Napro experiences

barbiegirl

Well my laparoscopy and hysteroscopy is booked in for Wednesday. Wasn't expecting it so soon and more than a bit nervous about it. I'm not so good with pain, I know, I know and I'm trying to have a baby ;-)

Anyway I guess we'll be one step closer on Thursday. We should have all our ducks in a row for next appointment with Dr. Boyle at the end of July, and fingers crossed get some magic pills and the go ahead to start trying with a successful result

iguana

Good luck barbiegirl. The healing from a laparoscopy is painful but it's not awful either. If you can, it's a good idea to have help for a few days when you come home as you may need some bed rest. My husband needed to be in work on some of the days following mine so my parents came to stay with me for the first few days to help out. I'd also suggest having some soft pillows on hand as they are good to cuddle to your tummy at night. Tbh I found it more exhausting than painful, so be sure you can get lots of rest.

It's also a good idea to make sure that for the first week or two you aren't the one responsible for walking your dogs. I was able to walk mine about 6 days after the surgery but that's only because I didn't need to put them on a lead. If I'd needed to leash them, I'd have arranged a dog walker or my husband would have done it before work.

barbiegirl

iguana wrote: »

It's also a good idea to make sure that for the first week or two you aren't the one responsible for walking your dogs. I was able to walk mine about 6 days after the surgery but that's only because I didn't need to put them on a lead. If I'd needed to leash them, I'd have arranged a dog walker or my husband would have done it before work.

Thanks Iguana, my brother and his girlfriend are staying with us at the moment so I'll ask him for a handout with the dogs, when the hubbie can't do it of course. He's getting free bed and board so the least he can do

I'm sure I'll be ok. I'll have all my dresses that don't require anything tight on the middle ironed and ready for wear. I always hate ops.

bubbaloo

That's great news barbiegirl.
The lap itself is a fairly easy procedure - you will be knocked out so you'll have a lovely sleep! Once the surgeon has finished all her surgery for the day she will come and talk to you. In the meantime the nurses will look after you well. Unless there are any kind of complications you should be able to travel home that evening. The recovery should take about a week - you will have a few little stitches in your belly button (and maybe a few a bit further down too) - your GP can take them out after a week. Also, you will probably have bad shoulder pain for a few days but this is just trapped gas (they use gas to expand your stomach so they can see inside) - the best way to get rid of it is to move around, even though that's the last thing you'll feel like doing. Fingers crossed they find something and fix it and you'll be back in the saddle in no time! .
Best of luck.

iguana

Good luck tomorrow barbiegirl. I'll be keeping my fingers crossed for you.

barbiegirl

I'm back, not too sore or tired but i guess very heart sad. Both tubes are blocked by the endo so it looks like IVF is now our only option. Need to get our heads and hearts around this news first before we do anything. :-( Looks like Napro won't be for us after all

bubbaloo

Oh Barbiegirl - sorry to hear that but don't be too hasty in your decisions. Did the surgeon specifically say that IVF is the only option? I'm sure I have heard of tubes being cleared before. Maybe talk to Napro and see what the options are? At least you know now why you haven't been successful up to now - some people never get an answer so for now, you can make informed decisions and you know what you're up against. Best of luck to you.

iguana

I'm sorry you got bad news barbiegirl but as bubaloo said, at least now you know what is wrong. Up until a few months ago you were being fobbed off when you asked about the possibility of having endo. You could have gone on for a lot longer not knowing what was wrong or what the rights steps to take were. From here on out you can work out a treatment plan specific to your condition.

And just remember, even though it's not the news you were hoping for, the situation is far from hopeless. My sister in law had a similar diagnosis to yours, I'm not sure if they could remove the endo or not, but she did decide to go with IVF and she now has a 4 week old twin son and daughter. You might have to adjust to following a different path to the one you were on but that doesn't mean you won't end up with what you want in the end.

barbiegirl

Thanks guys. He tried to clear the tubes there and then and couldn't plus the right tube is hard and squiggly not healthy at all. I'll talk to our napro nurse next visit and go from there. We'll see and have a chat about ivf when i'm healed up. I think it is next step at least 1 go anyway.

bubbaloo

Well I forgot to add that my sister lost a tube to endo some years ago and she did IVF and now has a two year old little beauty! It happens!

LegacyUser

hi girls. i am new to naprov. me and my hubby have been try over a year. we going to naprov in galway i done some blood tests our next app is on 17 sep.

hungry123

Hi
I am new to naprotechnology too. Have gone to teacher three times,fifty euro a pop seems dear to me?

barbiegirl

Really taking into account all the costs associated with TTC the €50 isn't much in my opinion. It certainly saves on doctors appointments which are €100-€200 for fertility specialists.
Also don't forget 20% of all your medical expenses can be reclaimed at the end of the year.

hungry123

I know what you are saying but is it necessary to keep seeing instructors? Have gone three times and feel like I know what I am doing.

bubbaloo

I've been trying to word this for the past 4 weeks but there is no easy way to say it. We lost our bubba. We went for our 13 week scan to be told there was no heartbeat. Yesterday we named him and buried him in the ground. This is our 3rd loss but never before did we have to bury our little baby. I had never come so far and had such positive bloods, scans etc. I really started to believe that this little bubba would be in our arms.
Napro gave us our miracle boy who is now 3 and we have decided that we have the strength to go back to Dr B to try once more.
I hope we all have our dreams come true. Good luck ladies.

barbiegirl

Bubbaloo I am so sorry, big hugs. Nothing we can say will make it better just know we are here for you.

stickybean

Oh Bubba, this is so sad, take care of yourself pet and take your time xxx

barbiegirl

I haven't been on for a while as I've been trying to make sense of what the docs are telling me. Essentially Doc Boyle doesn't believe the surgeon and he wants a 2nd opion with Dr Alasam which I have agreed to. We are meeting Dr Alasam after our hols in mid Sept. The deal is that if he can't unblock the tubes (if they are blocked) then he will remove them to aid with IVF, as blocked tubes can leak unpleasentness into the womb and interfere with IVF. This is the only reason I am agreeing with this approach as it doesn't disrubt the IVF leg of the journey. In the interim Dr Boyle has put me on hormones and he says to get going trying to see what happens. He believes we can get pregnant and that the hormones and tablets etc will help us hold. So now I am on peak plus 7, just had my blood tests this morning and am mid way through my 2ww.
I'm confused, tired, stressed, hormonal, spotty and just want to be in my bed. But lets see what happens.Fingers and toes crossed Doc Boyle is right and surgeon is wrong. Dr's fallible never :rolleyes:

bubbaloo

Hi BG. Wow, what a lot for you to take in. I know dr b believes there are many options before ivf so I'm not surprised he has recommended a second opinion. I have heard fantastic things about dr A. I know of another forum with a whole thread about endo and he is frequently mentioned as an amazing surgeon. One girl is now 20 weeks pregnant just a few weeks after surgery done by him. His surgery is different, it's robotic and very thorough so for what it's worth, I think you've made the right decision to meet with him.
Doctors do sometimes get it wrong. The first surgeon who ever operated on me told me I had no endo. I am riddled with it and have had major surgery twice because of it. Enjoy your holiday - 4 years ago after 6 years of crap we went on hols and came back pregnant!! I would love to think that the same could happen for you. Good luck x

barbiegirl

Today I had my appointment with Dr Allazam and it went really well. He believes he can fix my tubes!! Well first he doesn't believe the right one is blocked and the left one is only blocked at the bottom so he proposes fixing that whilst he's in there. I could show him very clear photos taken during the last op. His biggest concern isn't endo but rather scarring from my D&C's.

So operation booked in the Galway clinic for end of Nov, then recovery and fingers crossed a new years baby Well if Napro treatments haven't worked before then :rolleyes:

bubbaloo

barbiegirl wrote: »

Today I had my appointment with Dr Allazam and it went really well. He believes he can fix my tubes!! Well first he doesn't believe the right one is blocked and the left one is only blocked at the bottom so he proposes fixing that whilst he's in there. I could show him very clear photos taken during the last op. His biggest concern isn't endo but rather scarring from my D&C's.

So operation booked in the Galway clinic for end of Nov, then recovery and fingers crossed a new years baby Well if Napro treatments haven't worked before then :rolleyes:

BG this is bloody fantastic news. I'm thrilled for you. Be strong and believe your time is coming now. It's such great news for you!

yellow hen

That's great news bg. I'd say it's great to hear someone with something new to say and someone who has faith in what they can do. Have belief that this is the turn of a new page for you now. X

iguana

I'm really pleased you have gotten this prognosis from the doctor. I might be misreading it, but I'm picking up a more positive vibe from your posting. I hope I'm right, you've been through the mill with the bad news and then having to decide your next step based on conflicting opinions from the different doctors, so you deserve to get and enjoy some good news. And hopefully this time it will go all they way through to a successful surgery followed fairly sharply by a successful pregnancy.

Dinkie

Hi all,

Firstly Iguana, thanks. It was this post that encouraged me to go to NAPRO. I've had 2 miscarriages and want to take some positive action before a third one!! Was finding it really hard to get some help before NAPRO. I saw dr. O'Dwyer and he was a gentleman and very positive which is what I needed.

Barbiegirl - having read through this thread, I'm delighted that you may be able to get some positive help.

Now to my question. Are there some practictioner teachers better then others. I saw one when I was in the beacon last, and she seemed a little scary. Does anyone have a recommendation? I'm based around Dublin

Thanks

Shtanto

Hi all,

I've been on LDN for almost 3 years for MS. Glad to hear it is known and doing good work. As far as side effects go, sleep issues are very common if you take too much (+/-0.5mg). I found that 5.5mg was too much for me, so I dropped down to 5.0mg. I sleep well now. Takes me a while to nod off, but I can always take a camomile if needs be.

QM Specials is the place to call if your pharmacy is asking you to pay more than €50 for a months supply. Sounds to me like they were special ordering it from a compouders, using I dunno what sort of fillers, because lactose free is the best. Pay attention to fillers as well. They may leave you a bit wobbly if you've got any sort of lactose intolerance. Lactose free ftw. Keep in mind that you may need to adjust your dose a lot (every 3 weeks) +/-0.25mg. The expert in this area is Dr. Phil Boyle. There he is on Youtube. LDN is the safest drug you can name. The FDA has it approved for use in humans in doses up to 300mg, so you taking 3mg is safe. Mechanism of action explained here. I tried to figure out how the left side oligomer interacts with Filamin A while I was in DIT doing pharmacology, but I never really got the chance. No proteomics that semester. Incidently, start taking vitamin D3, or at least ask about it - 10kIU may seem like a lot, but your kidneys will only convert what you need. Don't overdo it with the calcium at the same time.

Of course it's all very well having me harp on about it - I'd much rather you make a few phone calls yourselves.
www.patientslikeme.com for persoanl effectiveness
Dr. Phil Boyle for the expert advice
Dr. Pat Crowley wrote to the Times trying to publicise LDN - lots of experience with it
Dr. Gabriel Stewart works up around Castleknock and D15
Dr. Edmond O'Flaherty is in Mount Merrion

It's a good drug. I wouldn't take anything else. It'll only be made widely available if folks ask for it. Best of luck with everything, and thanks for the great post.

barbiegirl

A quick update. I thought I had already updated this thread but I obviously didn't. Dr Alassam removed all the endo and unblocked both tubes :-). He also found a fibroid in my womb about 2cm but more importantly that I had a septum, or semi-divide in my womb the combination of the two making it near impossible for an embryo to implant properly. I had a second op on Dec 18th and he fixed them. Now I'm on my last two weeks of hrt to help with healing, feeling great, and we should, fingers crossed have no more problems. The plan is to complete my hrt. Take a cycle out to make sure my ovulation days etc are back to normal and then start again with napro hormones, trigger injections etc.
It took 9 months with napro to get all our answers but now we have them. IVF would never have worked with the fibroid and septum. So fingers crossed this is our year to finally start a family :-)

groz

Hi guys,

Could anyone please let me know, what is Napro?

Thanks very much in advance for you help.

helserbelser

I dont see an update on this for a while?? how all getting on? I have been TTC for over a year, after a miscarraige at 11 weeks last year.
Prolactin was high but now back to normal, scan etc normal so thinking that hormone was blocking me all along. Doing acupuncture to help, and acupuncturist keeps recommending Napro. They sound great but I am really against their marriage policy? Does anyone else think this is ridulculous?

Hellrazer

Just tell them you are married.They don't check or ask for a marriage certificate.

Well they didn't with us and a friend recently went who isn't married but just said they were.

penguinbaby

Me and my husband have been ttc 4.5 years and have my first app with napro Galway on the 24th. Looking forward to the app and from reading all your posts ye all seem to be finding it a positive experience.