Psoriasis

Anyone had any joy sourcing Cocois ointment of late? Only thing that works for me when my scalp psoriasis is out of control but can't get it anywhere local and not too much joy online either.

I had scalp psoriasis as a child but it disappeared for over 40 years before reappearing last year. I also now have guttate psoriasis and psoriatic arthritis. This week I have started on methotrexate weekly and the Amgevita (Adalimumab) fortnightly injection.

I have tried all the prescribed creams ointments and lotions and nothing had worked. I bought the Cocois ointment 100g on Amazon, they wouldn’t deliver to Ireland so I only got it this week when my son brought it home from Uk hopefully that will improve my scalp. I found a brilliant little cream on Amazon for the guttate, I’ve been using it for the past three weeks and it has cleared the psoriasis on my arms and is clearing my back it’s called Clotosc and only costs £8.99 for 40g it’s a combination of Coal tar 6% and Salicylic acid 3% I highly recommend it, it’s working for me unfortunately it’s only in 40g tubs but cheap enough to try if you’re not sure. I have found recently that my hair has thinned a lot in the front, I would love any advice on what to do for this, as a woman it’s very embarrassing plus with the scalp psoriasis I haven’t been able to dye my hair and the greying front doesn’t help disguise it either

sorry for the long winded post but it’s really getting me down lately

Hey all so I got diagnosed with Psoriasis recently, first my dermatologist put me on enstlillar foam and milton baths, it's pretty much cleared all my skin, although I didn't have it bad skin wise, the worst was my groin area, then I had one or two spots on my head, knee and elbow, very small and not noticeable but the cream took it away. He said it was very minor.

Problem is I got psoriatic arthritis with it, again not bad, fairly mild so far, I'm in no way debilitated I'm actually pain free apart from a couple of minor twinges.

I went back for a follow up and he recommended Humira to me as a next treatment, at first I thought no big deal but when I got home and did some research I've been terrified ever since, I don't no what to do, the side effects are very extreme, things like cancer risks going up, Neurological problems, MS like symptoms etc...really scary stuff, I honestly don't no if it's worth taking it yet, those risks seem too high for me especially at the stage Im at...I'm wrecked with anxiety, I'm expecting a call off a nurse to show me how to take it but I'm not sure Im ready, don't no what to do really, I'm going to my GP to get some advice too, anyone have any experience with using it?

Hi. I’m really struggling to get Dovonex over the counter atm. Anyone know of a pharmacy who has it in stock?

Yes I had to get tonsil taken out, gutta psoriasis every time I get infection in throat, I can't get coal tar and urea anywhere 😫, does anyone know where can source it , messy stuff but works every time

Thanks eeloe and brevity for responding. It's good to get someone's say on this rather than just the docs. It's a big step to take but I don't think I have an option really.

I’ve had relatively mild psoriasis for 35 years, mostly knuckles and elbows until early October where I had a massive flare up from head to toe. Couldn’t get an appointment with a dermatologist (even privately) until next February so used beta cap for scalp and enstillar at for scaling (both excellent products). Happy to report it has almost all cleared now after 10 weeks as remainder of patches are almost faded away. Just wanted to put this out there for anyone in similar position as it really can affect ur mental health when no help from specialists in this country. Hope this helps someone.

Is the enstillar via prescription only?

I have guttate again following strep and the itch is driving me insane, never mind the constant need to cover every visible inch of my body in thick clothings so nobody can see, it’s even all over my hands! At least I can use make up on my face to sort of hide it there. I’ve had a few visits to a sun bed (the only thing that ever worked for me in the past was natural strong sunlight) and I think it’s made a small difference, patches are flattening and getting lighter in places.

Hard to get anything with steroids in them otc. Boots used to do dovonex, can’t find it on their website but maybe they just have it in the stores behind the counter. Dovonex is sold out online for any of the Irish pharmacies.

Thanks for the info :)

I’m still riddled with it - sun beds have made a small difference but not much. Booked a few days in Portugal next weekend - the sun always works for me, it’s the only thing that ever has (though I’ve never tried immunosuppressants or biologicals)

I spoke with a dermatologist before Christmas. I have decided not to do the injections and stay using enstillar. Not sure whether thats the right decision or not. She said if I go with the injections I will need to continue this for the rest of my life, this kind of turned me off. I would rather have the option of using something or not. Some days Im just not in the humour to apply the cream, so not sure what Id be like with injections. Dermatologist said I need to take a break of using Enstillar every # of weeks to allow skin to rest. Anyone else told this? Enstillar is fine while using it but it does come back quite rapidly when relax using it.

Just a little rant on what really bugs me, people telling me that they know someone who also has psorisis, but its much worse than mine! 😣 they literally see my face, the rest of me is covered!!

Hi,

I am new to boards and to this forum. I have had guttate psoriasis for around 30yrs now since I was a kid. Have tried everything over the years apart from biological injections or tablet form drugs. Have been to a dermatologist and he is recommending biological injection, such as Humira or Ustekinumab.

I would like to know if anyone here has been on any form of biological treatment. I am lucky that my psoriasis doe not cause much pain or discomfort but I am covered from head to toe most of the time with some clearance in summer when I get exposure to sun,so the sound of the biological treatment is tempting if it was to work.

My concerns are that I am a realitivley young an active person and I worry of the long term side affects and how it may affect my body.

Any advice or opinions would be greatly appreciated.