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Is Autism a lot more common nowadays or is it just discussed more?

  • 03-09-2022 3:40pm
    #1


    A lot of people I know have a family member with autism. Only one or two are on the severe scale where they can't look after themselves.

    On the other hand, it seems that any person who is a bit "odd" is now being labelled with autism. These are people who can't hold a conversation, say things that they shouldn't or know a lot about a specific subject. I know everything about Liverpool, does that make me autistic?



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Comments

  • Posts: 2,077 ✭✭✭ [Deleted User]


    I know everything about Liverpool, does that make me autistic?

    Yes.



  • Registered Users, Registered Users 2 Posts: 5,488 ✭✭✭Padre_Pio




  • Registered Users, Registered Users 2 Posts: 6,412 ✭✭✭Jequ0n


    There seems to be a trend to pathologically label and diagnose everyone now. Personally I refuse to entertain any diagnosis unless it’s been formally diagnosed by an expert in the field. Not that that’s infallible but a better start than some random moron who read a book on something and thinks they know it all now.



  • Registered Users, Registered Users 2 Posts: 8,039 ✭✭✭Gusser09


    I have a son who is severe. The issue is any child nowadays with something a little bit different from other kids has to have a label. Some parents would sicken you when they describe their child as autistic. Its an insult to those of us who provide round the clock care for true autism.



  • Posts: 0 [Deleted User]


    its diagnosed a lot more, certainly.



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  • Registered Users, Registered Users 2 Posts: 18,984 ✭✭✭✭kippy


    There are very specific factors involved when diagnosing Autism.

    Like a lot of things however I don't think there is more autism now than there was decades ago, just that we are able to diagnose it and treat it(to some extent).



  • Registered Users, Registered Users 2 Posts: 383 ✭✭Bicyclette


    If you know that many people with autism then perhaps you should learn a bit about it.

    Autistic behaviours were always there, its just that people with severe autism were thrown in a home and ignored and those with moderate or mild autism remained in the community and either had to survive or struggled.

    Its a communication disorder that is usually genetically transmitted. It tends to run in families, including my own. There were older people I know, now passed, who were very definitely autistic but they weren't labelled because the condition was only recognised in the 1940s, 1950s and its really only since the 1970s and 1980s that there has been any form of regular diagnosis of people who have mild to moderate autism. And people who have it struggle, regardless of the grade of autism they have.

    The original IQ tests were developed when mandatory education was introduced in France. And clearly nobody was diagnosed with a low IQ before IQ tests were developed. But people still had intellectual impairments. Similarly as the autism diagnostic tools have become more sophisticated, more people are being diagnosed. And because of those diagnoses they are being helped. Its the assistance which is the most important thing. These days, without a diagnosis, you won't get the assistance you need. There is no flexibility within the educational system. And there is no flexibility outside the educational system either - you need a Leaving Cert for pretty much everything these days. No more leaving school at 12 and working in a shop or in a factory.



  • Posts: 257 ✭✭ [Deleted User]


    I teach in a special class and there are definitely more cases of Autism now than ever. There are a lot of factors for this.



  • Registered Users, Registered Users 2 Posts: 1,446 ✭✭✭dublin49


    up to a few years ago the term Aspergers was used for people who struggled mostly with relationships and were socially awkward ,who generally were self sufficient but just struggled at life,that term is no longer used so everyone is now on the Autism spectrum where the range of challenges for individuals is massive.In my 60s now,when growing up there was about 25 kids on our block and clos to a hundred on the road and never remember anyone affected by autism back then.It does seem to be much more prevalent nowadays.



  • Registered Users, Registered Users 2 Posts: 1,220 ✭✭✭wildwillow


    I too think there are a lot more people diagnosed with autism. Life was calmer, quieter and slower in earlier decades so people with mild symptoms were less troubled with the noise and bustle we experience now.

    I would love to know what is causing the rise in numbers? Is it diet, environmental or probably a combination of things. There does seem to be a genetic factor.

    There are so many levels of severity that a general diagnosis isn’t sufficient to determine how best to manage and treat a child or adult with the condition.



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  • Registered Users, Registered Users 2 Posts: 6,782 ✭✭✭Damien360


    You should know better. I have a son with autism and most outside our family wouldn’t be really aware. He can hide it. But we are very aware based on his behavior and the damage to our home over the years, especially in times of stress, the difficulty getting him to and through school, basic things like buying clothes and getting him to actually try them. Clothes that cannot have particular seams. But here you are deciding that all other diagnoses were of no value based on your own circumstances. You haven’t a notion what goes on in other peoples homes.



  • Registered Users, Registered Users 2 Posts: 41,156 ✭✭✭✭Annasopra


    Years ago it went undiagnosed because people got labelled as a bit odd or strange

    Post edited by Boards.ie: Mike on

    It was so much easier to blame it on Them. It was bleakly depressing to think that They were Us. If it was Them, then nothing was anyone's fault. If it was us, what did that make Me? After all, I'm one of Us. I must be. I've certainly never thought of myself as one of Them. No one ever thinks of themselves as one of Them. We're always one of Us. It's Them that do the bad things.

    Terry Pratchet



  • Posts: 3,656 ✭✭✭ [Deleted User]


    its a bit like mental health and depression. Every 2nd person (particularly celebrities) seems to be suffering with their mental health! It does a disservice to those who are genuinely suffering from mental health problems and depression. There is a difference between diagnosed clinical depression and feeling a bit down in the dumps or having a bad day/week.



  • Registered Users, Registered Users 2 Posts: 8,039 ✭✭✭Gusser09


    Absolutely i am. I see the violent side to it every day and i have the bruises, bite marks and broken up house to show it. I'll stick by my original opinion. Its a sham of spectrum. Its an absolutely terrible disability. The fact that so many kids with mild issues are diagnosed has a detrimental impact on the kids who need more support and help. We are currently looking at care for my 16 yo.



  • Registered Users, Registered Users 2 Posts: 8,039 ✭✭✭Gusser09


    The rise in numbers can be directly linked to the easing of criteria for a diagnoses. Its not a mystery.



  • Registered Users, Registered Users 2 Posts: 11,182 ✭✭✭✭martingriff


    I am sorry buy whe is true autism. Its like me saying you can't have Spina Bifida and Hydrocephalus unless your in a wheelchair, incontinence, and many illnesses associated but I know that is crap. Some you would not know would have it and others need round the clock care.


    I agree that more and more are getting too labeled to something and been prescribed stuff (this last bit seems to be changing). In saying that they is more information and less stigma now on it so we hear about it more



  • Registered Users, Registered Users 2 Posts: 8,039 ✭✭✭Gusser09


    I agree to an extent. My issue is with the system. True autism have a look at this. Little johnny or jenny wanting all of their red crayons in a different pencil case isnt it.

    https://youtu.be/l_nhwLGkC5Y



  • Registered Users, Registered Users 2 Posts: 71,136 ✭✭✭✭L1011


    The diagnosis criteria were changed significantly in the late 1990s. The increase in diagnoses from this is part of what fuelled the MMR nonsense.



  • Registered Users, Registered Users 2 Posts: 2,495 ✭✭✭Markus Antonius


    The problem now is that there are too many "experts" who are creating a big cashcow for themselves.

    The only difference between now and 50 years ago is that every tom, dick and harry is being funnelled through some university where they have to create some kind of income for themselves afterwards.



  • Registered Users, Registered Users 2 Posts: 1,787 ✭✭✭mohawk


    Kids with milder issues get zero support from the HSE. It’s the school system that picks up the slack. As many kids as possible are kept in mainstream school settings leaving special education settings for those who can’t manage in mainstream. Kids like my son might be in mainstream, however they need many adjustments and resources to make this work. All these kids no matter where they are are the spectrum deserve adequate resources put in place to allow them to reach their potential. After the economic crash resources were taken away from Disability services and education which to this day no government has undone this harm or even cares.



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  • Registered Users, Registered Users 2 Posts: 1,787 ✭✭✭mohawk


    It’s an interesting question OP. I am a believer that there is more then one thing causing the increase

    Friend of mine works in a psychiatric facility where most of residents are now quite elderly and have been institutionalised for practically their whole lives. Friend was saying if those patients were born today then most would be considered to be on autism spectrum. So one part of answer is that many were excluded from society in the past.

    Then the diagnostic criteria were changed some would argue wrongly. However, there are adults out there who had a tough time in school and are now struggling with things like holding down jobs, relationships, managing day to day life etc that would meet the diagnostic criteria if they were kids today.

    Life has changed dramatically in last 50 years. We have become more urban, life is nosier, light pollution which would all contribute to sensory overstimulation for many in the spectrum. Then add in dietary changes, environmental damage and pollution and what effect is that having on us at a genetic level.



  • Registered Users, Registered Users 2 Posts: 84 ✭✭Liath Luachra


    Most defintely increase in incidence and while some increase can be attributed to better diagnostic process, it certainly doesnt explain implosion in diagnoses.

    Variety of theories 're causes but not entirely genetic. Been in the sector for many years and began to see increase early 2000s. Disability services have deteriorated significantly since then, ironically as diagnoses increase. preschool and educational services do a terrible disservice to families, understaffed, poorly resourced and variability in quality of staff training.

    Post edited by Liath Luachra on


  • Registered Users, Registered Users 2 Posts: 75 ✭✭Drog79


    Some of the opinions on here about the spectrum are horrific. We were privately assessed by multi functional team and the correct label is probably Asperger's which you aren't allowed use anymore.

    However, this 'mild' diagnosis doesn't describe very academic and verbal whilst eating clothes and other things, not being able to toilet adequately at 10, special subjects alienating others and general agoraphobia. On top of constant arguing and rare physical aggression.

    It's a hell of a trip even on the mild end, and we adhere to the temple grandin style where it's not an excuse for bad behaviour. It's such a hard road for any autistic parent, and worse for those at the toughest end of the scale.



  • Posts: 8,385 ✭✭✭ [Deleted User]


    Ah so there's only one type. Good to know you're the gatekeeper for all the medics diagnosing against your approval



  • Posts: 8,385 ✭✭✭ [Deleted User]


    Everyone getting autism assistance has been medically assessed



  • Registered Users, Registered Users 2 Posts: 5,504 ✭✭✭Deeec


    It seems that nowadays if a child has any differences in behaviour at all they are diagnosed as on the spectrum. There is no acceptance anymore of the fact that everyone is different and has their own quirks - differences should be embraced not highlighted and labelled. I know several children who are supposedly on the spectrum but being honest I don't see why as to me they are normal kids. I have a family member who insists her son is autistic - nobody else in the family agrees with her and sees any unusual issues with the child. She doesn't even have a diagnosis for him but keeps saying he's on the spectrum. She's the problem not the child - we don't know what she is trying to achieve. I dread to think what damage labelling him as on the spectrum will do to his future.

    As gusser09 said it takes away from those kids that are truly autistic and who truly need help.



  • Registered Users, Registered Users 2 Posts: 9,810 ✭✭✭take everything


    That's true. But in the same way many people now are just odd and strange, not necessarily autistic.



  • Posts: 0 [Deleted User]


    What factors would lead to increased incidents of autism? I'd have thought it is no more common than it ever was, just recognised now. Or perhaps over diagnosed.



  • Registered Users, Registered Users 2 Posts: 267 ✭✭dubdub123


    "True autism" is a pretty disgusting term.. my 16 year old son just got a diagnosis recently. He can talk for hours about his topics of interest, but will actively avoid other communication, and avoid engaging with his peers. He had panic attacks when requested to speak in public (although his vocabulary and knowledge of topics is incredible). He has to be reminded to eat, shower, drink. Difficulty sleeping. I worry about his future constantly. He has anxiety issues and has self harmed. I worry about how he will cope, whether things become too much, hate seeing him stuck indoors but then scared when he goes walking by himself.

    And then theres the next level of how his behaviour didnt seem as unusual to me. How i understand a lot if how he processes information. How i remember (and still fewl) the overwhelm when im in certain places, and how i generally feel on the periphery of life.. yeah so most likeky a diagnoses for myself, but i cant afford that. Pretty sure theres a fair few parents out there piecing things together.



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  • Registered Users, Registered Users 2 Posts: 26,289 ✭✭✭✭Mrs OBumble


    If those patients were born in 2000, some of them wouldn't have been institutionalised: they would have lived in the community, and been more likely to breed, so increasing the rate in the population.

    Also, far more children are in institutional childcare from a very young age. Early-childhood teachers are trained to spot abnormal patterns, and suggest parents look for a diagnosis. So far more people at the low end of the spectrum are being diagnosed. Previously they'd have been educated at home until school age, and parents were able to tailor the education to the child's needs far more than is possible in group settings.



  • Posts: 3,656 ✭✭✭ [Deleted User]


    Like you I have always felt overwhelmed in social settings, I find eye contact hard to maintain , I hang back rather than put myself foward and without a shadow of a doubt I have always felt on the periphery of things, on the outside looking in. But in no way would I consider myself autistic or even on the spectrum. I look on this as my personality and part who I am!!

    I am from a family of 7 and we are all independent and like our own company a lot, we have all chosen to live in quiet areas but we are all married, have jobs and have kids! So while we discuss it and laugh about it we consider it to be part of our DNA, who we are, not a label or a sign of something wrong!


    I hope your son is ok and I can only imagine the anxiety you must feel, especially for a 16 year old boy. Good luck with everything.



  • Registered Users, Registered Users 2 Posts: 1,276 ✭✭✭RainInSummer


    Good for you gate keeping what 'true autism' is. Maybe those kids who are a little bit different will be able to get a management plan or some positive outcome from their diagnosis. Just because they and their families don't experience the same difficulties you do doesn't invalidate their issues.

    You genuinely managed to come across in one single post as someone who is bitter at others because they don't have things as bad as you.



  • Registered Users, Registered Users 2 Posts: 467 ✭✭paddyirish23


    I think there's definitely been an increase in cases more than a now catching ppl who would've gone undiagnosed yrs ago. I've 2 kids on the spectrum and it's a tough life trying to manage them and keep them from lashing out every hr.

    My big worry is with so many ppl and kids in particular being diagnosed with more severe autism, where will they go to be looked after when I'm too old or gone.

    I think it's every parents worry atm and I don't trust this government to provide to them



  • Registered Users, Registered Users 2 Posts: 5,504 ✭✭✭Deeec


    Completely agree. Not everyone is loud and is a social animal and there is nothing wrong with that. Nowadays it seems that society wants everyone behaving whats perceived as normal - if a child is quiet, or enjoys a particular subject, doesnt speak by x age or has a phobia to something they are on the spectrum. Its just wrong in my opinion. More should be done to allow society to accept differences instead of making these kids feel there is something wrong with them.



  • Registered Users, Registered Users 2 Posts: 6,412 ✭✭✭Jequ0n


    I am impressed how many people on this thread are going out of their way to misinterpret Gusser09’s post. Any reason to be offended it seems..



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  • Registered Users, Registered Users 2 Posts: 1,787 ✭✭✭mohawk


    No one came across as being offended in any post I read. A couple posters did counter the claim regarding ‘true autism’ and rest of spectrum is a sham. its a discussion board and sometimes people disagree with each other.



  • Posts: 2,077 ✭✭✭ [Deleted User]


    I think the distinction between Asperger's and autism should have been kept. You can't compare the likes of Elon Musk and Mark Zuckerberg with a non verbal autistic person.



  • Posts: 2,077 ✭✭✭ [Deleted User]


    The old Asperger's fits your son better. There are lots of kids out there like him, and most do fine. Many end up being labelled "incels" though sadly.


    I work in IT - that's a profession packed with high functioning autistic people. Engineering is another one.



  • Registered Users, Registered Users 2 Posts: 2,122 ✭✭✭eggy81


    So if someone has mild to moderate autism they shouldn’t admit it, talk about it or receive help? Just struggle on and fail miserably in their early years and have no future because they’re not bad enough to need round the clock 24hr care.

    seems like a great idea 👍



  • Registered Users, Registered Users 2 Posts: 17,707 ✭✭✭✭Mr. CooL ICE


    No, but you should go on Mastermind. Or is every Mastermind contestant autistic?

    Post edited by Boards.ie: Mike on


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  • Registered Users, Registered Users 2 Posts: 33,754 ✭✭✭✭Princess Consuela Bananahammock


    Discussed more, definitely. Same as a lot of mental health issues, such as ADHD, OCD and the depression (especially depression).

    It's also the fact that a huge number are slightly autisitic but not to the extent that it massively effects their daily lives. But identifying this and discussing it makes it a lot easier to navigate life on a day-to-day basis.

    Everything I don't like is either woke or fascist - possibly both - pick one.



  • Registered Users, Registered Users 2 Posts: 8,513 ✭✭✭Ray Palmer


    Like many things it can be overused to excuse bad behavior. Not saying it isn't real but it is also not something that can't be dealt with and ways to overcome the difficulty rather than assume an impossibility. Had experience with a young man and his mother blamed everything on his ADHD. You would swear he was a jibbering fool from how she spoke but the reality was she gave him no discipline. She herself didn't get up till after noon and claimed he slept 14 hours a day and could never get up on time. After speaking to him he just stayed up really late at night playing computer games and slept less than 6 hours. He was basically tired all the time which didn't help him but she basically had let him skip school for 5th and 6th years. She has doomed this kid to a terrible life because she blamed everything on ADHD.

    The idea is you get a diagnosis to figure out how to deal with the issues not an excuse.



  • Registered Users, Registered Users 2 Posts: 6,292 ✭✭✭Ubbquittious


    It's a system that works out for the schools. Get a few kids diagnosed in order to bring in more special teachers and assistants, makes life easier for the teachers already there. So you end up with a classroom of 20 kids and a bunch of them will be diagnosed with a condition that's supposed to have a 1-in-3000 or lower incidence rate. Any kid who is a bit out of the ordinary will be under the microscope until they can throw a diagnosis at him/her.


    It's still a big improvement on the system they had long ago where the awkward kids would be bate silly till they did what was expected and if that didn't work the teacher would go home to bate his wife out of frustration



  • Posts: 0 [Deleted User]


    Huge proportion of people on the milder end of the spectrum were not diagnosed during childhood. In my case, I just struggled a lot since childhood. Found it really difficult to engage with my peers, felt more comfortable in isolation. Tended to do poorly in school but also excelled with stuff that I was interested in. Eg historical stuff and anything related to computers. Also never tended to rebel but did have massive arguments with family, which makes a lot more sense cause it wasn't remotely normal.

    Did suspect I was on the spectrum when I was younger but parents fobbed me off on it. Then ended up going to a psychiatrist for general mental health issues. They concluded I was pretty high functioning and didn't really fit into standard criteria for mental health issues outside of generalised anxiety. They also concluded I showed all the signs of being on the spectrum. It wasn't surprising overall but hadn't really recognised the amount of masking I tend to do. Also tend to burnout from doing so.


    Since it's a spectrum, it manifests differently for many people. Some need more supports, others are largely self sufficient and struggle in less visible ways. "True autism" is that poster simply ignoring different lived experiences. They're being called out which is fair.



  • Registered Users, Registered Users 2 Posts: 4,998 ✭✭✭c.p.w.g.w


    Everyone seems to have a diagnosable condition these days...

    A few years back a shy kid, was just shy...but now they have a few conditions and a label which doesn't really help

    I'm pretty certain if I was child in this age, I'd probably have a list of conditions, due to be happy in my own company



  • Moderators, Politics Moderators, Sports Moderators Posts: 24,269 Mod ✭✭✭✭Chips Lovell


    Our understanding of autism has expanded dramatically in recent decades. Autism is genetic and it's not a case of there being more autistic people now than before, more that we're getting better at spotting it and diagnosing it. People getting diagnosed today would never have been twenty or thirty years ago.

    It's a gross simplification to see autism as spectrum ranging from "mild" to "profound". A better way of describing is that it's a whole array of signs and symptoms, with a spectrum for each individual one. It's trite, but probably true to say that if you've met one autistic person, you've met one autistic person.

    And yes, you can say that some people are just different and we should just embrace that difference rather than stick a label on it. There's no end of autistic people who'd love to be seen as more than just a label, but if you're really going to embrace that difference, you should also endeavour to understand it, to realise that a world designed by people whose brain is wired a bit differently to yours may be difficult and overwhelming to navigate and that autistic people may, especially when young, need a bit of extra help.



  • Registered Users, Registered Users 2 Posts: 6,412 ✭✭✭Jequ0n


    I believe the poster was referring to people who are self diagnosing because everyone is an expert now. It happens with so many things now, not just autism.



  • Posts: 8,856 ✭✭✭ [Deleted User]


    Just a theory- the average age of first time parenting is on the rise- those who leave having kids to their late 30s are apparently at greater risk of their child being born with certain conditions including autism.

    I know 3 sets (actually no sorry, 4 sets) of parents who had kids when they were late 30s- all now have a child with a diagnosis of either autism or Asperger’s - I’m still trying to get my head around how this can be



  • Posts: 0 [Deleted User]


    And in general self diagnosis tends to happen more so in adult life. It's incredibly expensive to get a diagnosis if you're older and beyond a certificate, there's zero benefit to doing so. Self diagnosis is largely accepted in the community for this reason.


    On top of that, the poster followed up by rejecting diagnoses for children on the milder end. So yes, they're being a gatekeeper on "true autism".


    Absolutely i am. I see the violent side to it every day and i have the bruises, bite marks and broken up house to show it. I'll stick by my original opinion. Its a sham of spectrum. Its an absolutely terrible disability. The fact that so many kids with mild issues are diagnosed has a detrimental impact on the kids who need more support and help. We are currently looking at care for my 16 yo.



  • Registered Users, Registered Users 2 Posts: 4,672 ✭✭✭elefant


    If medical professionals are diagnosing children with autism, they're not doing it without careful evaluation and assessment. An early diagnosis can lead to appropriate interventions, classroom accommodations, specialist support, greater community awareness etc. That these supports aren't available is a shame, but this is what the diagnoses are for, and so they should ideally be affecting people in a very positive way. The more children that are medically diagnosed, the more that can (theoretically) get the support they may need to live full and happy lives.



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