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Albinism

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  • 13-05-2017 11:55pm
    #1
    shanno66
    Registered Users Posts: 20 ✭


    Hi i was just wondering if there was any boards members with children that have albinism ? my daughter is 11 months old and was diagnosed with albinism from birth,I would love to get some tips on how to properly protect her in the sun but there isnt much information available,I always apply suncream and put her sun hat and sunglasses on when we leave the house but she still seems so uncomfortable with any sort of lighting and has also not yet made any eye contact with either of us. Any advice or insights are welcomed.

    thank you


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    #2
    catrionanic
    Registered Users Posts: 2,091 ✭✭✭catrionanic


    No personal experience, but I wonder what sort of sunglasses you're using? Wraparound styles which block any light coming in from the sides can be much more comfortable for people with albinism.


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    #3
    Moonbeam
    Moderators, Education Moderators, Society & Culture Moderators Posts: 18,953 Mod ✭✭✭✭Moonbeam


    If you get in contact with https://childvision.ie/site/ or the school for the blind in Drumcondra both should be able to put you in contact with other parents and advise about protecting her eyes and skin.


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