the right way). I am in a similar boat, as i have leaky gut syndrome, and am intolerant to practically all foods.

I went to Dr. John Mckenna(he was the one who diagnosed my LGS) and found him to be a compassionate sort of guy, and very conscientious. Just wanted to say chin up and you'll find a way. If there was a way into a situation, there has to be a way out .

opinion guy

How are things going dlofnep ?

dlofnep

Heya bud - Took two weeks off because I was dieing with a cold, and then a flu. Back on track now - just took my first dose for this round (round 18).

opinion guy

Over those colds and flus and turkey overdoseses ?:D

rollerdisco

You could have gluten intolerance and it is common to have a caffeine allergy with this. also problems with milk protein. I had all the tests done the couldnt find anything. give up wheat and milk it wont harm you

opinion guy

rollerdisco wrote: »

You could have gluten intolerance and it is common to have a caffeine allergy with this. also problems with milk protein. I had all the tests done the couldnt find anything. give up wheat and milk it wont harm you

I think he already tried that!

dlofnep

rollerdisco wrote: »

You could have gluten intolerance and it is common to have a caffeine allergy with this. also problems with milk protein. I had all the tests done the couldnt find anything. give up wheat and milk it wont harm you

I've been on a gluten-free diet for 5 years