[Diabetes] General Chat and Support Thread

triona1

While there a few people still posting i have a question.
The skin on my son's feet peel all the time,I keep forgetting to say it to the nurses i dry them for him after his shower or bath to make sure they are bone dry,and also blow dry just cause it makes him laugh.I put vaseline on them then cotton sock's so he does not slip and he takes socks of going to bed,Does this happen anyone else.

CathyMoran

triona1 wrote: »

T1 Actually just saw smccarrick post on glass vials,Now you think your silly for locking your sharps box eurovisionmad.My son is 4 years ty1 so how do you dispose of the insulin in a vial if its been open/used up to the 5-6 week opened date.My son would never go through a full vial and he is on 3 injections a day.Do you just stick it in the sharps box,I'm very careful about what i'd pour down the sink.

Hope that you do not mind me asking but do they still not use the pen for younger people. The pen is great.

triona1

No Cathy i have a pen lying around the house as my husbands cousin is type1 so i taught that also we just tried to leave it about the house so he could see it and pick it up and be familar with it,he will not use a pen and i have had it here 3 years just so he could see(empty).And he is a no no for pump.

robinph

I'll be on telly on Sunday morning...

...well me and 35,000+ other people doing the London Marathon.



I'll not be breaking any world records, but I do plan on finishing around about 2:55'ish so should be whilst the program is still on BBC1.

Sorry to say that I'll not be making a fool of myself in a fancy dress outfit though.

sunbabe08

hi, diagnosed 2 years ago. had a idiotic doctor who i went to 4 times with vertigo and being tired all the time and no once did he do a blood test, thank god for my mum, because my mum brought me to another doctor, had no energy to think, so going to another doctor wasn't even thought, he did all the test and was in hospital within a week. 2 years down the road and i feel totally normal again. thank god.

only after seeing this thread.


there was a diabetes seminar in mahon point today. karl henry was there from operation transformation. could listen to him all day. very reassuring and very informative.

Eurovisionmad

Type 1 people! I'm just curious, what's your typical insulin . . . regime I suppose is the word, I know it varys from day to day but on a typical day what brands of insulin do you take and how many units?

graflynn

Eurovisionmad wrote: »

Type 1 people! I'm just curious, what's your typical insulin . . . regime I suppose is the word, I know it varys from day to day but on a typical day what brands of insulin do you take and how many units?

Novarapid (a fast acting insulin which starts working within about 5 mins, peaks in 2 hours and lasts about 4 hours).

My total daily dose from 30 to 35 units - depends on how indulgent I'm feeling:-)

The_Conductor

My little wifey takes 8 or 9 units of Lantus at night (depending on the GI of her evening carbs) along with between 40 and 60 units of Novorapid during the day (depending on what she eats- which more often than not isn't a hell of a lot!). More novorapid and less lantus means that she has a lot more flexibility over what she eats- but also monitors a lot more closely, as its very very easy to get the dose wrong (particularly as a lot of the packaging and advisory notices for foods are often totally bizarrely wrong).

cynder

12 year old daughter takes 56 units if humulin m3 at 8am. 25 humulin s at 6pm and 27 humulin I at 9pm.

Meauldsegosha

I take between 10 and 14 units of novarapid during the day, depends on what I'm eating and how much. 22 units of lantus at night.

calfmuscle

I'm on 23.5 units of apidra as background/basal at the minute although its normally 20 units. I have had to put it up as Im recovering from a fracture and have lots my fitness and gained in fattness.

During the day I take 20 - 30 units depending on how much I eat

Eurovisionmad

I forgot to say my own, I'm still only sort of figuring out what works for me though! I normally take 30 units of NovoRapid during the day (dived into 10/10/10 at the moment) and 16 units of Lantus at night.

CathyMoran

T1 My darling hubby is a bit wrong at the moment. I take 7-8 lantus and less than 20 novorapid...I am not eating much as he is in hospital at the moment

gerrybbadd

I was treated as T1 for 12 months before they realised I was T2.

I take 14 units of Lantus in the morning, and 44 in the evening.

I need a bucketload of novorapid in the morning too (my ratio is set at 3 units to 1 Cp, but with corrective doses taken, my ratio is over 8 to 1).

Otherwise, i've to take 2 units of Novorapid for every 10grams of carbs.

mike65

Eurovisionmad wrote: »

Type 1 people! I'm just curious, what's your typical insulin . . . regime I suppose is the word, I know it varys from day to day but on a typical day what brands of insulin do you take and how many units?

Levemir 24 units at night
Novorapid typically 6-8 units per meal .

MUSEIST

I am on lantus (22-24 units) at night and novarapid (8-14 per meal usually). I have been on this regimen for years now and works very nicely:)

The_Conductor

robinph wrote: »

I'll be on telly on Sunday morning...

...well me and 35,000+ other people doing the London Marathon.

How did the marathon go Robin? Hope you did yourself proud.

Best wishes,

S.

robinph

smccarrick wrote: »

robinph wrote: »

I'll be on telly on Sunday morning...

...well me and 35,000+ other people doing the London Marathon.

How did the marathon go Robin? Hope you did yourself proud.

Best wishes,

S.

Ow.

It hurt a lot. Did 3:08 so still got a qualifying time for the Good For Age category next year, but it was a way off what I wanted and should be capable of.

BC

Lantus at midday- 24 units.
Novorapid - 3 injections totalling 21/22 units usually.

Congrats on the marathon robinph!

The_Conductor

robinph wrote: »

Ow.

It hurt a lot. Did 3:08 so still got a qualifying time for the Good For Age category next year, but it was a way off what I wanted and should be capable of.

3:08 - thats incredible! Well done!

robinph

I take about 50-60 units a day according to the log on my pump, with the basal being about 16 units and the rest as many boluses.

CramCycle

Depends on the time of the year:

Winter/Spring 24 Lantus and anywhere between 50 and 100 novorapid.

Summer/Autumn: 20 lantus and 25 - 50 novorapid

I vary my novorapid quite alot as my day to day routine is rarely constant.

cynder

Have to bring my lady to the gp, she cut her finger yesterday and this mornings it's all swollen and infected he has green stuff coming out of it.


Also her eyesight is getting worse she sits at the back of class and can't see the writing on the blackboard it's blurred. Think she is going short sighted, this was picked up on a few months ago at her eye exam but at the time it was mild and we were told to bring her in for a test if it gets worst..

Albection

Type 1.

Average about 45-55 units a day on the pump. Novorapid btw.

CramCycle

Anyone see the news today about funding for type 1 patients. It started trending on Twitter by DiabetesUK retweeting a commment about if funding was better channeled there would be less complications later on in life, as well as lots of comments on Diabetes and depression.

Low and behold it was on the news about visible symptoms for T1 diagnosis in young people hours later.

Albection

CramCycle wrote: »

Depends on the time of the year:

Winter/Spring 24 Lantus and anywhere between 50 and 100 novorapid.

Summer/Autumn: 20 lantus and 25 - 50 novorapid

I vary my novorapid quite alot as my day to day routine is rarely constant.

Going to assume that's exercise related variance?

That's quite an effect Novorapid wise, if so.

_AVALANCHE_

robinph wrote: »

Ow.

It hurt a lot. Did 3:08 so still got a qualifying time for the Good For Age category next year, but it was a way off what I wanted and should be capable of.

Woman died with a mile to go this year. This sudden cardiac arrest (assuming it's the cause) is getting frighteningly common.

CramCycle

Albection wrote: »

Going to assume that's exercise related variance?

That's quite an effect Novorapid wise, if so.

It is indeed, on the days where I am participating in distances over 200km my novorapid will drop to less than 5units/24hours, I only have to start increasing it in multi-day events where my body starts to get tired and attempts to make me sleep through whatever dirty tricks it can manage.

I will have a trickle on effect of 1-2 days of only max 20 units and then back to my normal 30 approx units/day during the summer.

The high levels of Novorapid are only really about when I am off my bike for prolonged periods, usually during the winter where commuting is my only excercise.

Eurovisionmad

Does anyone have any experience of the diabetes services in the CUH? I'm currently with the Bons but would probably eventually change from private to the public system so I'm curious what people think of the CUH services.

mike65

_AVALANCHE_ wrote: »

Woman died with a mile to go this year. This sudden cardiac arrest (assuming it's the cause) is getting frighteningly common.

About 30,000 people run the London marathon, not all of them are as fit and healthy as they think naturally enough. That only one person dropped dead is the surprise

scarymoon1

Does anyone find that say 2 hours after eating blood sugar can be fine then another hour later it starts to creep up later? I'm always taking corrective doses last night at 3am I was 5.6 then at 8am I was 12!!! Dawn phenomenon I guess. Finding it do hard to control my diabetes lately.

mike65

Testing at 3 am? :eek: was that a one off?

What is your insulin regime? - types and times

scarymoon1

mike65 wrote: »

Testing at 3 am? :eek: was that a one off?

What is your insulin regime? - types and times[/QUOTE

if I wake up I check it. I'm probably eating too much as I'm constantly hungry lately but I'd have 4 units at breakfast if blood is normal, 4 at 11, 6 at lunch and usually 6 at dinner. I might have cereal before bed, which I am now and my blood was 11 so I took 8 units as I know if will probably creep up later too. I take 12 units of lantus. I did the Berger course but I still get the highs.

Redmal

I suffered with the same problem. Initially it was thought that I may have been having mini hypos at night time but the 3am checks proved otherwise. I was told that it's basically hormones that make it creep up like that. I was put on a long lasting insulin to take just before bed and I haven't had a problem since. You really need to speak to your diabetes nurse or to a doctor at your next visit about getting this controlled. You may not need the long lasting insulin, you may just need the stuff you're on at the moment tweaked a bit, but it's worth the chat with someone just for a bit of clarification.

I know from experience that it can be totally disheartening to feel like you are doing everything right but things still don't seem to work out for you. I used to avoid checking my sugars because I knew that they would be high and this just made things a whole lot worse! Hopefully you'll get it sorted

Edit: Sorry just realised that you are on a long lasting insulin. You may need to take more, but you really need to speak to someone.

gerrybbadd

I get the huge rises in blood glucose too, I go to bed fine, and wake up in the 11s, every day. Its a pain to say the least, cos I spend the day worrying about it, and have to correct again at half 11 too.

mike65

I'd increase the long acting insulin by 2 units every 48 hours without changing anything else.

That said, cereal for late supper is probably not the best thing even with an intake of quick acting insulin, it best to go to bed knowing your blood sugar level is basically "static".

cynder

CramCycle wrote: »

Anyone see the news today about funding for type 1 patients. It started trending on Twitter by DiabetesUK retweeting a commment about if funding was better channeled there would be less complications later on in life, as well as lots of comments on Diabetes and depression.

Low and behold it was on the news about visible symptoms for T1 diagnosis in young people hours later.

Didn't see it but that would make sense.

scarymoon1

I'm going to my consultant in a few weeks so il mention it. The problem with me is I always seem to be hungry, I'm not overweight or anything, and usually have a snack before bed with insulin. That usually means its not static when I'm going to bed, and I don't know sometimes whether it's going up or down.

CathyMoran

scarymoon1 wrote: »

I'm going to my consultant in a few weeks so il mention it. The problem with me is I always seem to be hungry, I'm not overweight or anything, and usually have a snack before bed with insulin. That usually means its not static when I'm going to bed, and I don't know sometimes whether it's going up or down.

T1 Eat more earlier. You are a diabetic now - you have things that you have to do to stay healthy. Test more often too.

ureds

Some of The Mayo Parents Support Group who took part in todays West of Ireland Mini-Marathon in Castlebar.



https://www.facebook.com/MayoParentsSupportGroup

BlackEdelweiss

I am nearly 100% sure I had my flu jab this winter but I am now in the middle of my 2nd flu in 2 months. How can this be and is it really bad for me to have the flu? This is the worst one I have had in years and unfortunately I have the first of my final exams on Thursday morning and at this stage I can hardly stand up let alone read. I am typing this in a brief moment of clarity. My blood is also really high, 24.5, all I have eaten today is a bowl of special k and some chicken soup my wife made for dinner. I have been eating sugar free strepsils and the odd lemsip. My whole body is aching and injecting yourself into aching limbs is not plesant either. To make things even worse my wife has it aswell and 3 of the kids had it last week and they are still not all over it. "Week from hell" has taken on a whole new meaning.

sunbabe08

i got the flu jab last year in october, for one month afterwards i was sick with viral infection, got a cold and an ear infection and in january i was sick with flu like symptoms. never again am i getting the flu jab.


i'm currently weary of a former blister that burst at the start of the week, i went to the doctor with it, because it was poised. they gave me plenty of plasters to cover it up. and also medication. and i'm checking it every morning. at least the swelling and infection is coming down.

_AVALANCHE_

Flu Jab? That's what your immune system is for.

Also, what sort of preservative/extras is in them nowadays?

sunbabe08

i was told after i was diagnosed with diabetes it would be a great idea to get the flu jab. :rolleyes: i got it last year because i got bronchitis and pleurisy and collapsed lung, all from a allergic reaction to a new tablet for my blood pressure. so i thought it would be best to the flu job. bah

The_Conductor

sunbabe08 wrote: »

i was told after i was diagnosed with diabetes it would be a great idea to get the flu jab. :rolleyes: i got it last year because i got bronchitis and pleurisy and collapsed lung, all from a allergic reaction to a new tablet for my blood pressure.

The flu jab is an attenuated (non-live) version of a number of different flu virus that are out in the wild. If you've experienced bronchitis, pleurisy and collapsed lungs- imagine how you'd feel if you had the misfortune to get the real flu- as opposed to the flu jab. Its not unusual to get some side effects when you get the flu jab- but the side effects tend to be a whole lot less serious, particularly for immuno-compromised people, than would the effects of getting the live virus if encountered in the wild.

If you are experiencing issues such as pleurisy/collapsed lungs etc- perhaps you should sit down and have a discussion with your consultant on a different treatment regime?

Its dangerous to decide on the basis of one vaccination that you're not going to get it in future- and this is also something you need to discuss with your consultant. There are always going to be viruses out there in the wild- you are going to encounter them no-matter what so do- the implications of not having some residual protection or vaccination against them- particularly given your immuno-compromised state- could be very very serious. You *need* to discuss this with your consultant.

CathyMoran

I get the flu jab every year after getting a really bad flu the year before. Yes you can still get other flu as they do not protect you against all strains but at least you have a better chance. I have the flu at the moment by the way!

sunbabe08

smccarrick wrote: »

The flu jab is an attenuated (non-live) version of a number of different flu virus that are out in the wild. If you've experienced bronchitis, pleurisy and collapsed lungs- imagine how you'd feel if you had the misfortune to get the real flu- as opposed to the flu jab. Its not unusual to get some side effects when you get the flu jab- but the side effects tend to be a whole lot less serious, particularly for immuno-compromised people, than would the effects of getting the live virus if encountered in the wild.

If you are experiencing issues such as pleurisy/collapsed lungs etc- perhaps you should sit down and have a discussion with your consultant on a different treatment regime?

Its dangerous to decide on the basis of one vaccination that you're not going to get it in future- and this is also something you need to discuss with your consultant. There are always going to be viruses out there in the wild- you are going to encounter them no-matter what so do- the implications of not having some residual protection or vaccination against them- particularly given your immuno-compromised state- could be very very serious. You *need* to discuss this with your consultant.

experience issues of pleurisy/collapsed lung because i got a allergic reaction to a tablet. of course i'm gonna have to discuss it. i have no other choice but to discuss it with him.

Alanstrainor

Alanstrainor wrote: »

Should have my new pump in a 2 weeks or so. At long last!

Only got it by going directly to the HSE myself. After 8 months of nothing from Vincents private. I insisted they give me a number for someone in the HSE who deals with it. Got talking to the Appliance officer. Explained the situation, he said sorry and that i'd have a new pump in 2 weeks...no joke, no word of a lie. All it took was a 2 minute phone call to the right person.

Alanstrainor wrote: »

Well my insulin pump broke yesterday morning! And to make matters worse its out of warranty. Minimed are sending me a temporary pump to do me over for 3 months, bit after that I don't know what's going to happen. I've been on to my diabetic consultant so I'll just have to see what happens really.
This is my second pump that went belly up. I'm actually using my old one that's a bit dodgey at the minute. Here's hoping it holds up!

So guys, finally got my new pump on Friday, only took ten months...

Glad I have it all the same, slightly disappointed that it's an old model minimed pump and not the latest and greatest. But hey, what can I expect, they went for the cheapest option.

purplestar1986

Hi. Just wondering if anyone is on Metformin, having pains in their muscles, tingling and numbness in their hands and feet and been told they're lacking in vitamin b12? My partner was diagnosed with diabetes at the beginning of last July (they still don't know what type) and has been on Metformin since the beginning, aswell as Novorapid and Levemir and a triail of Vicotza that didn't go too well but has been in an awful amount of pain since the end of July and only recently we figured out it's because she's lacking in b12 - she's getting injections every 3 days to boost it back up.

Just wondering if anyone else has these pains aswell as lacking B12 while taking Metformin?

RobbingBandit

I have been going through some issues for the last year now and some time ago made the stupid decision to stop taking my meds. I am on diamicron, victoza, januvia and Coversyl Arginine 5mg.

I was with my GP on Tuesday who convinced me to start taking all again as when she tested my bloods it was 22.8 mmol/L and rose to 28.2 mmol/L. I have it back down to 12.5 today but am now concerned what type of damage I have done to myself.