Advertisement
If you have a new account but are having problems posting or verifying your account, please email us on hello@boards.ie for help. Thanks :)
Hello all! Please ensure that you are posting a new thread or question in the appropriate forum. The Feedback forum is overwhelmed with questions that are having to be moved elsewhere. If you need help to verify your account contact hello@boards.ie
Hi there,
There is an issue with role permissions that is being worked on at the moment.
If you are having trouble with access or permissions on regional forums please post here to get access: https://www.boards.ie/discussion/2058365403/you-do-not-have-permission-for-that#latest

[Diabetes] General Chat and Support Thread

11011131516103

Comments

  • Registered Users, Registered Users 2 Posts: 23,157 ✭✭✭✭Alanstrainor


    Well gents, i think my insulin pump is nearing death. I'm getting constant "motor" warnings and priming it is almost impossible at this stage...im getting worried...


  • Registered Users, Registered Users 2 Posts: 499 ✭✭graflynn


    Well gents, i think my insulin pump is nearing death. I'm getting constant "motor" warnings and priming it is almost impossible at this stage...im getting worried...

    Call your pump manufacturer ASAP, they should give you another loaner until the paperwork comes through for your new one. Be assertive; tell them (in a nice way of course) that you're considering changing to Animas because you are dissatified with customer support unless things change. Sometimes they need a little rattling.


  • Registered Users, Registered Users 2 Posts: 188 ✭✭DJW11


    Hi all,

    General question about glucometers. My gf has a contour one and just in the last few days out of curiosity she started testing in more than one location when time comes for her to test her levels, example: she just tested and her left index finger read 12.2 and her left ring finger then read 13.9??? same last night, tested 3/4 different fingers on left and right hands and her arms and got readings from 5.5 to 7.9!?? im just wondering is this normal or a machine problem?

    Thanks


  • Moderators, Sports Moderators Posts: 25,241 Mod ✭✭✭✭CramCycle


    DJW11 wrote: »
    Hi all,

    General question about glucometers. My gf has a contour one and just in the last few days out of curiosity she started testing in more than one location when time comes for her to test her levels, example: she just tested and her left index finger read 12.2 and her left ring finger then read 13.9??? same last night, tested 3/4 different fingers on left and right hands and her arms and got readings from 5.5 to 7.9!?? im just wondering is this normal or a machine problem?

    Thanks

    Perfectly normal, there have even been studies into it.


  • Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    On a similar note my husband has always said not to test on my ring finger...


  • Advertisement
  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    DJW11 wrote: »
    Hi all,

    General question about glucometers. My gf has a contour one and just in the last few days out of curiosity she started testing in more than one location when time comes for her to test her levels, example: she just tested and her left index finger read 12.2 and her left ring finger then read 13.9??? same last night, tested 3/4 different fingers on left and right hands and her arms and got readings from 5.5 to 7.9!?? im just wondering is this normal or a machine problem?

    Thanks

    the reading you get on a meter is ±7% of what the actual blood sugars were about 20 minutes ago :)


  • Registered Users, Registered Users 2 Posts: 187 ✭✭Pygmie


    Hi there. Can anyone recommend a good weighing scales that we could use to calculate the amount of carbs in food? We have a scales but the carbs work out, in some cases, twice as many carbs as specified by sites like fitday. We have a 5 month old that is starting on solids and want to be able to be as accurate as possible when it comes to working out insulin doses. Thanks in advance!


  • Registered Users, Registered Users 2 Posts: 1,542 ✭✭✭BlackEdelweiss


    Does anyone know if there is anything like this available in Ireland, it sounds like a lot less trouble for testing.
    http://www.accu-chek.co.uk/gb/products/metersystems/index.html?OVMTC=Broad&site=&creative=5093549154&OVKEY=blood%20glucose%20meter&adpos=1t1&gclid=CIHpnti6ma4CFcpB4QodZw3sIQ
    Is there anywhere you can get free blood meters online, I have been using the same type (Optimum Xceed) since I was diagnosed 2 years ago and would just like a change. My hospital only have these ones.


  • Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    Does anyone know if there is anything like this available in Ireland, it sounds like a lot less trouble for testing.
    http://www.accu-chek.co.uk/gb/products/metersystems/index.html?OVMTC=Broad&site=&creative=5093549154&OVKEY=blood%20glucose%20meter&adpos=1t1&gclid=CIHpnti6ma4CFcpB4QodZw3sIQ
    Is there anywhere you can get free blood meters online, I have been using the same type (Optimum Xceed) since I was diagnosed 2 years ago and would just like a change. My hospital only have these ones.
    IK have seen it in Boots and have been tempted to get it but I love my One Touch Ultrasmart.


  • Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    Does anyone "celebrate" their day of diagnosis with diabetes? I was diagnosed with type 1 27 years ago today when I was 10 years old. I used to say that it was the one day that I was allowed to get upset about it.

    Other things have taken over as being more important since - last Thursday was 5 years since I had my total oesophagectomy - but today is my diabetes anniversary.


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 499 ✭✭graflynn


    CathyMoran wrote: »
    Does anyone "celebrate" their day of diagnosis with diabetes? I was diagnosed with type 1 27 years ago today when I was 10 years old. I used to say that it was the one day that I was allowed to get upset about it.

    Other things have taken over as being more important since - last Thursday was 5 years since I had my total oesophagectomy - but today is my diabetes anniversary.

    I kind of do but I only remember after the fact that I've clocked up another year. I was diagnosed on the 2nd April 1993 but in 2004 on that date my first child was born. So I'm usually more focused on a birthday party.


  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,123 Mod ✭✭✭✭robinph


    Kind of. Although I can't quite remember the exact date right now, it was the end of January 15 years ago. I'd need to check back to figure out the correct day now, it was definitely a happy day back then due to how crap I'd become in the lead up to diagnosis. I'll be "celebrating" my one year anniversary of being a bionic robinph on a pump by trying to survive a mates stag weekend.


  • Closed Accounts Posts: 4,438 ✭✭✭5live


    CathyMoran wrote: »
    Does anyone "celebrate" their day of diagnosis with diabetes? I was diagnosed with type 1 27 years ago today when I was 10 years old. I used to say that it was the one day that I was allowed to get upset about it.

    Other things have taken over as being more important since - last Thursday was 5 years since I had my total oesophagectomy - but today is my diabetes anniversary.
    20 years ago this august weekend coming. I was supposed to go to 'the trip to tipp' to see Bryan Adams but was in hospital watching Michael Carruth winning gold in Barcelona at the olympics. Still not sure which dehydration would have been worse:).

    And i promised myself a bar of chocolate to celebrate:pac:


  • Registered Users, Registered Users 2 Posts: 4,128 ✭✭✭cynder


    CathyMoran wrote: »
    Does anyone "celebrate" their day of diagnosis with diabetes? I was diagnosed with type 1 27 years ago today when I was 10 years old. I used to say that it was the one day that I was allowed to get upset about it.

    Other things have taken over as being more important since - last Thursday was 5 years since I had my total oesophagectomy - but today is my diabetes anniversary.

    My daughter will be diagnosed 5 years age 7 on the 25th if this month and we will do something to mark the occasion...

    On the 22 nd were both signing up to do the flora mini marathon. Will try and raise funds for dfi.

    Probably wont buy a cake and put candles on but will do something.


  • Registered Users, Registered Users 2 Posts: 431 ✭✭1967


    I celebrate it big time, was diagnosed Christmas Eve 2007 came round in ICU three days later to be told i was diabetic had blood sugars of 96.4 and had died twice, last hbA1c was 5.4,tbh getting diabetes was the best thing to happen to me as it gave me the kick in the ass that i needed to get my life back on track


  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    1967 wrote: »
    had blood sugars of 96.4 and had died twice

    WOAH!

    Sir - or Madam - You win. You definitely win. No longlasting damage I hope?


  • Registered Users, Registered Users 2 Posts: 4,128 ✭✭✭cynder


    1967 wrote: »
    I celebrate it big time, was diagnosed Christmas Eve 2007 came round in ICU three days later to be told i was diabetic had blood sugars of 96.4 and had died twice, last hbA1c was 5.4,tbh getting diabetes was the best thing to happen to me as it gave me the kick in the ass that i needed to get my life back on track


    You really must of pigged out on those festive chocolates :eek:;) ..... My daughter's were 54 or 56. Too high to read on a normal monitor. And she was heading into a coma she was in the first stages. They kept her in resuscitation for 8 hours until the risk of coma had subsided.


  • Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    I was "only" at 44 when I was diagnosed -I also had chicken pox at5 the same time so was in isolation. There was a baby less than a year old in there who was diagnosed at the same time I wonder what happened to her.

    One of my so called friends said that I gave diabetes to the child I babysat, I was very hurt - the ignorance of her.


  • Moderators, Sports Moderators Posts: 25,241 Mod ✭✭✭✭CramCycle


    1967 wrote: »
    I celebrate it big time, was diagnosed Christmas Eve 2007 came round in ICU three days later to be told i was diabetic had blood sugars of 96.4 and had died twice, last hbA1c was 5.4,tbh getting diabetes was the best thing to happen to me as it gave me the kick in the ass that i needed to get my life back on track

    I had about 60 if I remember right but can't be certain. I'd well believe the died twice bit if my bloods were that high. Glad it worked out for you, how quick did the symptoms come on, that sounds phenomenal.
    CathyMoran wrote: »
    One of my so called friends said that I gave diabetes to the child I babysat, I was very hurt - the ignorance of her.

    I had a girl ask me could she catch it off me, regardless to say, I never called her back, ignorance is one thing, stupidity is another story.


  • Moderators, Science, Health & Environment Moderators, Sports Moderators Posts: 24,123 Mod ✭✭✭✭robinph


    I was a mere 27 something at diagnosis.

    But the parents had it mostly figured out what was wrong so had probably got the levels coming down quite a bit between when they scraped me off the floor of the house where I was living and then taking me to their GP the next morning on the other side of the country. Spent the week in hospital getting pumped back full of saline before I was released, was almost like I was re-inflated apparently.

    It still surprises me how quickly between them putting the insulin drip in me and me barely being conscious, to me then being aware of what was going on and joking with the nurses half an hour or so later.


  • Advertisement
  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    robinph wrote: »
    It still surprises me how quickly between them putting the insulin drip in me and me barely being conscious, to me then being aware of what was going on and joking with the nurses half an hour or so later.

    yep - I can relate. I was only 35 but had been sick for about two months. Literally 20 minutes after the drip went in i was "I'm cured! I can go home now"


  • Registered Users, Registered Users 2 Posts: 431 ✭✭1967


    I put my symptoms down to flu,i was feeling very drained and run down for about a week, even on the saturday (in hospital half six christmas eve monday morning) i went to liverpool for the day over early morning back late at night and i drove up and down to dublin airport from waterford with five others in the car,one of my best mates was really concerned telling me to see a doctor when we got home i told him i was ok,even missed two of the goals in the game from having to go to the toilet.i knew something wasn't right even remembered my tongue swelling up at one stage and being unable to talk,have to say the staff in Waterford Regional were fantastic especially in ICU,basically what happened to me was my whole system was messed up readings that should be low were through the roof hence the 96.4 blood sugars and what should have been high were through the floor basically my whole system imploded and put tremendous strain on my heart especially, culminating in two heart attacks which i died from (heart is fine never any problems with it just the strain of my body imploding) also had about twenty minutes before i went into a full on diabetic coma of which i was not coming out of and was told later had a better chance of winning the lottery than surviving, so thats why i celebrate :D I would like to say my body was a temple and it was indded a temple for sweets minerals fried food fast food and cider,i was 21.5 stone and lost 9 stone in six months by changing eating habits and walking.I have since put back on two stone but that was my choice as at 6'4'' i looked gaunt and i am now happier in myself,i walk about twenty miles a week and also play golf,so that's my story the only real long term damage to me has been nerve damage i suffer badly in the cold with numbness in hands and feet and unfortunately developed erectile dysfunction which was tough as i was 40 at time of diagnosis but a little pill called cialis more than takes care of that.


  • Registered Users, Registered Users 2 Posts: 7,604 ✭✭✭Meauldsegosha


    tbh wrote: »
    robinph wrote: »
    It still surprises me how quickly between them putting the insulin drip in me and me barely being conscious, to me then being aware of what was going on and joking with the nurses half an hour or so later.

    yep - I can relate. I was only 35 but had been sick for about two months. Literally 20 minutes after the drip went in i was "I'm cured! I can go home now"

    I remember that feeling. To go from being curled up on the couch thinking I was about to die to being on that drip in A&E was the best feeling ever.


  • Registered Users, Registered Users 2 Posts: 10,301 ✭✭✭✭gerrybbadd


    Thanks for sharing your stories everybody - 1967 - wow! Your story is amazing!:eek:

    I had felt awful for months (over 12), the usual thirst, toilet trips etc. Eventually I began to develop pains in my legs and feet, usually worse at night.

    So I decided to get a blood test the week before going on holidays to Germany. The doctor told me that she would send the bloods to Vincents, and I'd have the results when I came back.

    Well.... She rang me that afternoon, and told me to go to casualty immediately, in Vincent's. So, out I go... My bloods weren't as high as some of the previous stories, I think they were 28 or 29, but my triglyceride was through the roof.

    Vincent's didn't know what to do with me. The left me sitting on a gurney, where I heard the nurses saying I had milkshake blood:eek::eek:

    Any time somebody came to talk to me or ask questions, they'd ask me how long I had diabetes.... Without having being told that's what I had.

    They were going to keep me overnight, and do an infusion(still not sure what this was) but eventually the let me go... At 12:30am at night. It had been 12 hours since I ate, and around 8 since I had anything to drink. I had to walk home too as there were no buses or taxis around. I
    WillL never forget that walk home... Totally weak.

    I still got to go to Germany, but it ruined the holiday for my better half.


  • Registered Users, Registered Users 2 Posts: 1,515 ✭✭✭hadepsx


    im finding it hard to tell when my bloods are either too low or too high, until its too late, then ive to react with insulin/ glucose tablets. how can i improve this pls. ps im type 1 since i was ten. im now 29. no major problems, other than groin tear wont heal, had my fair share of hypo's but only 1 DKA, which i was in hospital for.


  • Moderators, Sports Moderators Posts: 25,241 Mod ✭✭✭✭CramCycle


    hadepsx wrote: »
    im finding it hard to tell when my bloods are either too low or too high, until its too late, then ive to react with insulin/ glucose tablets. how can i improve this pls. ps im type 1 since i was ten. im now 29. no major problems, other than groin tear wont heal, had my fair share of hypo's but only 1 DKA, which i was in hospital for.

    Better control is the only solution, you have lost hypo awareness because your body is getting used to being in that situation. Test alot more regularly, regardless of wether you feel you need to or not and treat the machine as being more accurate than your feeelings as they won't return for sometime.

    When I went off the rails it only took a fortnight of tight control for my awareness to return but I am in a minority I think, I have talked to others where it has taken months.

    When I went to get myself back on track I was testing more than once an hour while awake, a bit excessive but I felt it was needed, you might be fine with before every meal and one in between but either way, your awareness won't control until your control does.

    Talk to your team over the phone for better advice though, they are usually helpful once they see you are serious about making an effort.


  • Closed Accounts Posts: 4,438 ✭✭✭5live


    1967 wrote: »
    I put my symptoms down to flu,i was feeling very drained and run down for about a week, even on the saturday (in hospital half six christmas eve monday morning) i went to liverpool for the day over early morning back late at night and i drove up and down to dublin airport from waterford with five others in the car,one of my best mates was really concerned telling me to see a doctor when we got home i told him i was ok,even missed two of the goals in the game from having to go to the toilet.i knew something wasn't right even remembered my tongue swelling up at one stage and being unable to talk,have to say the staff in Waterford Regional were fantastic especially in ICU,basically what happened to me was my whole system was messed up readings that should be low were through the roof hence the 96.4 blood sugars and what should have been high were through the floor basically my whole system imploded and put tremendous strain on my heart especially, culminating in two heart attacks which i died from (heart is fine never any problems with it just the strain of my body imploding) also had about twenty minutes before i went into a full on diabetic coma of which i was not coming out of and was told later had a better chance of winning the lottery than surviving, so thats why i celebrate :D I would like to say my body was a temple and it was indded a temple for sweets minerals fried food fast food and cider,i was 21.5 stone and lost 9 stone in six months by changing eating habits and walking.I have since put back on two stone but that was my choice as at 6'4'' i looked gaunt and i am now happier in myself,i walk about twenty miles a week and also play golf,so that's my story the only real long term damage to me has been nerve damage i suffer badly in the cold with numbness in hands and feet and unfortunately developed erectile dysfunction which was tough as i was 40 at time of diagnosis but a little pill called cialis more than takes care of that.
    :eek: WOW. I am in awe. All i had to do was fail a medical for my first job and i thought that was bad:o


  • Registered Users, Registered Users 2 Posts: 16,986 ✭✭✭✭banie01


    Hiya folks,
    Just back from my endo and I'm a bit confused he reckons that my hba1c at 7.2(Type 2) is excellent(Which to me....It isn't).
    Also he was praising how I've gotten it back in control since last year, more of a motivation session than a check up ;) lol
    But here's the thing, I know it can be a lot better(Indeed it has been) and I feel being praised for not yet even getting back to my previous level of control is a bit hollow :(.
    As a bit of background it is down from 11 in March 2011 but that was after a lay up due to a broken foot and in the meantime due that injury and an ongoing bout of unemployment my activity levels are much lower than they were and indeed should be.
    Personally I'd like to get back to @6.5 which is where I was prior to the injury and ''retiring'' from rugby.
    However, when I was discussing how to achieve this with my Endo while he was supportive of my intentions seemed more worried about switching my meds to Victoza at my next review?
    Now I only started on Janumet last August and am fairly happy with the regime so far and to be told 6 months in that the meds may be changed again has left me a little disconcerted to say the least.
    Its as if the effort regarding diet/activity is being disregarded in favour of the latest and greatest.

    Anyways its left me a little bewildered to say the least!


  • Registered Users, Registered Users 2 Posts: 499 ✭✭graflynn


    banie01 wrote: »
    Hiya folks,
    Just back from my endo and I'm a bit confused he reckons that my hba1c at 7.2(Type 2) is excellent(Which to me....It isn't).
    Also he was praising how I've gotten it back in control since last year, more of a motivation session than a check up ;) lol
    But here's the thing, I know it can be a lot better(Indeed it has been) and I feel being praised for not yet even getting back to my previous level of control is a bit hollow :(.
    As a bit of background it is down from 11 in March 2011 but that was after a lay up due to a broken foot and in the meantime due that injury and an ongoing bout of unemployment my activity levels are much lower than they were and indeed should be.
    Personally I'd like to get back to @6.5 which is where I was prior to the injury and ''retiring'' from rugby.
    However, when I was discussing how to achieve this with my Endo while he was supportive of my intentions seemed more worried about switching my meds to Victoza at my next review?
    Now I only started on Janumet last August and am fairly happy with the regime so far and to be told 6 months in that the meds may be changed again has left me a little disconcerted to say the least.
    Its as if the effort regarding diet/activity is being disregarded in favour of the latest and greatest.

    Anyways its left me a little bewildered to say the least!

    I feel that a lot of medical professionals expect too little of us. Afterall, it's our quality of life they're messing with. I once had an endo tell me that I just needed 6 month motivational checkups because my HbA1c was 6.8%. A year before it had been 6.0% and I could see that it wasn't holding steady that over 2 years it have been increasing bit by bit. But the endo knew better so I left him. :D

    When I told another endo that I weighed my food to carb count she said "I couldn't expect you to do that" but yet she expected my to stuff my face with bananas as snacks while trying to lose weight!

    Some endos need to realise that we take our quality of life seriously!


  • Advertisement
  • Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    banie01 wrote: »
    Hiya folks,
    Just back from my endo and I'm a bit confused he reckons that my hba1c at 7.2(Type 2) is excellent(Which to me....It isn't).
    Also he was praising how I've gotten it back in control since last year, more of a motivation session than a check up ;) lol
    But here's the thing, I know it can be a lot better(Indeed it has been) and I feel being praised for not yet even getting back to my previous level of control is a bit hollow :(.
    As a bit of background it is down from 11 in March 2011 but that was after a lay up due to a broken foot and in the meantime due that injury and an ongoing bout of unemployment my activity levels are much lower than they were and indeed should be.
    Personally I'd like to get back to @6.5 which is where I was prior to the injury and ''retiring'' from rugby.
    However, when I was discussing how to achieve this with my Endo while he was supportive of my intentions seemed more worried about switching my meds to Victoza at my next review?
    Now I only started on Janumet last August and am fairly happy with the regime so far and to be told 6 months in that the meds may be changed again has left me a little disconcerted to say the least.
    Its as if the effort regarding diet/activity is being disregarded in favour of the latest and greatest.

    Anyways its left me a little bewildered to say the least!

    you have to remember - you're looking at your results from your own point of view, whereas your endo is looking at them compared to all of his other patients. He's got a much wider sample than you - so while your results are not the best that you ever got, they are probably a lot better than most of his other patients.


  • Registered Users, Registered Users 2 Posts: 7,604 ✭✭✭Meauldsegosha


    Had my checkup with the consultant yesterday, 6.9%. Really happy with that. I had a bad couple of months before Christmas when my levels kept going high but I've been strict with myself since then and it paid off.

    Have my name down for the DAFNE course as well. I think I deserve a treat so I'm going to have a couple of beers tonight. : )


  • Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    Argh - tried something in a supermarket yesterday and asked if it wss low GI as I am a type 1 diabetic , the tester said that I could not have it as it contains honey and that she knew as she is a nurse - what hope do we have if nurses do not have a clue.


  • Registered Users, Registered Users 2 Posts: 16,986 ✭✭✭✭banie01


    tbh wrote: »
    you have to remember - you're looking at your results from your own point of view, whereas your endo is looking at them compared to all of his other patients. He's got a much wider sample than you - so while your results are not the best that you ever got, they are probably a lot better than most of his other patients.

    That right there is a major part of my issue with the attitude of my Endo.
    I see my Endo privately every 6 months and its not a cheap visit :(
    I honestly feel that the least I can expect for parting with my cash is some personalised attention.

    The fact that compared to broader range of his patients I am outperforming perhaps a majority of them regarding my own control doesn't matter a jot to me really.
    While it may be statistacally relevant in a broader study of how his patients are performing,on a personal doctor/patient level it is just plain frustrating!
    I want to be supported in my efforts for achieving my targets....
    Not to be graded on a curve vis a vis the rest of his patient and plamaused as to my progress when in truth there was/is none as the previous spike was due to prolonged injury anyway.

    I know I'm a bit ranty here and a lot of the issue is due to workload and time constraints.
    But my Endo always takes the time to review my history, check my logs, question me and have a chat during each review.
    In fairness he never rushes and always takes time over his patients but to do that, to go the effort of building a relationship and then giving generic one size fits all treatment solutions just seems a waste of his time and my money.


  • Registered Users, Registered Users 2 Posts: 4,128 ✭✭✭cynder


    Well its my daughters 5 year anniversary of diagnoses today....

    shes gone horse riding for the day.


  • Moderators, Sports Moderators Posts: 25,241 Mod ✭✭✭✭CramCycle


    Just watching the first epoisode of Blue Bloods, good show, bad science.


  • Advertisement
  • Closed Accounts Posts: 1,620 ✭✭✭_AVALANCHE_


    CramCycle wrote: »
    Just watching the first epoisode of Blue Bloods, good show, bad science.
    Was that meant for here?


  • Moderators, Sports Moderators Posts: 25,241 Mod ✭✭✭✭CramCycle


    Was that meant for here?

    Indeed, Diabetic girl gets kidnapped, talk of insulin shock, she needs her insulin or she will die from insulin shock in 24 hours, it wasn't actually that bad, i was just tired and can't multitask, so maybe I misheard what they said.

    On a separate note had a horrific hypo about an hour ago, sort of concious but had a pretty vivid hallucination, but I was focused in it and was freaking out because I knew it wasn't right but I couldn't get out of it, pulled myself round in time to get to the ice cream my daughter left defrosting in the fridge. It had been there awhile, but it done the job.


  • Registered Users Posts: 2,655 ✭✭✭Royal Legend


    Hi,
    I was diagnosed with type 2 about one month ago. I had already changed my eating habits since the turn of the year, but the diagnosis has spurred me on again. Since Christmas I have lot about 2 stone, from 20.5/21 back to 18.5st.
    My blood sugar level at diagnosis was 21. With medication and watching what and when I eat, I am below 6 at times and usually not more than 9, some spikes now and again. I have cut out nearly all dairy, although I am starting to drink coffee made with milk in the evening, as I dont usually eat anything after 7pm, eating mostly rice, vegtables and fruit, potatoes now and again, red and white meat mixed into curried brown rice. Also eat breakfast in morning, usually porrige, sometimes muesli or wheatabix or a banana, curried rice or homemade veg soup in work at 10am and 1pm, dinner at 6pm.

    My question is, my bloods vary by about 4 points sometimes during the day, which bugs me, as sometimes I cannot see why they have raised. Also my GP told me to contact the diabetic clinic in our local regional hospital, when I rang them, they said there was a two year waiting list, what the hell is that about. So I find myself, trying to figure out how to beat or at least control my diabetes, without any help from my GP (he told me to read websites and refered me to a clinic that was taking any new patients for 2 years) or the diabetic clinic, has anyone any ideas how I can get proper advice?

    One positive note, I got my eyes tested as I was having issue reading books for the last couple of months, specsavers said my eyes were ok, but that i needed reading glasses, which i got and it helped me a lot as I work with computers everyday, But in the last week or so, I have noticed what I think is an improvement in my eyesight, and I dont use the glasses as much or feel the need to use them as much anymore :) Could this be down to an improvement in my blood sugars?


  • Registered Users Posts: 1,511 ✭✭✭SK1979


    Hey guys

    First post in here. I'm a type 1 diabetic since 2004. My clinic is in Beaumount and I've no complaints about it. I was there in January, but actually forgot to ask this but are people with Longterm Illnesses still being given a free GP card? I'm confused whether the government cancelled the scheme?

    If we are entitled to it, does anyone know when we might get it?

    Sorry if this has already been asked, did a quick search and couldn't find anything.

    Thanks in advance.


  • Registered Users, Registered Users 2 Posts: 7,458 ✭✭✭CathyMoran


    Argh - I lost my blood testing kit - I think that someone thought that it was a wallet. I am lucky that I have a spare but it is not as good. I carry mine with me everywhere, along with my insulin.


  • Advertisement
  • Registered Users, Registered Users 2 Posts: 7,604 ✭✭✭Meauldsegosha


    SK1979 wrote: »
    Hey guys

    First post in here. I'm a type 1 diabetic since 2004. My clinic is in Beaumount and I've no complaints about it. I was there in January, but actually forgot to ask this but are people with Longterm Illnesses still being given a free GP card? I'm confused whether the government cancelled the scheme?

    If we are entitled to it, does anyone know when we might get it?

    Sorry if this has already been asked, did a quick search and couldn't find anything.

    Thanks in advance.

    I think they are to begin rolling it out in March. Haven't read about it being cancelled. There was an article on diabetes.ie, can't access it on my phone though.


  • Registered Users, Registered Users 2 Posts: 19,218 ✭✭✭✭Bannasidhe


    Hi,
    I was diagnosed with type 2 about one month ago. I had already changed my eating habits since the turn of the year, but the diagnosis has spurred me on again. Since Christmas I have lot about 2 stone, from 20.5/21 back to 18.5st.
    My blood sugar level at diagnosis was 21. With medication and watching what and when I eat, I am below 6 at times and usually not more than 9, some spikes now and again. I have cut out nearly all dairy, although I am starting to drink coffee made with milk in the evening, as I dont usually eat anything after 7pm, eating mostly rice, vegtables and fruit, potatoes now and again, red and white meat mixed into curried brown rice. Also eat breakfast in morning, usually porrige, sometimes muesli or wheatabix or a banana, curried rice or homemade veg soup in work at 10am and 1pm, dinner at 6pm.

    My question is, my bloods vary by about 4 points sometimes during the day, which bugs me, as sometimes I cannot see why they have raised. Also my GP told me to contact the diabetic clinic in our local regional hospital, when I rang them, they said there was a two year waiting list, what the hell is that about. So I find myself, trying to figure out how to beat or at least control my diabetes, without any help from my GP (he told me to read websites and refered me to a clinic that was taking any new patients for 2 years) or the diabetic clinic, has anyone any ideas how I can get proper advice?

    One positive note, I got my eyes tested as I was having issue reading books for the last couple of months, specsavers said my eyes were ok, but that i needed reading glasses, which i got and it helped me a lot as I work with computers everyday, But in the last week or so, I have noticed what I think is an improvement in my eyesight, and I dont use the glasses as much or feel the need to use them as much anymore :) Could this be down to an improvement in my blood sugars?

    I was diagnosed back in 99 in Sydney and for years had my type 2 so under control that I was considered 'cured'. However after a serious operation 3 years ago followed by an (stupid on my part) incident that had me back in the hospital a week later it appears my diabetes came back with a wallop. But, as I was deemed 'cured' I no longer had a glucose monitor or way of checking it.

    Long story short, this time last year my GP ran checks and my blood sugars were averaging 21. He applied then to get me into a Diabetes clinic - we are still waiting.

    After much experimentation with meds we have it under control now (9 would be a very high score for me) - I am on a combination of diamicron and victoza. Originally it was 4 diamicron in the morning and 0.6 ml of victoza in the evening but I did notice the diamicron had a very negative impact on my eyesight. It does state in the leaflet that it can affect your eyes in the short-term but for 8 months for at least 2 hours everyday after taking it it was like I was wearing Mr Magoo's glasses. It was horrible and scary. Normally I don't wear glasses at all, even for reading, and in eye tests everything was ok.

    About 2 months ago I insisted on reducing the diamicron as it was making life very difficult - since he reduced the diamicron to 2 and increased the victoza to 1.2 ml I still have some eye issues in the morning but nothing like before.

    It could be the meds affecting your eyes.

    As for the Diabetes Clinic....don't hold your breath I'm afraid. A year in and the only medical care I have received is from my GP - no sign of me seeing an endo or attending a clinic in the near future.


  • Registered Users Posts: 2,655 ✭✭✭Royal Legend


    Bannasidhe wrote: »
    I was diagnosed back in 99 in Sydney and for years had my type 2 so under control that I was considered 'cured'. However after a serious operation 3 years ago followed by an (stupid on my part) incident that had me back in the hospital a week later it appears my diabetes came back with a wallop. But, as I was deemed 'cured' I no longer had a glucose monitor or way of checking it.

    Long story short, this time last year my GP ran checks and my blood sugars were averaging 21. He applied then to get me into a Diabetes clinic - we are still waiting.

    After much experimentation with meds we have it under control now (9 would be a very high score for me) - I am on a combination of diamicron and victoza. Originally it was 4 diamicron in the morning and 0.6 ml of victoza in the evening but I did notice the diamicron had a very negative impact on my eyesight. It does state in the leaflet that it can affect your eyes in the short-term but for 8 months for at least 2 hours everyday after taking it it was like I was wearing Mr Magoo's glasses. It was horrible and scary. Normally I don't wear glasses at all, even for reading, and in eye tests everything was ok.

    About 2 months ago I insisted on reducing the diamicron as it was making life very difficult - since he reduced the diamicron to 2 and increased the victoza to 1.2 ml I still have some eye issues in the morning but nothing like before.

    It could be the meds affecting your eyes.

    As for the Diabetes Clinic....don't hold your breath I'm afraid. A year in and the only medical care I have received is from my GP - no sign of me seeing an endo or attending a clinic in the near future.

    I find the clinic thing amazing, my GP is about as much use as a chocolate teapot in the sahara, his answer is to ask me to look up the same websites I would be looking at anyway.
    My eye issues were especially problematic in the mornings, hazy and blurry, this was before I was diagnosed and before medication. With my bloods a bit better, my eyes seem a bit better as well. I am on 500mg of glucophage x 2 per day at present.

    What do people think about the Newcastle diet, I read the comments earlier about the sugar level, surely you would have to have a competant GP who fully understood diabetes to even try it? Also did these patients takes their meds while doing the trial or do they drop using meds for the 8 weeks?


  • Registered Users Posts: 2,655 ✭✭✭Royal Legend


    Bannasidhe wrote: »
    I was diagnosed back in 99 in Sydney and for years had my type 2 so under control that I was considered 'cured'. However after a serious operation 3 years ago followed by an (stupid on my part) incident that had me back in the hospital a week later it appears my diabetes came back with a wallop. But, as I was deemed 'cured' I no longer had a glucose monitor or way of checking it.

    Long story short, this time last year my GP ran checks and my blood sugars were averaging 21. He applied then to get me into a Diabetes clinic - we are still waiting.

    After much experimentation with meds we have it under control now (9 would be a very high score for me) - I am on a combination of diamicron and victoza. Originally it was 4 diamicron in the morning and 0.6 ml of victoza in the evening but I did notice the diamicron had a very negative impact on my eyesight. It does state in the leaflet that it can affect your eyes in the short-term but for 8 months for at least 2 hours everyday after taking it it was like I was wearing Mr Magoo's glasses. It was horrible and scary. Normally I don't wear glasses at all, even for reading, and in eye tests everything was ok.

    About 2 months ago I insisted on reducing the diamicron as it was making life very difficult - since he reduced the diamicron to 2 and increased the victoza to 1.2 ml I still have some eye issues in the morning but nothing like before.

    It could be the meds affecting your eyes.

    As for the Diabetes Clinic....don't hold your breath I'm afraid. A year in and the only medical care I have received is from my GP - no sign of me seeing an endo or attending a clinic in the near future.

    I find the clinic thing amazing, my GP is about as much use as a chocolate teapot in the sahara, his answer is to ask me to look up the same websites I would be looking at anyway.
    My eye issues were especially problematic in the mornings, hazy and blurry, this was before I was diagnosed and before medication. With my bloods a bit better, my eyes seem a bit better as well. I am on 500mg of glucophage x 2 per day at present.

    What do people think about the Newcastle diet, I read the comments earlier about the sugar level, surely you would have to have a competant GP who fully understood diabetes to even try it? Also did these patients takes their meds while doing the trial or do they drop using meds for the 8 weeks?


  • Registered Users, Registered Users 2 Posts: 19,218 ✭✭✭✭Bannasidhe


    I find the clinic thing amazing, my GP is about as much use as a chocolate teapot in the sahara, his answer is to ask me to look up the same websites I would be looking at anyway.
    My eye issues were especially problematic in the mornings, hazy and blurry, this was before I was diagnosed and before medication. With my bloods a bit better, my eyes seem a bit better as well. I am on 500mg of glucophage x 2 per day at present.

    What do people think about the Newcastle diet, I read the comments earlier about the sugar level, surely you would have to have a competant GP who fully understood diabetes to even try it? Also did these patients takes their meds while doing the trial or do they drop using meds for the 8 weeks?

    I found that in Oz they prefer people to try the controlled diet option rather then go straight on to meds which seems to be the preferred option here- my sister wasn't given the choice.
    Type 2 runs in my father's side of the family - something that was discovered in 1962 when my aunt died due to complications from it, my grandmother also died from complications in the 1973. My father was diagnosed in 1979 and his brother in 1984 so we are pretty experienced with it as a family.

    My GP in Sydney was excellent and put me on a very controlled diet but nothing as extreme as the Newcastle diet and until 2009 it seemed as if I was 'cured' but then due to the physical stress of an unrelated medical condition which required surgery (and lots of morphine and hospital stays every month for 6 months) it came back with a vengeance and resisted treatment for months.

    We have had the same family GP in Cork for 30 years and he knows his stuff but due to the insane waiting lists to get access to consultants and clinics he was put to the pin of his collar devising a treatment plan for me.

    I did laugh at the announcement of the recent campaign to get people to have themselves checked for diabetes - funny how they never mentioned that once diagnosed there is little or no follow up due to cutbacks. :rolleyes:


  • Registered Users Posts: 2,655 ✭✭✭Royal Legend


    Mr Reilly is a pompous clown. I have no doubt there is waste in the HSE, but his solution is to cut everywhere, I would imagine with the idea that the health boards will get their act together and sort out and put their own house in order, which is highly unlikely as it appears to be full of a) incompetant people and b) staff that either have a handy number or dont give a damn.
    I did a course last year with a guy who did some consultancy for the one of the health boards and he met a person, fully employed and pensioned by the HSE, who did nothing, and who was PROUD to tell people that they had a job that they actually did not have to do anything, and this person actually done nothing, but was still pulling a wage every week. I have met people in the public sector who hate their jobs! Howcan you hae your job and then do it properly???


  • Closed Accounts Posts: 1,620 ✭✭✭_AVALANCHE_



    What do people think about the Newcastle diet, I read the comments earlier about the sugar level, surely you would have to have a competant GP who fully understood diabetes to even try it? Also did these patients takes their meds while doing the trial or do they drop using meds for the 8 weeks?
    My Aunty is doing it at the minute, she asked her Doc was it OK for her before hand, he just said fire away.:rolleyes:

    She lost a stone in the first 3 weeks, on week 4 at the minute, sugar levels from finger prick machine are staying in the 5-9 range...she wasn't type 2 for very long before hand.

    I've been at her to go in and get blood pressure/cholesterol and those types of things checked as from my reading of the diet, these can go right out of whack.

    The Doctor-info sheet says...
    Medication
    a) Sulphonylureas. These agents can be withdrawn with benefit in order to ensure that hypoglycaemia cannot occur.
    b) Insulin. At the time of commencement of decreasing food intake, insulin dose in type 2 diabetes may be substantially decreased, and advice to cut insulin dose by approximately 50% is appropriate. Monitoring of blood glucose must be done daily with a plan to contact appropriate healthcare professional if blood glucose levels become very high (fasting over 10mmol per litre) or very low.
    c) Other Medication. All other oral hypoglycaemic agents can be decreased or stopped in accordance with degree of control achieved.
    that meds can be stopped, Aunt is staying on them unless levels drop down around 4.

    http://en.wikipedia.org/wiki/Ketogenic_diet has good bit of info and leads.


  • Closed Accounts Posts: 2 dbtyp1


    tbh wrote: »
    WOAH!

    Sir - or Madam - You win. You definitely win. No longlasting damage I hope?

    In the true spirit of internet one-upmanship.......... was feeling a bit off for a day or two and ended up in the ER. Passed out - came around with that distinct feeling of being surrounded by muppets.

    "This is diabetes" says i
    "Oh noes " , " you are too thin for that" says the doctor
    muppet alert
    "This is diabetes" says i
    "What are you basing it on"
    "Cant see properly , am dying , pls check my blood , "
    "I did,its ok " said the doc
    "I'll check it myself" said the nurse - "Its 98" - "you have diabetes ok"
    more or less meaningless to me at the time.... might have as well been 45 squirrells over 9 badgers
    shed load of insulin and top care by the girls of ICU and back in action

    tl;dr cept for sharp nurse wouldn't be here


  • Closed Accounts Posts: 1,620 ✭✭✭_AVALANCHE_


    dbtyp1 wrote: »
    muppet alert
    :pac:


  • Registered Users Posts: 2,655 ✭✭✭Royal Legend


    Who sells Optifast in Ireland?


  • Advertisement
Advertisement