Advertisement
If you have a new account but are having problems posting or verifying your account, please email us on hello@boards.ie for help. Thanks :)
Hello all! Please ensure that you are posting a new thread or question in the appropriate forum. The Feedback forum is overwhelmed with questions that are having to be moved elsewhere. If you need help to verify your account contact hello@boards.ie
Development Dysplasia (DDH)
Options
Comments
-
-
-
-
-
-
Advertisement
-
You're all going to think I'm mad lol, but have you seen the cartoon tree fu tom on cbeebees? He's a little elf type super hero who 'needs your help to save the day' and the exercises he does in it are specifically designed to help children with dysplaxia. Might be worth a look and a fun way to do exercises?
Oh no....wait....I think that's dyspraxia
0 -
-
-
-
-
Advertisement
-
-
-
-
-
-
-
-
-
Hi All,
Ive been dipping in and out of of this thread. My nearly 2.5year old girl is waiting on a consultants app.
Long story short....
Xrayed at 6 months due to uneven creases, all ok.
Walked at 11-12months, she always had a funny gait in the right leg, it looks like right knee bows out and she pulls leg after her a bit. Her older brother had the same, his is gone since he was approx 20months. Hers is much worse and she complains of knee pain and sometimes walks on outside of foot as it is sore
.
A friend whose daughter has serious hip issues suspects my daughter has a hip issue too.............
So my qt is does this sound like a hip issue to you and can an xray miss an issue?? (I know ye cant give med advice just wondering about other peoples experiences)
thanks for reading:)0 -
-
Advertisement
-
duploelabs wrote: »Hi Guys,
My Daughter, 9 months, has been diagnosed with DDH and is due for her first op next week. I'd really appreciate if some (or one) of you could put up a top tips of what to expect from your day-to-day knowledge of dealing with a child who has gone through the procedure. Like what's the best method of dealing with nappies? What are the best high chair substitutes? Recommended skin ointment for dealing with skin rash that happens with having a caste in place for so long? Dealing with the little one's change for being immobile for so long? All that kind of stuff as it's looming large and is all a bit daunting.
Thanks a mil.
Our daughter had her first spica cast at about this age too. It is very daunting and upsetting but believe me she will get used to it before you do, in a day or two and you won't be far behind once you get into the swing of things.
We abandoned our high chair (had to) and got a beanbag. Had problems getting a large one to suit but ended up getting two in the Blackrock market - about 90euro each - in the beanbag stall. We wanted to give one to the creche as well. Beanbags are invaluable but be careful - they do learn to wriggle off!!
Took us about three days to sort out the buggy. We had a Quinny and had to figure out how to stuff cushions in it to support her properly and adjust straps to fit etc. Sounds easy enough but literally took us three days and was so frustrating. It couldn't be done beforehand because we needed to know her size with the cast.
For car seat we bought ours and got it delivered from in car safety centre in Belfast. It's specially adapted for spica casts. Expensive but only one we could find. Had to ring them a few months after purchase with a query and they were soooo helpful it was fantastic.
Cot was fine - no issues there. I know some people prop under the legs, we never did and felt there was no need as the cast supports them enough. You'll need light blanket for sleeping as the cast is very warm. For cream there's nothing you can do until the cast is finally off. We were lucky and our daughter's skin was great with a touch of eczema so we were recommended diprobase/silcocks base and some eczema cream. Baths were a nightmare for a while because she hadn't had one in months! She came around eventually and now loves baths. Just takes time. While in the cast you can sponge wash. You'll need two people to wash hair, one to hold her over the bath and the other to wash.
Our daughter wasn't mobile before her cast - rolling over and sitting but not crawling or creeping so I'm afraid I don't have any tips for that. But she played with her toys in the beanbag or on someones lap. We got a projector light for night times and she enjoyed that going to sleep. She was a bit frustrated first night because she couldn't roll but was fine after that night. She really did adjust so fast.
Nappies are done through a hole in the cast. Our daughter was average weight and we put a size 3 inside the cast (she was on 4s at the time I think). Put the largest nappy you can in, without cramming it in there! Easier to push in at the bum first and tuck in at the front - in my experience. Then a larger nappy (size 6 for us) goes over the whole cast like a regular nappy. They line the edges of the hole with waterproof tape and should give you more in the hospital - ask for it if not. We never had to top ours up but some people do. Google changing nappies in a cast - we found some good sites. It's scary the first time but you do get the hang of it quickly. Show everyone who might need to change a nappy how to do it so they feel confident. I found it helped me feel more confident about it too, explaining to others. I was terrified the first few times but you do it soooo often it becomes second nature.
I think the main thing with the nappies is to accept there will be accidents and leaks inside the cast that you can do nothing about. Don't get too stressed, just clean as best/as much as you can. We were fortunate - there was nothing too messy. I think the age 9 months helps a bit - assuming she's started solids so poos tend to be less leaky. Change the nappy frequently so wee leaks are minimised. I found it tricky to check for dirty nappies so once I started I just finished a change. Teething times can be difficult if there's a rash or runnier poos so even more frequent changes/checks during those times.
For clothes we bought sizes one and half to 2 years to fit. Our daughters cast went right down to her ankles both legs so socks were a big one to keep her feet warm. And a vest and a top/dress then. No bottoms at all. The only time her legs were covered was in her babygro (larger size) at night. She still hasn't grown into some of the stuff we bought her back then!
Oh be careful lifting - it takes a while to get used to supporting underneath the cast. Under the bum is best. Again tricky to get used to but you do eventually. Keep reminding people not to lift her under the arms - they will forget how heavy the cast is on her body and to support it properly.
Our daughter had two spicas and one brace over 19 weeks and is out of brace since Feb/March. She managed to start creeping commando style in her casts and got into everything! We're waiting for osteotomy still so she'll be back in a brace after that. Looking back it seems like so long ago. She's running around no bother to her now. I hope your daughter's treatment goes well and quickly. PM me if there's anything you'd like to know/ask. Sorry for the long reply! Hope it helps. Good luck
0 -
theLuggage wrote: »Our daughter had her first spica cast at about this age too. It is very daunting and upsetting but believe me she will get used to it before you do, in a day or two and you won't be far behind once you get into the swing of things.
We abandoned our high chair (had to) and got a beanbag. Had problems getting a large one to suit but ended up getting two in the Blackrock market - about 90euro each - in the beanbag stall. We wanted to give one to the creche as well. Beanbags are invaluable but be careful - they do learn to wriggle off!!
Took us about three days to sort out the buggy. We had a Quinny and had to figure out how to stuff cushions in it to support her properly and adjust straps to fit etc. Sounds easy enough but literally took us three days and was so frustrating. It couldn't be done beforehand because we needed to know her size with the cast.
For car seat we bought ours and got it delivered from in car safety centre in Belfast. It's specially adapted for spica casts. Expensive but only one we could find. Had to ring them a few months after purchase with a query and they were soooo helpful it was fantastic.
Cot was fine - no issues there. I know some people prop under the legs, we never did and felt there was no need as the cast supports them enough. You'll need light blanket for sleeping as the cast is very warm. For cream there's nothing you can do until the cast is finally off. We were lucky and our daughter's skin was great with a touch of eczema so we were recommended diprobase/silcocks base and some eczema cream. Baths were a nightmare for a while because she hadn't had one in months! She came around eventually and now loves baths. Just takes time. While in the cast you can sponge wash. You'll need two people to wash hair, one to hold her over the bath and the other to wash.
Our daughter wasn't mobile before her cast - rolling over and sitting but not crawling or creeping so I'm afraid I don't have any tips for that. But she played with her toys in the beanbag or on someones lap. We got a projector light for night times and she enjoyed that going to sleep. She was a bit frustrated first night because she couldn't roll but was fine after that night. She really did adjust so fast.
Nappies are done through a hole in the cast. Our daughter was average weight and we put a size 3 inside the cast (she was on 4s at the time I think). Put the largest nappy you can in, without cramming it in there! Easier to push in at the bum first and tuck in at the front - in my experience. Then a larger nappy (size 6 for us) goes over the whole cast like a regular nappy. They line the edges of the hole with waterproof tape and should give you more in the hospital - ask for it if not. We never had to top ours up but some people do. Google changing nappies in a cast - we found some good sites. It's scary the first time but you do get the hang of it quickly. Show everyone who might need to change a nappy how to do it so they feel confident. I found it helped me feel more confident about it too, explaining to others. I was terrified the first few times but you do it soooo often it becomes second nature.
I think the main thing with the nappies is to accept there will be accidents and leaks inside the cast that you can do nothing about. Don't get too stressed, just clean as best/as much as you can. We were fortunate - there was nothing too messy. I think the age 9 months helps a bit - assuming she's started solids so poos tend to be less leaky. Change the nappy frequently so wee leaks are minimised. I found it tricky to check for dirty nappies so once I started I just finished a change. Teething times can be difficult if there's a rash or runnier poos so even more frequent changes/checks during those times.
For clothes we bought sizes one and half to 2 years to fit. Our daughters cast went right down to her ankles both legs so socks were a big one to keep her feet warm. And a vest and a top/dress then. No bottoms at all. The only time her legs were covered was in her babygro (larger size) at night. She still hasn't grown into some of the stuff we bought her back then!
Oh be careful lifting - it takes a while to get used to supporting underneath the cast. Under the bum is best. Again tricky to get used to but you do eventually. Keep reminding people not to lift her under the arms - they will forget how heavy the cast is on her body and to support it properly.
Our daughter had two spicas and one brace over 19 weeks and is out of brace since Feb/March. She managed to start creeping commando style in her casts and got into everything! We're waiting for osteotomy still so she'll be back in a brace after that. Looking back it seems like so long ago. She's running around no bother to her now. I hope your daughter's treatment goes well and quickly. PM me if there's anything you'd like to know/ask. Sorry for the long reply! Hope it helps. Good luck
Nothing short of fantastic, thank you thank you thank you0 -
-
-
-
-
embireland wrote: »My daughter is 15 months old and cant walk or crawl yet. The public health nurse noticed a problem with her hips and sent her for an x-ray, which we went to see a specialist in temple street hospital, they confirmed she has hip dysplasia on both hips but said she wont be operated on til she is over 18 months. I am just wondering am I being brushed under the carpet and should I be pushing for surgery. She cannot crawl or lift herself up when she is lying down flat. She does not seem in pain. Should be I worried? I have read most of these posts and all the children are much younger and being told they caught it early. Please post with an opinion of what you think?
Well it depends really. My daughter was diagnosed at 8 months old, she had 10 days of traction and was brought to theatre for a closed reduction - they put her hip back in. Fast foward months of spicas, braces etc.. I started getting worried when she got to 13 months and couldnt sit up by herself or let alone crawl or walk, she got physio which really helped. She was put into a device that you strap her into which forced her to stand. I brought that home with me and put her into it everyday. She even had her own little zimmer frame for a while. Try asking your health nurse for a referral for physio. Saoirse was gettong physio even though we knew she still had the big operation ahead of her. Swimming in another great thing that helps.
I was then told that her hip socket hadnt formed properly. This operation they couldnt do until she reached a certain age because they wanted to see if the hip would develop by its self. Did they mention her hip sockets to you at all?0 -
-
It is better for her to have the operation while she is young. I know its scary, but honestly its worth it. The change in my daughter since had the operation is amazing. The past few weeks she has really gotten stronger and shes not as wobbly as she used to be
She started walking again about 2 weeks after her splint came off. I think it would be worse leaving an operation like that until shes older. They heal quicker and they are less likely to remember it.0 -
Advertisement
-
Advertisement