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MS and Avonex

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  • 11-06-2011 8:24pm
    #1
    fergal.b
    Moderators, Motoring & Transport Moderators, Sports Moderators Posts: 6,327 Mod ✭✭✭✭


    Hi guy's/girls my wife was put on Avonex a few months ago and is still getting bad side effects, has anyone been on this long term and how are they getting on. I know that everyone is different and some don't have side effects as bad, she was on rebif and it was not as bad as the Avonex so I would just like to know are others getting on.
    Thanks


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    #2
    byhookorbycrook
    Moderators, Education Moderators, Regional South East Moderators Posts: 12,498 Mod ✭✭✭✭byhookorbycrook


    What kind of side effects?Was on it a good while but started relapsing so am now on Tysabri.


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    #3
    fergal.b
    Moderators, Motoring & Transport Moderators, Sports Moderators Posts: 6,327 Mod ✭✭✭✭fergal.b


    byhookorbycrook wrote: »
    What kind of side effects?Was on it a good while but started relapsing so am now on Tysabri.

    A lot of flu like symptoms, bad headache, night tremors and sweats and basically the next day is taken out of the week.


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    #4
    byhookorbycrook
    Moderators, Education Moderators, Regional South East Moderators Posts: 12,498 Mod ✭✭✭✭byhookorbycrook


    Does she take paracetemol before she injects?A chillow is good for the sweats. http://www.chillow.co.uk/2010/template/
    It should ease off somewhat as she gets more used to it.


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    #5
    fergal.b
    Moderators, Motoring & Transport Moderators, Sports Moderators Posts: 6,327 Mod ✭✭✭✭fergal.b


    Thanks bhobc, yes she is on the paracetamol and cool pads I guess she will just have to put up with for a bit longer "poor girl" and hope it improves.
    I hope your relapse wasn't too bad for you and that the tysabri works.


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    #6
    femur61
    Registered Users Posts: 1,588 ✭✭✭femur61


    I am betaferon 10+ now and still take paracetomal/neurofen prior to injection. I may have to take some the next day but always before. Try neurofen, just make sure always take with food. I have checked numerous times it is fine to take long term but make sure always on a full stomach.


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    #7
    barrackali
    Registered Users Posts: 425 ✭✭barrackali


    I was diagnosed with MS in September 2001, I've gone through A-Z of the treatments/therapys for MS....I really had a bad time with Avonex. I took it for 4 months and then my neuro took me off it, very bad side effects. I just felt weaker and sicker on the drug than without it.


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    #8
    byhookorbycrook
    Moderators, Education Moderators, Regional South East Moderators Posts: 12,498 Mod ✭✭✭✭byhookorbycrook


    Barrackali, have you tried Tysabri?


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    #9
    barrackali
    Registered Users Posts: 425 ✭✭barrackali


    I was on tysabri for 5 months, I felt quite ill during the infusions...but I ignored it. 5 months down the line I could barely see out of my eyes they were that swollen....basically I was found to be allergic to the drug.

    Now I've been referred to Dr Niall Tubridy (yeah Ryan's brother) in Vincents, I will see how that goes.


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    #10
    byhookorbycrook
    Moderators, Education Moderators, Regional South East Moderators Posts: 12,498 Mod ✭✭✭✭byhookorbycrook


    oh hell, you have it rough. What about LDN?Hope you get sorted, Vincent's has a great name neuro-wise.


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