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Question about methods and platforms for getting advice / feedback regarding medical treatments?

  • 15-03-2022 1:58pm
    #1
    Denalihighway
    Registered Users, Registered Users 2 Posts: 1,075 ✭✭✭


    Hi,

    Forgive me for an unusual thread. Thought this was the most suitable place for it as there doesn't seem to be a 'general' area.

    You might be able to help or have some opinions.

    Like many out there, I have elderly parents. They're generally in good health, but one of them in particular has quite a few ailments at the moment - a kind of a crapstorm of possibly interconnected soft-tissue/joint injuries etc.

    So much so they can't get out to walk properly.

    They have lots of life in them, and there is a pathway back to walking etc but in the meantime they're in a bit of a limbo situation until everything is properly diagnosed and treated.

    Can I say clearly, that I have no reason to believe that any of the care they are receiving is poor nor am I second guessing it. They're lucky to have private health care and a pro-active GP. The specialists seem to be doing all they can but it just seems like it's tricky trying to get to the bottom of the various injuries. I believe in medicine and I believe in entrusting ourselves in the medical fraternity. I suppose, as a concerned family member, I just feel a bit powerless sometimes, and I'd do anything to help my folks.

    My question is this.

    If you were me (not medically qualified) and you wanted to discuss the care they are receiving, open a conversation about it, and possibly get some suggestions from medical professionals - what would that look like and how would you go about it? What platform? In public? Private?

    Needless to say I understand the potential here for kickback from the profession, confidentiality issues, both for my folks and for the professionals involved, and just basically creating drama and opening a can of worms. I understand it's not ideal and it's tricky.

    But I can't be the first person wishing to do something like this, with the best of intentions in mind. 

    I took a detailed list of the current status of the various conditions, diagnoses, treatments, prognoses and medications the other day which I can forward to anybody, or indeed publish online. Needless to say any related names, places etc etc withheld.

    The other evening I had a thought that I could just bang the thing up on Twitter and let people go hammer and tongs at it, then hope some productive advice comes of it. Stranger things have happened (and definitely stranger things have happened on Twitter), but I'm not sure that's a great course of action and I'm very unlikely to take it!

    What are your thoughts?



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