Hughes

Timfy

Hi all,

Anybody out there with Hughes syndrome (APS or antiphospholipid syndrome) ?

Id be interested to hear how your diagnosis and ongoing treatment is going...

I was diagnosed initially in the UK and find personally that Hughes is completely brushed under the carpet in the ROI.

I am male, in my fifties and was diagnosed nearly 20 years ago. I have the classic symptoms of tiredness, joint pain, brain fog, blood clotting and the standard issue of my blood wishing to be on the outside of my body rather than within! Would love to hear from any one else with the same issue.

GoogleBot

Hi. Was it infection that cause APS?

Timfy

Hi GoogleBot,

No, genetics are to blame for mine. My grandparents both suffered from, as the doctor of the time called it, "sticky blood!" With modern diagnostics this would surely have been found to be APS. The disorder primarily affects women, but men, such as myself can suffer from it as well.

My diagnosis came about after suffering several TIAs or mini strokes back in my 30s. The test for APS is slightly long winded and not often offered but I got lucky (?) in that my specialist was working on research into APS and ran the tests.