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[Diabetes] General Chat and Support Thread

19192949697104

Comments

  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    Mark, you are wrong.

    There is no injection for Retinopathy screening, none nor is there an alternative screening test where some might get injected.

    Retinopathy once diagnosed, is initially treated with injections and they do carry risk.

    However, noone attended a retinopathy screening clinic in Ireland is injected as part of the screening.

    Your contribution to this thread, has been to spout BS, you've added nothing accurate or helpful and to those newly diagnosed, letting your utter nonsense stand unchallenged would cause already stressed and worried people more stress and worry.

    As for your usually ignoring posts of my type? Feel free, I get the impression it's not the 1st time someone has called out bullshít you've posted and it certainly won't be the last.



  • Moderators, Business & Finance Moderators, Sports Moderators Posts: 15,070 Mod ✭✭✭✭whiterebel


    It does no-one any good spreading mis-information like this. I wouldn't have gone for screening if anyone had mentioned the merest possibility of injections



  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    I had my retina screening today and I can confirm that no injections were involved.



  • Moderators, Science, Health & Environment Moderators, Social & Fun Moderators, Regional West Moderators Posts: 60,795 Mod ✭✭✭✭Gremlinertia


    @markmoto Please take a break from the Long Term Illness forum for a while. Many posts unhelpful but downright misinformation cannot be tolerated as there are many worried readers and posters seeking reassurance here.. If you wish to talk further PM me

    Gremlinertia



  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    A question for those of you on insulin. I'm T2 but not on insulin so no real idea of how that works. My brother recently had a medical issue that resulted in damage to his pancreas. He is now on insulin because of this. we were together at the weekend and he mentioned that he had taken 34 units of insulin that day. Would that be a lot? As I said I have no idea how that side of it works.



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  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    It very much depends on how he is taking it and if it's long lasting or quick acting.

    Long lasting is generally taken once per day.

    Whereas the quick acting is taken at mealtimes and the dose is based on carb counting.

    Some combine both with a long acting basal dose once a day, and additional bolus at meal times.



  • Registered Users Posts: 60 ✭✭SneakyDoyle


    I had my Retina screening last week and I have to go back for injections in my right eye every 4 weeks for the next 12 weeks.

    Was told today there's a charge of 80 quid per visit which I was surprised at as I would have assumed the LTI covers this considering it was picked up as part of the diabetic retina screening programme. Anyone else have this experience?



  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    €80 is the standard In Patient/Day service charge. The LTI scheme only covers drugs and appliances.



  • Posts: 0 [Deleted User]


    hey all,

    have a quick query. im T1 insulin dependant and have gotten to a medical for a job which would be driving buses all day,

    i am abut concerned when they see i use insulin that they may not pass me fit due to risk of hypos while at driving(i currently drive alot on my current job with no issues regarding hypos), has anyone gone through similar medical and how did it go?

    cheers



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    Assuming your license is up to date with appropriate codes and you are PSV and class 2 qualified?

    If they chose that reason to not progress your application it would be a grounds for a discrimination appeal.

    Diabetes.ie have some decent info on it.




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  • Posts: 0 [Deleted User]


    so i have a D licence permit and got a medical from my own doctor to get this group 2 licence....i am just worried that the medical officer would want to see proper proof that i never had a hypo driving and i am very aware of hypos.


    i rang diabetes ireland today but i probably confused her on the phone., but she referred me to Google or their website for more info.


    was hoping someone had went through the same thing and tell me they were fine lol.



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    What proof could you present to anyone asking to prove you've never had a hypo and that you were hypo aware?

    The licensing system for the most part is built on an honour system. You are legally obliged to report an hypoglycemia as a class 2 license holder. If you don't report it, there is no record and tbh afaik that's the only means of proof available.

    I fully understand you want some reassurance re: your medical but, if you are a responsible class 2 license holder you are meeting all your legal requirements and the medical should focus on your fitness to drive. That you hold a class 2, is proof of that fitness.

    You may fail the medical? But it won't be for being diabetic. You may also pass and not be offered the position. What you need to remember though is that if they don't offer you the position and intimate it is because of your Diabetes? That's a potential discriminatory act and you should report it.

    Your continuing to hold a class 2 license, given your legal obligation to report any hypoglycemia is proof of your fitness to drive.



  • Posts: 0 [Deleted User]


    thanks for your thorough reply.

    I do understand that i may also fail the medical regardless, i am generally healthy so i was thinking ahead of the medical what could i possibly fail on and being insulin dependant they may look for proof i am in good control of it. i may just be over thinking it, the only hypos i have had in three years have been when i have been experimenting(with hospitals advice) with low carb meals and exercise/higher or lower dosages.


    I don't think they would discriminate for being on insulin at all....but my plan was to bring a letter from the hospital stating they don't think i am at high risk of having a severe hypo based on my knowledge and them viewing my glucose readings over the last year.


    thanks



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    I've been watching a lot of US TV lately and they tend to pack their as breaks with pharma ads.

    One product that really caught my eye, is an insulin delivery device called the omnipod. It looks like a 3 day insulin dosing device/pump.

    It's tiny, not a lot larger than a libre sensor and seems quite an innovative system to allow both bolus and ongoing dosing for a 72hr period.

    I'm still insulin free currently but if/when I need to go back to it? I wonder if this could be an option.




  • Registered Users, Registered Users 2 Posts: 7,607 ✭✭✭Meauldsegosha


    Omnipod is not available in Ireland on the LTI. Only have three pumps available here: Medtronic, Ypsopump and Roche.



  • Registered Users Posts: 588 ✭✭✭Apothic_Red


    A word of hope to any T2s starting out on their journey.

    Recently came across a thread on Reddit with a T2 couple who are 45 years in remission between them.

    Turns out low carb is the key.

    ADA recommendations of 45-60g of carbs per meal are a joke.

    Food pyramid/Eatwell plate/Desmond/Expert Courses are malpractice imho & just perpetuate the progression to complications.



  • Registered Users, Registered Users 2 Posts: 7,050 ✭✭✭ebbsy


    Regarding the injections...

    About 5 years ago I had 3 Avastatin injections in each eye, in order to reduce fluid in each eye. It dries out the eyes in effect.

    This procedure takes place in during an outpatients appointment. It most certainly does not take place during a routine check up, either before or during.



  • Registered Users, Registered Users 2 Posts: 7,050 ✭✭✭ebbsy


    Now I am in Newcastle again after receiving my latest Noctura 400 mask. It lasts for the next 6 months, £500.

    This is the first time I have been here since December 2019, due to covid. The mask has been posted to me ever since.

    The scans show that things have remained stable (they compare this scan to the last one). The scar on my right eye is also unchanged. My last bleed was over 3 years ago.

    So I believe that this product is still making a big difference. I still have my yearly checkup in outpatients in Adelaide road also. They do a fantastic job there.

    I am surprised this is not available in Ireland yet, but I would still probably travel to Newcastle for it, as they are very professional and my records are here.



  • Registered Users, Registered Users 2 Posts: 7,050 ✭✭✭ebbsy


    Yeah I had to pay for these as well. It is relatively cheap, believe me, and it will make a big difference.

    It is more like a flat pen going into your eye than a needle. It sounds a lot worse than it actually is.



  • Registered Users, Registered Users 2 Posts: 77 ✭✭CalisGirl


    Diabetes Ireland have been having monthly zoom conferences on various Diabetes topics over the last year for both T1 and T2, with Q&A sessions at the end. I've personally found them very useful. The next one is:

    Preparing for Pregnancy Webinar for People Living with Diabetes

    Oct 27, 2021 07:00 PM

    If you're interested and don't have an invite, I'd say contact Diabetes Ireland to add you to the mailing list. They're well worth attending.



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  • Registered Users, Registered Users 2 Posts: 23,157 ✭✭✭✭Alanstrainor


    T:Slim is coming soon, and now that Dexcom is covered under LTI it is a very appealing combo. My pump will be up for renewal in April, so I'll have to see whether the Medtronic 780G with Guardian sensor 4 is available and compare with T:Slim. Not going with Guardian sesnor 3 again, it's not the best.



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    My Hba1c has taken a bit of a battering 😣. Have had a very painful and as yet undiagnosed Urological/Neurological issue ongoing now for nearly 3yrs. In the last 6 months it has worsened considerably and hugely impacted in my activity.

    My glycemic control is usually quite good and I even managed to come off my Insulin completely @ 2yrs ago. My average Hba1c over the last 10 or so yrs apart from a period where I had a broken leg and it went up to a 52/6.9 I've always managed to keep it below 46/6.4 and my last Hba1c in March was 44/6.2.

    Anyway my most recent was received on Wednesday and it was a gut punch tbh. Came in at a 62/7.8.

    I know it's not a catastrophe, I know in the grand scheme of things it's not even that bad. But it's a loss for me and I'm already at a low ebb.

    My GP was great, suggested maybe going back onto a GLP-1, but rather than prescribe one he asked me follow up with the Diabetes team at UHL.

    Immediate response was to restart insulin 😣 I put that off a little while and I have been booked in to see the endo in December. I'm not afraid of needles, nor even of insulin. Took Victoza for quite a while and went on Insulin after that.

    What insulin did for me in regards my BG control was great, what it did to my weight and waistline? Not so much.

    That success, and by that I mean getting control of my BG rather than my weight. Really gave me a sense of agency an control over my Diabetes. Current issues have robbed me of that control, and TBH heading into my 15th year post diagnosis? I don't know that my pancreas has any kick left in it 😂

    If nothing else about diabetes, in any of its flavours! It really is a slow and grinding battle of attrition isn't it!

    Post edited by banie01 on


  • Registered Users Posts: 13,762 ✭✭✭✭dubstarr


    Anyone help m.

    Im looking to get a new dentist and all the ones beside me are not taking new patients.

    Is there a list of dentists who are taking medical cards that i can apply.



  • Registered Users, Registered Users 2 Posts: 7,050 ✭✭✭ebbsy


    Best of luck with that.

    Its a real problem now I believe, hundreds have left the scheme in the last few years.

    My dentist told me the Gov cut the fees to them.



  • Posts: 0 [Deleted User]


    hey again, i was on recently about a medical for a job as a driver, anyways i had said medical a few weeks back and all seemed ok on the day and the DR said he was happy with my diabetes and what not.

    Just now i received a call from him and he told me due to diabetes he cannot class me fit to work for the company. I am obviously disappointed hearing this but it this discrimination? no history of hypos or anything. am well hypo aware, what are your thoughts on this?

    he did say i could appeal it but what could i even say to change their idea on this?



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    Obviously Doctor rely on data e.g. blood and eye tests etc. If something that bad s/he should refer you to specialist and put you on medication. Anyway is not end of life. Research into ketogenic diet my uncle got off diabetes list after 6 month beign in ketogenic diet and IF.



  • Posts: 0 [Deleted User]


    your uncle was type 2 yes? i am type 1 so no cure.



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    I don't know if it amounts to outright discrimination tbh. Diabetes Ireland may be better placed to advise?

    If memory serves aswell as the T1, you also had an elevated BP at the medical? Apologies if I'm mistaken on that one.

    Certainly appeal it, provide a recent holter monitor report to refute their BP worries, your most recent Hba1c to confirm your control range and as I mentioned earlier, the only real counter to their hypo concern is the legal requirement on you to notify the the RSA of any. If you haven't reported one, you haven't had one unless they are presuming to imply you are breaching legal requirements.

    Now I don't know what particular scoring matrix they are using to decide on hire or pass. But if they are relying solely upon your Diabetes to discount you from consideration? It seems problematic unless they have certainty there is an issue.

    It would be far safer for DB to discount you due to better qualified or more experienced candidates who scored higher overall.

    Their relying upon diabetes to discount you when you have met your legal licensing requirements is on the face of it at least problematic and worth a review by someone with experience in the area. Be it initial advice via Diabetes Ireland or a query to the IHREC.



  • Posts: 0 [Deleted User]


    heya, they got the report on my BP showing it was normal from my gp, my HB1AC has been 52 54 and 52 last three times its been tested and they also have the records along with retina screening.

    they didn't choose anyone else over me, i didnt get passed medical stage because in his words" because of your diabetes and the chance you will have a hypo" to which i explained i am currently in a driving job and have never had a hypo driving.


    deep down i always knew that if i didnt get the job it would be down to diabetes, i do acknowledge i may not of been offered a job even if they passed me at the medical stage, but as for now they arent giving me a job based on being insulin dependant.

    i have been in touch with DI and they are looking into it, asked me usual questions if i ever had a hypo in last three years needing assistance or was hospitalised which i wasnt.


    thank you for your response, you have a better way of wording things than i do, ill wait to hear from diabetes ireland befor appealing.



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  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    If that's what they've done and how they phrased their decision?

    They have IMO left themselves open to action via IHREC at the very least. Yes they may have taken the decision not to hire you due to a perceived risk but, if you've already provided the evidence to discount those concerns? And yet they still made diabetes their reason? It's quite a risky play from a discrimination standpoint.

    You meet the legal requirements of a safe T1D driver with the appropriate license and reporting obligations. They can't use diabetes to discount you from the hiring process on a whim, and if that's how they framed it? I'd certainly pass it along to IHREC at that point.



  • Posts: 0 [Deleted User]


    what i quoted them as saying is exactly how the dr phrased it after saying they cannot pass me fit to work for this job. After that i was just focused on not getting annoyed over the phone at him and suggested that it sounds wrong and that i have tight control etc.

    what would you do at this point then? wait for word back from DI and then appeal to them, or go straight to IHREC?



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    DI will give you an opinion but, I don't know that they'd take an anti-discrimination action? Even if they did it would need to be via IHREC in any event.

    I'd certainly be making contact with IHREC to lay out your circumstances and ask their advice.




  • Posts: 0 [Deleted User]


    yea i wanted confirmation from DI that my concerns about discrimination were correct, ill get onto IHREC shortly and see what they day.

    its so strange because my own gp signed me off on medical and allowed me to apply for the group 2 licence with zero issues, around 10 weeks in the difference but they failed me.



  • Posts: 0 [Deleted User]


    although he did go on to say the CMO is worried that if you have a hypo while driving a bus i can't drive for 45 after correcting it. which is correct but thats something they are just assuming will happen.



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    That puts a very different spin on what you originally said Stephen. Be sure that you include that info in what you pass on to IHREC and DI. Just to be clear you did say:

    what i quoted them as saying is exactly how the dr phrased it after saying they cannot pass me fit to work for this job.

    The additional info you added, paints their concern as reasonable, that your diabetes even if well controlled is not an illness that a business reliant upon strict timetabling can make a reasonable accommodation for.

    That last line, is their out IMO and as such you weren't subject to a discriminatory action. Rather that they made clear that upon review of your illness that a reasonable accommodation as a driver is not possible whilst they continue to meet timetable requirements.

    Not a dig at you Stephen, but if you included that particular information in your original post? You would have received a different answer from me originally.



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  • Posts: 0 [Deleted User]


    that is why i said it in my last message there incase , i wasnt trying to hide anything from this to make it look better for me, the first line i quoted was what i took as the reason they gave me, after talking with him he elaborated abit and mentioned about the 45 minutes, but if thats the case no T1 diabetics would work for that company.

    as previously mentioned i drive up and down the country 3-4 days a week with my current job without incident, im not sure they took that into consideration. yes its driving alone and a much smaller vehicle but surely it would count.

    i could counter their concern that any route id be driving would be less than 2 hours(excluding large delays) with plenty of time to check i am above the legal limits, of course i will include this in appeal letter.


    but this company is known for equal opportunity for everyone. just doesn't feel equal to me(i do understand their reason to a degree) I'd of rathered they just sent me a letter saying i didnt get the job with no explanation lol.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    I see.

    According to law if you have T1 or heart conditions you are not allowed to drive vehicles over 3.5t professionally.

    In case they employ you and something ever happens they will be in huge trouble perhaps will file for bankruptcy...



  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    do you have a source for this? to apply for a C or D class licence you are required to pass a medical from a licenced doctor. Being T1 or having a heart condition are not automatic fails.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot




  • Posts: 0 [Deleted User]


    this link doesnt say you cant drive professionally if you have T1 diabetes?



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  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    it says that diabetes treated by insulin must be reported. a doctor then decides if you are medically fit to hold a licence. it doesn't say that you cannot drive vehicles over 3.5T professionally.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    As far as I know for t1 or heart conditions you can't drive vehicles over 3.5t professionally for salary please ring NDLS for clarifications.



  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    "as far as I know" isn't a source. there is nothing on the NDLS page that supports what you say. To drive professionally you need a driver CPC. There are no specific medical requirements for a CPC over and above those required to get a driving licence.




  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    This 100% th e poster your quoting is an ill informed clown who has form for not having a scooby as to what he's talking about.as can be seen by earlier advice to advise a T1 to focus on keto

    Once an insulin dependent diabetic is assessed as fit and is both hypo-free for 12 months. Insulin dependent diabetics can and do drive HGV and PSV vehicles for reward and the nonsense posted by Googlebot, who ironically enough? Cant seem to use Google should be ignored, or at the very least treated with the scepticism their quality of posting deserves.

    Further info from the NDLS on precisely what requirements and restrictions insulin dependent drivers face is available here

    and here from Diabetes Ireland.




  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    I didn't realise they were the ones who recommended the keto diet. Normally I would ignore someone like that but I think it is important to correct misleading information.



  • Registered Users, Registered Users 2 Posts: 17,156 ✭✭✭✭banie01


    I agree with you, particularly when it comes to something like driving. A newly diagnosed insulin dependent diabetic who is driving professionally could stumble on this thread read that nonsense and rather than follow the rules and continue to drive safely. Be so afraid of losing their job thanks to reading utterly incorrect info, that they try to hide their condition and that could have serious consequences.

    I'm in the same camp as yourself when it comes to correcting misinformation. There is enough to be worried about when managing diabetes without needing to fact check spurious claims.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    If you read all posts you would realise I thought he is T2.

    Anyhow chances to get professional drivers job for insulin dependable very slim. You don't have to give fake hope to someone so he going to Waste time searching for one.

    While in Ireland you can have drivers licence for professional categories in some other EU countries they will ask to surrender drivers licence all together.

    Hence the doctor refused to pass medical.



  • Registered Users, Registered Users 2 Posts: 1,214 ✭✭✭airy fairy


    T1 can you get a licence, after a medical, for 3 years, for a regular car.



  • Registered Users, Registered Users 2 Posts: 433 ✭✭GoogleBot


    Yes and even larger vehicles for a personal use.

    Post edited by GoogleBot on


  • Registered Users, Registered Users 2 Posts: 40,597 ✭✭✭✭ohnonotgmail


    there is no prohibition on people with T1 driving professionally. stop spreading lies.



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